Diabetics With Eye Problems

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Diabetics With Eye Problems

If you have diabetes and have had eye complications or you are legally blind as a result of diabetes, join this group.

Website: http://www.tudiabetes.org/notes/Diabetes_and_Your_Eyes
Members: 216
Latest Activity: on Thursday

Diabetes Forum

Those who have had laser for PDR

Started by Elizabeth. Last reply by Cinderfella on Wednesday. 27 Replies

Experience with a vitrectomy?

Started by thisisbs. Last reply by thisisbs Jun 30. 22 Replies

retinopathy?

Started by Maarja. Last reply by Siri Jun 20. 15 Replies

Blindness and pain

Started by michele0130. Last reply by Cinderfella May 14. 1 Reply

retinopathy?

Started by Maarja. Last reply by David (dns) Apr 24. 1 Reply

retinopathy?

Started by Maarja Apr 24. 0 Replies

Lucentis and Floaters?

Started by Leata Nov 4, 2013. 0 Replies

Comment Wall

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Comment by Cinderfella on Thursday
Thank you ladies for coming forward with your stories. I had a whole lengthy response typed up several hours ago to this post but it seems to be lost in cyber space. Maybe it will show up, maybe it won't. Anyway, I'm sorry we all have to go down this road. I'm comforted by hearing what you have to say. Thank you again.
Comment by amanda02 on Wednesday

Hi, Cinderfella,

I am so glad Dr. Wong stepped in.I didn't know what to tell you, but you aren't alone.

I've been seeing a retina specialist for two years now for laser treatment and injections. I need cataract surgery, too. The corrected vision in my left eye is about 20/50 and wonky from scarring. The corrected vision in my right eye is 20/40, which is minimal for driving in this state.

When I started this, I was told I was legally blind, so my vision has actually improved from treatment. But I've been blind, and I am frightened that I will be again.

Be brave, and know we are with you.

Comment by earthling on Wednesday

Hi Cinderfella. I'm pretty much going through similar stuff with you. I can't imagine how you work on top of it. You must be Superwoman!! I "work" at home, gardening, putting up food, and caring for the house and livestock, but no harder than I feel up to on any given day. So lucky that way. I wish you were too. Your life sounds truly difficult.

Monday I had Avastin and some laser in my right macula to stop bleeding/inflammation there. Vitrectomies in both, no peripheral left in my left eye (PRP), about half of peripheral left in my right, but my right macular retina won't stop bleeding so I keep needing more laser (the gentler kind for macula) and Avastin shots. I hear you about bumping into things and people that seem to pop out of nowhere. I've developed this owl-like head/shoulder turning when I drive - hyper driver's ed-type checking for lane changes, stop lights/signs, and merging.... I live rurally, so if I lose driving I will become totally dependent on my husband for EVERYTHING. Ugh.
My bleeds are not as dramatic as yours sound, though I did have a couple like that in my left eye a few years ago, before all the work. Left is stable for now.

Anyway, I am sorry your retinopathy is so relentless. I get really down too. It just breaks a person's heart and spirit, and no one really understands. You can look forward to the cataract surgery, though - it's miraculous, I thought. I've had both eyes done, followed by yag surgery and you won't believe how bright colors look afterwards! Magical.

Comment by Cinderfella on Wednesday
My central vision is actually pretty good except that I have developed cataracts from all the work I have had done. I have had focal lasering too for some macular edema that has been sufficiently treated. My doctor says my left eye is fairly stable and could tolerate the cataract procedure. We are hoping to get my right eye under control so the the cataract can be done on the left. My left eye has had pretty much all of its peripheral vision lasered away. I was hoping that my right eye could require less lasering away of the peripheral vision but I guess it's just not going to go that way. I still have a fairly wide scope of view in my right eye. It's the only peripheral vision I have left. My concern on losing it is driving. I already bump into things that I can't see on the left. I have had so many near misses with driving, etc.
Comment by Randall Wong, M.D. on Wednesday

@Cinderfella - so the question is whether you've had sufficient PRP? The goal would be to ensure you've had enough. Perhaps then, this would be tailored with anti-VEGF injections (Avastin, Lucentis, Eylea). Very subtle differences between the 3, but sometimes helpful to change if one doesn't seems to work.

The first thing, however, is not confuse focal laser with PRP (also known as "surround" or "scatter" laser).

How is your central vision, i.e. your ability to read?

r

Comment by Cinderfella on Wednesday
Thank you Dr Wong. Feel free to add your 2 cents any time. I would be open to any other thoughts you have on this situation. Thank you.
Comment by Randall Wong, M.D. on Wednesday

If I may add my "two cents."

Diabetic retinpathy is probably best treated by a retina specialist who treats more than diabetic retinopathy because at some point diabetic retinopathy can be a surgical disease.

Most retina specialists are quite comfortable treating all stages of diabetic retinopathy.

I hope I am not confusing anyone.

r

Comment by Cinderfella on Wednesday
Hi Lisa C. My doctor treats all retina situations not just diabetic retinopathy. He is hailed as the best in my area. I don't lnow if there is anyone who solely takes care of diabetic patients around here. I know my doctor has kept a lot of people going, myself included. It's just so frustrating because I'll just get my eye cleared out. Things will be great and then I'll have another bleed which sets me back two months waiting for it to clear out. There seems to be no end in sight to it. I see other people post on here that they have a vitrectomy or get some lasering and then they are good to go. Not so for me for some reason. I keep getting set back over and over again. It's hard to keep picking myself up. I'm still working full time but this situation makes it really hard. Would like to quit for a while and just concentrate on myself but I don't know how I would manage on less than full time pay. It's a troubling situation that causes me a lot of stress and worry.
Comment by lisa c on Wednesday

Cinderella, Your pain and frustration are felt by us all. I do know others who have had similar situations in the past. Are you going to a guy who ONLY does Diabetic retinopathy? I do believe this is essential for the bet care and hope for remedy sooner. Sending healing light.

Comment by Cinderfella on Wednesday
More eye bleeds tonight. I am so sick of this. I have had vitrectomies in both eyes, multiple rounds of lasering, dozens of eye injections. Still the bleeds keep coming. I feel like I'm the only person that this is happening to at such an out of control rate. Can anyone offer me encouragement? Comforting words? A grain of hope? Commiseration? Anything?
 

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