Diabetes Burn Out

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Comment by Beth (Craven) Wesselman on October 30, 2009 at 12:55pm

Crystal nothing frustrates me more than when my own family refers me to others as "a bad diabetic". I mean what am I so bad about? I get frustrated that my husband also tells me "oh you could teach a class on diabetes". No I cant. I have had it since I was 3 years old and on top of that I have hypthyroidism. So needless to say I have to memory. If it is not on a post-it-note, Im not going to remember it. I got the best advice from a doctor when I was 15 and in Riley hosptial. I asked him when I then began the thyroid meds "what else can I look forward too medical wise?" He then proceeded to tell me "you learn as you go, and go as you learn. I cannot forwarn you about everything because then everything will scare you. Try as we may we cannot prevent everything. You are going to learn more about it as you have it (complications) and will deal with it properly then". I felt this was the best advice I ever got. We cannot prevent everything that is going to happen to our bodies. We can help delay or help the processes for which we are heredity doomed for. I am sorry if no one agrees with me but ask me what some things are and Im going to tell you "I dont have that yet, but when I do, I will be more than happy to expain it to you, for now I am doing what I can and for what the good Lord gives me....strength.....love....family....friends...... Good luck Crystal and God Bless

Comment by Crystal Cook on October 26, 2009 at 9:40am

New to the group (and site), I'm relieved to see I'm not the only one feeling 'burnout'. It would be nice if none of us ever felt this way but I must say for the first time in a while I don't feel so alone in it all. Sometimes I think my family thinks I'm a "bad diabetic" because I am just tired of all of it right now. It seems like nothing I do, no matter how well I do things I am just sick all the time. My A1C is 11 right now, my sugars can go from 400 to 40 throughout the day and I'm not missing my shots or my meds, not skipping meals or eating terribly. I'm just frustrated right now and it seems like my frustration makes my personal diabetes police posse pissed :o)

Feels good to get it off my chest. I'm having some vision issues right now and I gotta say that scares me. I recently added Novalog to my regimine. (lantus & glucophage) I was hospitalized for high sugars, over 400 for a week and ever since my vision has been blurry. Waiting for opthomology to call and schedule me in.

I try to stay positive and I feel guilty for complaining but right now I can't help it. In twelve years I've not been able to gain control my diabetes. How do I stop feeling this guilt for simply being tired of it all?

Comment by Cathy Jacobson on October 26, 2009 at 8:34am

I've only been a practicing diabetic for 8 years. For the first two years after being diagnosed, I just ignored it...and did NOTHING....but now it's like it is my only cause and it is wearing me out. But what wears me out the most is the food end of it. I do well with breakfast, then a little less vigilant at lunch, and by 3:00; I'm burnt out. I feel better when I am being on top of things, taking my sugars, exercising, eating correctly, but gosh, what a lot of work just to live. Sometimes I think life is tough enough without all this extra stuff.

The hospital here has closed their doors to many of the unnecessary procedures like testing for A1C's etc, until we reach a place where the flu isn't a big problem.
So I am sitting on orders for an A1C and can't get it. My last one was 6 9....not as good as I want it. But then I've had two cortisone shots for my arthritis, so that will reflect on the numbers, too. ICK --- too much whining.

Today, my plan is to get meals figured out before shopping, bulk up my frig and cupboards with vegies rather than fruits. We have NO junk food in the house, it's just keeping those food that I can eat fresh and here. I will exercise on the way to the grocery store, and prick my fingers enough to get an idea of where I am at...I have a doc's appt this week, so we'll see what can be done. Stay healthy as possible.

Thanks for starting this site, it's good to come and share and find some relief from the daily grind.

Cathy J

Comment by Cheery Love on October 1, 2009 at 2:26pm

hey steve = good to see you again. you were the first to welcome me, so i've always noticed when you are on. im not here much either but i know when i am, it really does help. great job on the a1c, i wish i could get below the 8's. i think the long timers will & are dealing with more of the complications because there has been SOME advancement in medical treatment. at least now we all have one another to talk to. you know better than i do = we just have to keep on keeping on. most of us dont want the alternative. sometimes i get pissed when someone says diabetics can live a normal life. yea right. how normal is it to continually be sticking ourselves or in my case, walking on 2 prosthetic legs. but i only get pissed SOMETIMES. then i think what i would have missed out on if i had checked out when i could have. the joy of my only grandson, the trips to scotland, grand canyon & tombstone. i know, sometimes its a broken record but fact is - we do it or we dont. we always have the next race, the next butterfly, the next sunset & oh boy - the next snow fall!! so - glad you are back & in many ways, doing so well.

Comment by Steve RRR on October 1, 2009 at 11:27am

I am tired. I have been out a lot from work, having problems with gasteop and depression and things all these other specialists treat me for. My employer has always been very good me. When I work, I am scheduled for 30 hours. They have helped me continually accrue time for intermittent FMLA to help me from losing my health (and going on COBRA).

My A1Cs were above 8 for 3 quarterly endochrine appts in a row. I tried a little harder and brought it down to 7.1. etc etc.. I have been away from TuDiabetes for Tu long. It always help me here.

Comment by Ana Guzman on September 30, 2009 at 1:29pm

I have been thinking lately and it is freaking me out and taking a real toll on me- i have had diabetes for 19 years with no complications but when is this going to change? When are my eyes going to go bad, my kidneys, etc? I guess it really is scaring me now.

Comment by Beth (Craven) Wesselman on September 30, 2009 at 1:22pm

I have had type 1 diabetes for 32 years. I developed it when I was 3 years old. My last A1c was 9.4. It really gets to you the complications day in and day out. The frustrations that those only with diabetes can be exposed to. The days that you feel like your living in the fog trying to look out at your love ones. I feel as if the last 6 years with my daughter Ive been more in a stupor than there doing hands on events with her. She lives a dialy life "oh mommys blood sugar is high again, you'll be ok mommy". Then the satanistic side of me kicks in and Im like what if Im not ok or there. I just have to remember to believe in God and that he has faith to believe in me.

Comment by Xanthasun on August 5, 2009 at 6:20am

Not an expert answer...but the testing machine that you have looks at the amount of glucose in your bloodstream at the time you are testing whereas the A1c measures how much glucose has stuck to your red blood cells and is more like an average of the numbers that you would get from your testing machine. Normally one gets their A1c tested about every 3 or 6 months or at least 12 months where testing with your machine (testing blood sugars) is done on a daily basis

Comment by Debi McCallum on August 5, 2009 at 1:26am

What is A1c? I am in South Africa and my tester machine has readings that run from 0 to 35mmol. Is it the same thing..?

Comment by Debi McCallum on August 5, 2009 at 1:23am

I've just joined the group 'cos I'm really battling to keep my head above water. It's days like today I could just throw in the towel.

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