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Diabetes Trials

Join this group to stay informed about diabetes clinical trials.

Members: 48
Latest Activity: Nov 10

Discussion Forum

Eric Hehr

Is there anybody else in the Defend by Tolerx 3 Replies

Started by Eric Hehr. Last reply by Emily Joy Oct 6.

Manny Hernandez

NUMEROUS ISLET TRANSPLANTATION TRIALS UNDERWAY AND ACTIVELY SEEKING PATIENTS @ UCSF 1 Reply

Started by Manny Hernandez. Last reply by christopher rael Sep 7.

Manny Hernandez

Clinical Islet Transplantation Consortium - studies

Started by Manny Hernandez Aug 14.

Manny Hernandez

Three studies for patients with type 1 diabetes 1 Reply

Started by Manny Hernandez. Last reply by Jennifer Smith May 1.

Manny Hernandez

Stem Cell Transplant study for type 1 patients

Started by Manny Hernandez Apr 24.

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Xanthasun Comment by Xanthasun on July 17, 2009 at 9:48am
Emily Joy- I was looking at clinical trials and found this one that is looking for people ≤5 years since T1D was diagnosed (not me). Not sure if the rest matches up for you, but there are probably more that are looking for more recently diagnosed people.
Emily Joy Comment by Emily Joy on July 15, 2009 at 5:45am
I've looked into being used for diabetes trials. however, wherever i've looked, i've seen that you need to have been diagnosed for more than 5 years. I was diagnosed just under a year ago, but I want SOOO badly to help in this area!! Does anyone know what I can do to help during the next 4 years? are there any studies that can be done on me yet? Thanks!
Kathy Comment by Kathy on May 25, 2009 at 1:25pm
I am currently in a clinical trial at the University of Minnesota. I had an islet cell transplant in July and have been off of insulin since September. Clinical trials do carry risks, but at least for me the benefits have far surpassed the risks. I also have the added benefits of being under close supervision by amazing doctors and feeling like I am contributing to an important cause.
John Comment by John on May 16, 2009 at 9:37am
..or even used as a reference for CGMs and such which work better with more accurate BG readings
John Comment by John on May 16, 2009 at 9:36am
Speaking of which I still have a Hemocue B-Glucose meter with PS/Case/Calibration curvette. Just wish I could get a response from either the company or a clinic that would have use for one of these machines. Had a email exchange a long time ago and then nothing once they were bought out by Quest Diagnostics... Really would like to see the machine re-certified and used in a place where it is needed... (Excellent meter btw.. At one point HemoCue was going into the consumer market but then just stopped.. the gotcha of course is the blood quantity requirement and the cost of the curvettes (vs strips)...but i could have seen them getting people to use it perhaps weekly or more often as a way to check if their strip meter was in accuracy or if they had doubts about the readings out of it (it can be used as a lab reference)
John Comment by John on May 16, 2009 at 9:31am
I dont know particulars on Tolerx but i know a few companies are playing with immunomodulators to try to extend the diabetes holiday for newly diagnosed Type 1s... (immunomodulators are the class of drugs like Remicade and such that are used to help with RA (Rhumatoid Arthritis) by "tricking" the immune system into toning down a bit)... a milder form of immunosuppressants such as those used for organ transplant recipients..idea behind that is that if you tone down the immune system,it wont kill off the beta cells as rapidly and possibly "reset" it from continuing to attack them, thereby extending your beta cell function and the infamous diabetic holiday period and maintaining some to most of your beta cell function...
John Comment by John on May 16, 2009 at 9:26am
Iv played the trial game.. Dont know if anyone remembers the photocopier size device that was supposed to do painless blood glucose readings.. Unfortunately the company tanked.. (Unfortunately or fortunately i wasn't in the group that got to take those home)...
Manny Hernandez Comment by Manny Hernandez on May 1, 2009 at 10:11am
Tolerx has this trial currently under way.
John Comment by John on April 30, 2009 at 11:56pm
anyone hear anything about tolerx? my doc wants me to go for it but I remain skeptical for anything "tricking" my immune system's seemingly "natural function"
 

Members (47)

Manny Hernandez Emily Joy Eric Hehr Jennifer Smith christopher rael George Simmons Jaimie Hernandez Krueger Maden tracy Stacey :0)~ Amy Doretta Reily Samantha Lorri Strider John Lara Marnie I am Me Darryl Brooks Cory Brumbalow Lisa Vicki John Dawn Kathy WILLIAM PALUBINSKY Ron Pierce Patricia Leslie Cruz
 
 

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