Diabetics With Eye Problems

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Diabetics With Eye Problems

If you have diabetes and have had eye complications or you are legally blind as a result of diabetes, join this group.

Website: http://www.tudiabetes.org/notes/Diabetes_and_Your_Eyes
Members: 220
Latest Activity: Mar 23

Diabetes Forum

Looking for input

Started by Cinderfella. Last reply by earthling Feb 27. 5 Replies

bleed after 3 months po vitrectomy

Started by Vikki. Last reply by Vikki Dec 11, 2014. 9 Replies

Those who have had laser for PDR

Started by Elizabeth. Last reply by Cinderfella Aug 26, 2014. 27 Replies

Experience with a vitrectomy?

Started by thisisbs. Last reply by thisisbs Jun 30, 2014. 22 Replies

retinopathy?

Started by Maarja. Last reply by Siri Jun 20, 2014. 15 Replies

Blindness and pain

Started by michele0130. Last reply by Cinderfella May 14, 2014. 1 Reply

retinopathy?

Started by Maarja. Last reply by David (dns) Apr 24, 2014. 1 Reply

retinopathy?

Started by Maarja Apr 24, 2014. 0 Replies

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Comment by Gail on March 23, 2015 at 3:47pm
I have had type 1 for 53 years. No complications until 2010. Had a torn retina in my right eye, had 2 Vectrectomies which now has caused cataracts. Currently my vision in the right eye is 20/50. Here is my real problem....my left ...due to a torn retina with vitreous hemoraging, I've had 3 Vectrectomies Dec 2013, February 2014 ( folded retina w/vitreous bleeding he did a skalural buckle ) and March 2014 another Vectrectomy with silicon inserted. I still have the silicone in my left eye. Should I have cataract surgery in my right eye? I'm afraid I will end up totally blind. Has anyone else had experiences like mine?
Comment by amanda02 on February 10, 2015 at 6:27am

missrobbie, I never used used HRT, and I am very glad I did not, just as I am very glad I never used Fosimax for bone density. I agree that sometimes the potential benefit of drugs is outweighed by possible harm.

Comment by amanda02 on February 10, 2015 at 6:24am

Dr. Wong, My retina specialist did mention Ozurdex to me last year, but was waiting for FDA approval. I will ask him about it again when I see him next month!

Comment by missrobbie on February 10, 2015 at 5:40am

Dr wong ,

What is the deal with steroid in eye injection?

Comment by missrobbie on February 10, 2015 at 5:37am

amanda02 ,

Like I said , this debate probably will be like HRT/menopause drug side effect. HRT has ALLOT of bad side effect for women but some women are willing to take the risk just to replace hormones and symptom relief . For me and for now ,I am going to halt Lucendis injection. I want to see but I do not want to take the small or big stroke risk. I have a history of hypertension. My dad went in the hospital for mini stroke last Oct. I had to feed my dad, help him go to the bathroom, dress him ,help him learn how to talk and memory lost. Yes I would like to see but I do not want an added stroke risk 1-2% change right now.

I think Dr Wong for his comments but there are 3 sides to this Lucendis side effect debate good, bad and the truth.

Comment by Randall Wong, M.D. on February 10, 2015 at 5:36am

I'm assuming that most of you are receiving Lucentis because of diabetic macular edema?

There is another treatment for DME, called Ozurdex. It is a sustained release intraocular steroid and is very effective. It has been FDA approved for about 4 years, but for retinal vascular occlusions. It is now approved for diabetic macular edema.

I love it for my patients - the steroid is not a new drug and has been around for generations (dexamethasone), the safety profile is great (no record of ATE's!) and significantly cuts down on office visits and injections - it lasts about 4 months.

Ask your retina specialist.

Comment by amanda02 on February 10, 2015 at 5:18am

Dr. Wong, Thanks for stepping in! It is always kind of you to provide us with a professional opinion in this forum. Your explanation is clear and helpful
MapleSugar, Thanks for your research. I will look at it when I have the time
Personally, I am very grateful that Lucendis is available despite whatever downsides there may be.
When I first went to see a retina specialist, I was told that I was legally blind. To me, that was a very frightening period. My father had been blind. A friend of mine had slowly lost her eyesight due to Macula Degeneration and spent the remainder of her life in a nursing home.

Comment by missrobbie on February 10, 2015 at 5:12am

MapleSugar,

First we have to keep in mind, the drug company and medical field is making money off of Lucentis but anyway, this debate remind me of HRT menopause drug side effect

This quote I found on the bad drug website
"
"As of January 2007, there has been a confirmed stroke risk associated with patients taking Lucentis."

For me and for now I am going to halt my Lucebtis injection. I have a history of hypertension. I could be in that 1-2% group. I want to see but I don't want to further put myself in stroke danger.

Comment by MapleSugar on February 9, 2015 at 11:59pm

"The FDA warning only says that heart attack or stroke occurred in their study group at a rate of 1-2%. It does not say that anti-VEGF causes heart attack or stroke."

I'm sorry, but even Genentech doesn't seem to be making that claim, in the "Briefing Book" which they submitted to the FDA to get Lucentis approved.

First of all, the "Briefing Book" on Lucentis is available at http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMa... (May Heaven preserve us!). Anyone who can should study as much of the book as they find convenient and useful, and not believe me, Dr. Wong, or anyone else as to its contents. They should also study the original research as much as convenient. The Briefing Book is just a VERY partisan summary.

Genentech did not tell the FDA that some people got strokes, heart attacks, etc. Genentech said that more people in the groups treated with Lucentis got strokes, heart attacks, etc. than those in the supposedly matched control groups. See, for example, their Table 16. They also implied (pp. 77-86) that they would have suspected such an association anyway, their own research on intravitreal RZB suggested adverse effects "historically associated with systemic VEGF inhibition", including "arterial thromboembolic events". (The words in quotes are indeed all theirs.)

From their paragraph 10.2, p. 94: "In RIDE and RISE, ranibizumab
treatment resulted in known anti-VEGF-related and procedure-related adverse events
and was generally well-tolerated by patients with DME."
From the end of 10.2, p. 95: "Events potentially related to systemic VEGF inhibition, including thromboembolic
events (such as myocardial infarction or stroke), hypertension, non-ocular
hemorrhage, wound healing complications, and others; some of these events can
be serious and may be fatal."
Again: "Trends toward increased [emphasis added] incidence of arteriothromboembolic events (ATEs), mainly
stroke, have been observed in some prior studies of ranibizumab in neovascular AMD,..."

Good luck,
M.

Comment by missrobbie on February 9, 2015 at 7:25pm

Thank Randall,

For now, i'm going to halt my Lunentis injection. I've been taking this stuff fro 8 months and I want a rest period.

 

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