Diabetics With Eye Problems

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Diabetics With Eye Problems

If you have diabetes and have had eye complications or you are legally blind as a result of diabetes, join this group.

Website: http://www.tudiabetes.org/notes/Diabetes_and_Your_Eyes
Members: 216
Latest Activity: Sep 2

Diabetes Forum

Those who have had laser for PDR

Started by Elizabeth. Last reply by Cinderfella Aug 26. 27 Replies

Experience with a vitrectomy?

Started by thisisbs. Last reply by thisisbs Jun 30. 22 Replies

retinopathy?

Started by Maarja. Last reply by Siri Jun 20. 15 Replies

Blindness and pain

Started by michele0130. Last reply by Cinderfella May 14. 1 Reply

retinopathy?

Started by Maarja. Last reply by David (dns) Apr 24. 1 Reply

retinopathy?

Started by Maarja Apr 24. 0 Replies

Lucentis and Floaters?

Started by Leata Nov 4, 2013. 0 Replies

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Comment by Randall Wong, M.D. on September 2, 2014 at 3:41pm

Best of luck.

r

Comment by amanda02 on September 2, 2014 at 3:11pm

wonderful news!
Best of luck and let us know how things go!

Comment by Vikki on September 2, 2014 at 7:48am
I just wanted to thank everyone for the good wishes during my vitrectomy. Also the double vision is gone. Glad to be past this. The other eye needs some work but one day at a time. I am grateful to be living in this amazing time. Vikki
Comment by Cinderfella on August 27, 2014 at 7:18pm
Thank you ladies for coming forward with your stories. I had a whole lengthy response typed up several hours ago to this post but it seems to be lost in cyber space. Maybe it will show up, maybe it won't. Anyway, I'm sorry we all have to go down this road. I'm comforted by hearing what you have to say. Thank you again.
Comment by amanda02 on August 27, 2014 at 11:55am

Hi, Cinderfella,

I am so glad Dr. Wong stepped in.I didn't know what to tell you, but you aren't alone.

I've been seeing a retina specialist for two years now for laser treatment and injections. I need cataract surgery, too. The corrected vision in my left eye is about 20/50 and wonky from scarring. The corrected vision in my right eye is 20/40, which is minimal for driving in this state.

When I started this, I was told I was legally blind, so my vision has actually improved from treatment. But I've been blind, and I am frightened that I will be again.

Be brave, and know we are with you.

Comment by earthling on August 27, 2014 at 11:39am

Hi Cinderfella. I'm pretty much going through similar stuff with you. I can't imagine how you work on top of it. You must be Superwoman!! I "work" at home, gardening, putting up food, and caring for the house and livestock, but no harder than I feel up to on any given day. So lucky that way. I wish you were too. Your life sounds truly difficult.

Monday I had Avastin and some laser in my right macula to stop bleeding/inflammation there. Vitrectomies in both, no peripheral left in my left eye (PRP), about half of peripheral left in my right, but my right macular retina won't stop bleeding so I keep needing more laser (the gentler kind for macula) and Avastin shots. I hear you about bumping into things and people that seem to pop out of nowhere. I've developed this owl-like head/shoulder turning when I drive - hyper driver's ed-type checking for lane changes, stop lights/signs, and merging.... I live rurally, so if I lose driving I will become totally dependent on my husband for EVERYTHING. Ugh.
My bleeds are not as dramatic as yours sound, though I did have a couple like that in my left eye a few years ago, before all the work. Left is stable for now.

Anyway, I am sorry your retinopathy is so relentless. I get really down too. It just breaks a person's heart and spirit, and no one really understands. You can look forward to the cataract surgery, though - it's miraculous, I thought. I've had both eyes done, followed by yag surgery and you won't believe how bright colors look afterwards! Magical.

Comment by Cinderfella on August 27, 2014 at 10:50am
My central vision is actually pretty good except that I have developed cataracts from all the work I have had done. I have had focal lasering too for some macular edema that has been sufficiently treated. My doctor says my left eye is fairly stable and could tolerate the cataract procedure. We are hoping to get my right eye under control so the the cataract can be done on the left. My left eye has had pretty much all of its peripheral vision lasered away. I was hoping that my right eye could require less lasering away of the peripheral vision but I guess it's just not going to go that way. I still have a fairly wide scope of view in my right eye. It's the only peripheral vision I have left. My concern on losing it is driving. I already bump into things that I can't see on the left. I have had so many near misses with driving, etc.
Comment by Randall Wong, M.D. on August 27, 2014 at 10:17am

@Cinderfella - so the question is whether you've had sufficient PRP? The goal would be to ensure you've had enough. Perhaps then, this would be tailored with anti-VEGF injections (Avastin, Lucentis, Eylea). Very subtle differences between the 3, but sometimes helpful to change if one doesn't seems to work.

The first thing, however, is not confuse focal laser with PRP (also known as "surround" or "scatter" laser).

How is your central vision, i.e. your ability to read?

r

Comment by Cinderfella on August 27, 2014 at 9:18am
Thank you Dr Wong. Feel free to add your 2 cents any time. I would be open to any other thoughts you have on this situation. Thank you.
Comment by Randall Wong, M.D. on August 27, 2014 at 8:55am

If I may add my "two cents."

Diabetic retinpathy is probably best treated by a retina specialist who treats more than diabetic retinopathy because at some point diabetic retinopathy can be a surgical disease.

Most retina specialists are quite comfortable treating all stages of diabetic retinopathy.

I hope I am not confusing anyone.

r

 

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