A group for diabetics who have had this disease for numerous years, who have had enough and are in need of support. This group is for anyone who is becoming burnt out from having to deal with the day to day struggles of living with diabetes.
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Latest Activity: May 16
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Comment
Nothing will shock you out of burn out like getting hit by a car. I felt totally burnt out. A year after getting hit I've learned first hand what T1D is all about. I'm taking tests with no complaints as that is literally keeping me alive.I came close to dying because of an infection on the titanium on my ribs. Getting up close and personal with T1D shook the weariness off.
Comment by Sue R. on January 22, 2013 at 5:32pm This is a great blog, Ashley. Well-written and interesting.
Congratulations!
Comment by Sue R. on January 22, 2013 at 5:31pm Ashley - nicely done! Allof it is VERY WELL DONE!!! I invite you to my blog/site to read my book/story and share yours and your site/blog on mine! just click here: http://www.suportersofsurvivors.org
Comment by Ashley on January 22, 2013 at 7:34am I was diagnosed with T1D in 2nd grade, when I was 7. I am now 18 and have just finished my first semester of college. As part of a scholarship program, I've created a blog (http://www.whoneedsbetacells.blogspot.com) intended mostly for teen/college aged kids with Diabetes. Through it, I focus on how Diabetes has just become a part of my life, not an aspect that defines me! I am, and have always been a strong believer in everything happening for a reason... I've found that if I walk through life with this mentality, all obstacles become bearable and eventually seemingly minimal. Anyone who is just plain fed up with Diabetes or feels like it is playing a bigger role in their lives than they want it to, please check out my blog. I would appreciate any feedback, post suggestions or comments! I feel that I am in an ideal place (having had Diabetes for 11 years, and just starting college) to use my story to not only inspire others, but help them with struggles I may or may not have already dealt with! Thanks :)
Comment by Carm on November 30, 2012 at 7:25am Suffering from burn out and my major problem is that I have gone off track and am so struggling to get back on track. I just can't do what I know I should any more. I begin each day with a plan and great expectations and by bedtime, I am totally off the chart. My numbers are not as bad as some and the only diabetics I have contact with think I have it easy. I seldom suffer any lows and when I do they are like 75. My highs will reach into the 160s. When I see a number over 140, I feel a sense of panic.
I have what I call All Day Dawn Phenomenon. If I do not eat on time, my numbers go up. Eating on a time clock is so difficult. I have just gone off diet, off exercise for about three months now. I need to get back on track and so wish I had a keeper to just prepare the food, all me to the table and take me to the gym. Of course that is unrealistic. I must do it.
Well, that's where I am at... I began my diabetic journey feeling I could die with this insidious disease. I nearly immediately began perfect control and kept it for years. Something happened a few years later. I dropped into a depression so deep that I didn't care about anything. Nothing mattered. I didn't die. Not that I wanted to but I no longer hae the fear that kept me in control. Okay that's me...
Comment by Chaplain ET on June 11, 2012 at 3:02pm Well, I could enumerate all the things I've got going on with me, but I always feel like a little child, whining, when there's no chance of things changing. Of course, I've got diabetes (Type II), since 1986, so that's been a pain in the posterior, for quite a while. Medications, diet, and now Insulin shots (fortunately I'm on Lantus, one shot a day, so that makes me at least, contented), as well as 3-month visits to my internist. As I'm over 65, and a veteran, I'm covered by the base hospital here, for medications and doctor visits. Then I'm on Oxygen, too, since I picked up Chronic Necrotizing Pneumonia in 2008, and lost almost 20% of my lungs. So I tote around a little Oxygen tank when I go out, which lasts about 6-8 hours. At home, I'm on a big tank, with a 60 ft hose, trailing around behind me, which likes to trip up my wife or I. So I can't go very far, for very long! No vacations, no trips, except to nearby Boise. I haven't gone anywhere since 2008! Then there's my leg ulcers, heart disease, and a few other things.
BUT, I can walk, take care of myself, go to Church on Sunday, go out to eat once in a while, read, and play on the computer! AND, I know there's lots of folks out there that have it far worse than me! So I'm grateful for what I can do, and visit other countries and places thanks to Rick Steves, and the folks on the Travel Channel. If you've stayed all this time with me, thank you. I'm really grateful to have, what I have.
Chaplain ET.
p.s. I'm thankful for my good memories, too...
Comment by Natalie ._c- on June 11, 2012 at 9:05am Lindsey, I definitely understand burnout and the desire not to care for your diabetes and just be like everyone else. It's a pain in the butt to have to do all those little tasks to take care of yourself. I've been where you are, and let's admit it, DKA is damned uncomfortable (an understatement), and NOT the way to live a good, happy and pleasant life. Unfortunately, we HAVE to do those things, and it's just not possible to be like everyone else (which is a misnomer -- there are lots of people struggling with their own diseases and issues -- we're just focused on diabetes and not thinking of them). It has to become a habit, not something you always have to think about. I have my own struggles, and I have times when I really want it to go away, but that's just not reality. I hope you have a support system, because it's really hard to go it alone, and you need a way to motivate yourself when you REALLY don't want to. Let us know how you're doing!
I HEAR YA...Lindsay! I have a similar story that ended with a STROKE. If you want to vent and read more stories of other unfortunate Diabetics and their post "EVENT" stories or just to get some additional help visit my site: http://WWW.supportersofsurvivors.com. Nothing for sale there, I promise!
Comment by Lindsey Beth on June 11, 2012 at 12:08am I just came out of what I consider a burnout. All through high school any my first few semesters of college, I rarely took care of my T1 diabetes. I neglected my sugars and refused to care. A few weeks ago, laying in a hospital bed in DKA, I realized that I had to start acting like an adult with my health and Ive been trying my hardest, its just so hard sometimes when I want nothing more to be just like everyone else.
Manny Hernandez(Co-Founder, Editor, has LADA)
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Bradford (has type 1) |
Lorraine (mother of type 1) |
Marie B (has type 1) |
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