Comment

Comment by Lee on February 16, 2011 at 12:03pm

Hi group. New to this website (or any diabetic website). I have been diagnosed with the disease for 18 years. It has progressed to the point of having an A1c of over 12.5 and it may be around 15 when I return to Dr. on March 3. So far (I know I've been lucky) no visible signs of damage to organs or limbs, but know it is probably happening. I am tired of playing the blood sugar "surprise" as I call it. I want to try and get serious one last time before I just give up. I am currently using Novolog 70/30 pen, 85 units in am and 65 units pm, plus 1000 mg of metformin twice daily. I outeat it all. Suggestions are welcome. Thanks.

Comment by Sue R. on February 7, 2011 at 5:51pm

Yea! Glad to hear back from you.

Comment by PBLady on February 7, 2011 at 2:47pm

God Bless all of you who replied to my outcry. One thing for certain is although you all are burned out too, you are not burned out on giving support and love on this page. I am still struggling with depression and have not gotten back on meds, but will try harder since printing out your responses below (taped to my cube wall at work and on the home bathroom mirror). You all are very much appreciated --

Comment by Cheery Love on February 7, 2011 at 2:32pm

yes, robert. your last sentence is very very true!!!!! i have lost both of my legs & it was at a time when i was at the peak of my health. my weight was down & i was walking 2 hours a day. then - oops - i got a rock in my shoe & didnt know it. so - walk while you have legs & live while you can. like they say - things can always get worse. & with diabetes, they will!

Comment by Sue R. on February 6, 2011 at 3:29am

Yes, the weight gain is a problem.
What would it take to be a transplant candidate at your hospital? Don't your kidneys have to fail?

Comment by Robert G on February 5, 2011 at 7:50pm

Yea I know about burnout.. I have been motivated to stay under control some days and others I just don’t care. It sucks to be hungry and then know that you have to test before hand only to find out that you are close to 300. (for those on a CGM you will know what I am talking about) the ever so familiar buzz… buzz… buzz.. then you pull the pump out only to find out.. yep 270 with the arrows pointing upward.. And you thought you were doing good.. It Sucks!! Had one of those days yesterday.. but today something totally different.. 120-130 over night, 130-140 after coffee and breakfast, 120-130 for the rest of the day..

My thing is that every since I have been on the pump 2 yrs I have gained some serious weight. I have jumped up close to 40 lbs! My A1c has been consistently 7.7 down from 9.2 and I am on Thyroid meds. I have more energy but my damn knees.. jeeze!! Hurts like hell.. I have never had problems with them at all.. until now.. Makes working out a real Pain Literally..

I quit smoking over a year ago and with the money I save.. I ride a 2008 Harley Davidson SuperGlide!! SWEET! I love it! But when I was smoking, my weight was stable.. I am beyond the mindset that smoking will make me loose weight, so I need to go back.. I will NEVER go back.. I quit cold turkey after over 20 yrs and it took me 3 days to really deal with it..

If it wasn’t for the DOC and TuD I don’t know what I would do these days, I read about treatments, devices, others experiences, and make new friends.. This does keep me motivated. At the hospital I work and get medical care from, I have the transplant team bugging me all the time to get them my results to see if I am a candidate, many of the docs and nurses I know ask me how I am doing. I work in IT department and I have been asked to give my opinions on different technological devices on the market to our Admin staff. That’s cool too.

But I can tell you, this is a disease is something else.. I sometimes think. I would give my arm or legs not to be a diabetic.. and if I am not careful,. I could loose them as a result and still be a diabetic!!

Comment by Alice on February 3, 2011 at 1:11am

PBLady, Remember that serious highs cause foggy thinking. Also, you feel lousy on top of everything going on. We feel alone because people (including ER staff) don't "get" it. Only do one thing: Find someone, at a clinic or health center, who can treat your depression. You might find it hard to deal with everything until you do that.
I, and the others in this group, are burnt out, but keep on keeping on.

Comment by Natalie ._c- on February 2, 2011 at 6:46pm

PBLady, you would be surprised at how many people care. They aren't always very good at expressing it, and they really don't know what to do, but they DO care. It's the devil depression lying to you right now, but you don't have to believe him. GO to the hospital! With a BG like that, you ARE in danger, and it's not worth it.
I had a coma last September, and my friends proved to me how much they cared by coming to look for me when I didn't show up for a picnic. They got me to the ER, and that saved my life, as I would surely have been dead by morning.
Death is too permanent a solution for things that DO have other solutions. A therapist might be able to help, and you might need to spend some time and money untangling the threads, but remember there is only one life to live, and you would be cheating yourself if you killed yourself now. Who knows what wonderful experiences wait around the corner if you get yourself ready to meet them? I have been in exactly your place (suicidal), but I got help, including anti-depressants and psychotherapy, and they DID help, and I'm feeling a lot better now. If I can do that, why not you?
Keep us posted, because at least WE care!

Comment by Sharon (Sneetch by the Beach) on February 2, 2011 at 4:31pm

HI PBLady - ugh....so sorry to hear your pain. When it rains it pours sometimes and I really hope you know that your are not alone. Diabetes is hard enough...add the stress of family life, challenges with doctors/ER etc and you just want to give up! I hear you. What helps me is that fact that everything is temporary....Everything..the pain and the joys of life. If you are in a painful situation...know that joy is right around the corner......it might be closer than you think. take care - sending you positive energy your way XOXOX

Comment by Sue R. on February 2, 2011 at 4:04pm

Hope you do go to ER. Then look for referral to new endo. Please come back here - we're behind you. Hang in there.

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