Diabetics With Eye Problems


Diabetics With Eye Problems

If you have diabetes and have had eye complications or you are legally blind as a result of diabetes, join this group.

Website: http://www.tudiabetes.org/notes/Diabetes_and_Your_Eyes
Members: 213
Latest Activity: on Wednesday

Diabetes Forum

Experience with a vitrectomy?

Started by thisisbs. Last reply by thisisbs Jun 30. 22 Replies


Started by Maarja. Last reply by Siri Jun 20. 15 Replies

Blindness and pain

Started by michele0130. Last reply by Cinderfella May 14. 1 Reply


Started by Maarja. Last reply by David (dns) Apr 24. 1 Reply


Started by Maarja Apr 24. 0 Replies

Those who have had laser for PDR

Started by Elizabeth. Last reply by Ingřid Glass Apr 23. 26 Replies

Lucentis and Floaters?

Started by Leata Nov 4, 2013. 0 Replies

Comment Wall


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Comment by amanda02 on May 31, 2013 at 6:26am

I apolgize for the broken links. Basically,a number of cases of blindness occurred among people being treated with Avastin by the Veterans Administration in 2011. The problem seemed to be that the Avastin had to be broken into smaller doses than it was sent by the manufacturer and therefore required additonal handling which resulted in occasional contamination. The people treated with the contaminated Avastin were made completely blind in the treated eyes.
Lucendis is a slightly different formulation of the same drug. The manufacturer received FDA approval for its use with Macula Edema in August 2012, and the manufacturer claims to have reformulated it specifically for the new use. The molecules are smaller than those in Avastin. I can say from having had both, that my eyes tolerated the Lucendis better and i saw dramatically more improvement.

Comment by Anu Marjaana on May 31, 2013 at 6:09am

Can't open the links, but sounds scary. In my case Avastin helped, but that was a few years ago and there might be better options today. I can also confirm, that the injections are really not that bad as they sound, could not feel any pain.
Miss Robbie: You asked about working. Unfortunately I lost my job during the vision loss, I was simply not able to work. After my vision recovered, I have luckily found other work. Really wishing you strenght and I hope you will be able to work soon again! Computers' own magnifying screen function helps already a lot.
Brigitte: My laser, Avastin and vitrectomy treatments were in the Netherlands. Strenght to you as well!
And of course to all of you guys, xxx

Comment by amanda02 on May 31, 2013 at 4:30am
Comment by amanda02 on May 31, 2013 at 4:28am

Comment by amanda02 on May 31, 2013 at 4:26am

Here is another article about Avastin causing blindness:

Comment by Terrie on May 30, 2013 at 3:56pm
Comment by Terrie on May 30, 2013 at 3:55pm

I'd heard mention of this about a month ago on the news but I would presume that they have taken care of getting rid of the offending Avastin/syringes.

Sorry Linda but I haven't heard of corneal dystrophy.

Comment by Linda G on May 30, 2013 at 12:12pm

I know this is a different issue....but does anyone know about corneal dystrophy?

Comment by Leata on May 30, 2013 at 11:22am

Whoops! Blank comment.
Anyway, I want to echo Amanda's comment: the shots aren't nearly as scary as they sound. The prep is actually more unpleasant, to me. And the gadget they use to hold your eye open. The shot itself is so, so quick and really just a tiny sting (this is Lucentis, not sure about Avastin). My understanding is that if you can treat edema with medication rather than laser, you want to do it, because with laser there is potential for lost peripheral vision.

Comment by Leata on May 30, 2013 at 11:20am


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From the Diabetes Hands Foundation blog...

#MasterLab through the eyes of the community

  The Diabetes Hands Foundation would like to thank everyone for attending the diabetes advocates MasterLab on July 2nd 2014. MasterLab was about building a sense of what is possible and designed to give advocates a chance to learn from veteran Read on! →

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

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