Diabetic Cyclical Vomiting Syndrome

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Diabetic Cyclical Vomiting Syndrome

This group is for those that are experiencing a vomiting cycle that is not gastro-paresis, it is it's own thing, commonly called "Cyclical Vomiting Syndrome". After years, I finally have some answers.

Members: 9
Latest Activity: Jun 5, 2013

Diabetes Forum

How do you treat your (Diabetic) CVS?

Started by Bec Jan 20, 2012. 0 Replies

Long thought of as a pediatric problem, it is now known to affect a large number of adults (both diabetics and non-diabetics) - how do you treat your CVS?Continue

Tags: vomitting, CVS

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Comment by Leigh on June 5, 2013 at 2:16pm

I had another episode a couple of weeks ago. I guess this is the last one since my last post in Aug/Oct of 2012.
It started in the morning, I called my husband home from work by noon, and we were at the ER by 1pm. It was pretty awful. My blood sugar was only up to 400-something and I had keytones. So I was admitted to the ICU, where they have an insulin drip. I got my room by midnight and finally fell asleep for 15 minutes while my husband was talking to the nurse and preparing to leave for the night. When I woke up, I felt totally fine and totally normal again. It always amazes me, the difference I feel. But I MUST fall asleep for it to go away (the dizziness and nausea and constant heaving). Of course at this point, they wouldn't let me go home, but I felt SO much better, I didn't care. I knew I'd be going home the next day, and I did.

Going to the hospital earlier in the "episode" is best. Get on an IV, flush out the keytones, etc. Man, this sucks.

Comment by Mary Anne Caudill on January 6, 2013 at 11:46am

Leigh,
Sorry, it's been a long time since I've been here. The trip to Florida went very well. My doctor provided me with both an anti anxiety med and an opiate. No ER visits in Florida.
I was in the hospital for a short time at the beginning of Aug., but haven't been back. The anti anxiety med is the most effective. I've been taking it three times a day, but have an appointment this month and think the Doc will put me on an extended dose so I only have to take it once a day.
Hope things are going well for you,
Mary Anne I

Comment by Mary Anne Caudill on January 6, 2013 at 11:35am

Comment by Leigh on October 2, 2012 at 3:29pm

Hi Mary Anne,
My heart goes out to you. I logged on just now because I had an episode this morning and wanted to see if anyone had written in a while. I don't log on often, I'm a very busy person. But I did want to hear how your trip went, moving your younger daughter to Florida. Did you get the proper meds from your doc? Did they work for you? I'm not familiar with Elavil. I am on a combo of other things. I must look that up.

I hope everyone is doing well!
Leigh

Comment by Mary Anne Caudill on June 24, 2012 at 5:43am

Hello Everyone,
I just now realized that there is a Diabetic CVS discussion here. I've had Type I Diabetes for 12 years and CVS for seven years. I've just now been diagnosed with CVS, after so many years of test after test.
I was actually happy about the diagnosis, because finally something made sense. I journal daily and was told to look back at my journal this year to find causes. Of the 10 episodes in the last year, 7 were caused by anticipatory anxiety. ( I also have a strong history of migraine headaches). So, my doctor tripled the dose of Elavil I was on...(1mg/kg).
The Elavil seems to be working well, I haven't been to the ER in two months. We're now getting ready to move our youngest daughter to Florida to live with her sister, (our oldest daughter). I'm currently anxious about the move, but I'm more anxious about having an episode of CVS while I'm in Florida, and having to go to that ER. Of the 47 hospital admissions I've had in the last seven years, over half of them were while I lived in Florida and went to that ER. I was treated horribly.
My plan is to ask my Doc for a small dose of anti anxiety med, and maybe a small dosage of opiate that I can take other than by mouth. I've read several studies that mention avoiding episodes by stopping it in the prodrome phase. I plan to try and do this while I'm there.
If anyone has any suggestions, please feel free to send them to me.
Thank You,
Mary Anne

