Replies to This Discussion

Permalink Reply by Steve D on December 8, 2011 at 1:14pm

I sure hoipe so! Good Luck, Josh!

Permalink Reply by Josh F on December 9, 2011 at 12:01am

;-) Thanks Steve. I feel like I spend a lot of time thinking about this stuff, but it bothers me so many of us are effected by it despite how hard to take care of ourselves, and I am convinced we will reach a time in the next decade when we don't have to live with the feeling of waiting for the other shoe to drop.

Permalink Reply by Steve D on December 8, 2011 at 1:17pm

I have found with my 5 vitrectinueis that the usual collateral damage is primarily cataract damage. I have had both eyes cataract surgery, which is FAR LESS (in terms of pain, anxiety, etc.) than vitrectomy.

Permalink Reply by pryde on December 8, 2011 at 2:13pm

Thanks for the link Josh. I have also been reading some interesting new pathways for retinopathy treatment. I will try to dig up some materials

Permalink Reply by Josh F on December 8, 2011 at 6:26pm

http://bmctoday.net/retinatoday/2011/04/digital-supplement2/article...

We need to pursue this and ask our eye doctors about it. It is proven in a 3 year clinical trial to be as affective as traditional PRP.

Permalink Reply by Josh F on December 11, 2011 at 4:57am

Well despite the quietness here, I am continuing to post what I think is important info for all of us.

http://www.iridex.com/ophthalmology/index.html

Check this company out. they are the manufacturer of the micropulse laser that does not scar our eyes. ;-)

I like their subtitle "do no harm"

Permalink Reply by Patrickmind on December 11, 2011 at 7:19pm

Until then we have this vegetable that apparently prevents macula degeneration.

http://www.naturalnews.com/020542.html

Permalink Reply by Josh F on December 11, 2011 at 9:28pm

Hahahah. Yeah I guess so. I am trying to chill a bit more. Enjoy life between my apparent period of extended transient stress. ;-)

But yes he have spinach. Patrick you go to Beetham right?Who do you see there if you don't mind me asking? I see Dr. Sharuk. Awesome practitioner, a little lacking in the easy bed side manner dept.

Permalink Reply by Patrickmind on December 11, 2011 at 9:52pm

I see Tim Murtha who has the best bedside manner and aggressive too as I go there twice a year. Was between mild/moderate at one point but with exercise and better control its back to mild yet I am having even better control and exercising better so hoping Dec 19th when I go back it will yield even better results. I know Dr. Sharuk and most of the docs there seem very good. Who is your endo? I have Wolpert and see Sue Ghiloni a lot. I might go visit Michael See or Jackie Shahar the exercise physiologists to better control my numbers with exercise.

Permalink Reply by Josh F on December 11, 2011 at 10:31pm

Ha I go to Wolpert too. I have since I was 18. I LOVE him. LIke I will give my first born "Wolpert" as a middle name sort of love. He calls me sometimes just to check in, and always has the benevolent wisdom of some crazy Kung Fu Endo.

I always feel better about myself when I talk to him.

I don't have any other people I see, but I know I should have a NP. I think I have gone to Sue in the past.

I go twice a year too Beetham. Only since it went to moderate. Cotton wool spots bother the hell out of me because I can see every one. Sharuk says I notice stuff most patients ignore. I highly doubt that. ;-) We seem to live similar D lives. I am going to see Wolpert on the 21st actually. Which I guess is the day the Mayan end times Calender day. So that's cool.

Murtha always interested me. He the one with the ties right?

I think my goal is similar to yours a bit, I want to get my moderate level to a mild one if at all possible. I know later stages are not really "reversible" so I am working my ass off to do it.

Permalink Reply by Patrickmind on December 12, 2011 at 4:11pm

Consider taking Ecotrin at least temporarily. Its only 80 mg's and even taking it a few times a week might be of impact as it increases blood flow.. How is the exercise coming along?

Permalink Reply by Josh F on December 12, 2011 at 5:23pm

I take Lisinoprel, lipator, Pycenogel and loads of Lutin. Aspirin is something I have considered as well.

Exercise wise it has been hard being here in Vietnam, but I lift every other day and plan to do my kung fu when I come back on a three day week basis. Baby steps.

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