Comment by Bec on January 20, 2012 at 12:10pm

Thanks for starting this group - I'm new to TuD, but not new to CVS. I was diagnosed T1D at 17, but have suffered with CVS since before I was school-aged.
I have been to numerous doctors/specialists over the years - from dieticians to allergy specialists to having tests done (the most recent was in 2009 - I had a gastroscopy).
It was suggested, however, after my last test, that I stop taking my birth control pills - which did help, but it only lasted a few months, and the CVS returned.
I hope everyone in the group is managing well - look forward to meeting you all :)

Comment by Leigh on August 25, 2011 at 9:56am
2 things I forgot to mention:
1. you will find these foods and other pro-biotic options at health food stores, like Whole Foods or Earthfare. The staff is very knowledgable too.
2. I take the clonazapam 1 to 2 hours before I wake up (for the day), so that when I do wake up, my nerves are already calm. I can get up and get my day going without the stress. This made a HUGE difference in starting my day.
Comment by Leigh on August 25, 2011 at 9:07am
Hi Cameo! Kefir is great. "That time of the month" doesn't seem to have any correlation to the vomiting. But Kefir, among other pro-biotics and some meds has done the trick for me.

Sierra and Angie, i hope you can try this. My treatment may sound like a lot, but I was really sick and had to do something. Almost 2 years to the day I started this group, and made my first post, I am healthy and no longer vomiting like i used to. Maybe you can just try parts of my solution and see if they work for you.

First of all, after many visits to different doctors, many tests, etc. there was no quick answer to how to fix this problem I was having. Many doctors just said "Sorry, some diabetics have this." But I finally went to UNC Hospitals, where a whole team of doctors were dedicated to me and visited me everyday as a group, while I was admitted. There was an endocrinologist, an internal medicine doctor, a GI doctor, and a psychiatrist and therapist.

Also, I want to explain a little more about my situation at the time. I am typically an anxious person in life anyways (and sometimes depressed). My grandmother was very sick and I was far away and could not be there, so that was really stressing me out and hurting me. I just completely had lost my appetite and when food was around it made me nauseous.

The meds they put me on:
1. 60mg Cymbalta a day - for anxiety and depression
2. 0.5mg Lorazapam before every meal - short acting for anxiety
3. 0.75mg Buspirone twice daily - to treat anxiety, such as fear, tension, irritability and dizziness
4. 0.5 mg Clonazapam 1 to 2 hours before I wake up - to relieve panic attacks, or worry about having them

the combination of all these meds helped. I regained my strength, and gained my weight back and was feeling pretty healthy.

Then in Jan, 2011, my husband had an appendectomy. Following the surgery he got a terrible infection in his gut. They treated this with lots of antibiotics, which just made his body and bacterias all imbalanced. He had thrush in his mouth (yeast) and was typically sick to his stomach. Again, no doctors would help him and said it would eventually go away. This answer didn't sit well with him, so he decided to take it into his own hands. He begun extensive research on diets and health issues.

We now eat almost all fresh foods, and stay away from anything processed. We eat yogurt everyday, we drink Kefir everyday. One other huge thing that I think is helping is a drink called Kombucha. We drink one of these everyday too. It is another pro-biotic.

My typical day of food includes:
oatmeal with nuts and raisins
1 or 2 hard boiled eggs
an apple
greek yogurt
avocado
salad
baked Kale
Quinoa
Kombucha

I believe diet is a HUGE part of this. Today I am eating healthy, and exercising daily and am in pretty good shape. I am happy, positive, and looking forward to weaning off some of the meds soon, to see if diet alone can work.
Comment by Cameo on August 25, 2011 at 6:31am

any one notice vomiting happens only or mostly around that time of the month?

Like morning sickness-hormones??

Comment by Cameo on August 25, 2011 at 6:27am

Sometimes drinking kefir will help me not start  ginger and electrolytes seem to help at times as well

 

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