Diabetics with kidney problems

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Diabetics with kidney problems

If you are having problems with kidneys due to our diabetes, this is the group for you. Let us exchange tips on how to manage urea and kreatinine levels and how to cope with diet regimes.

Members: 87
Latest Activity: on Monday

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Comment by Chris Ullger on Monday

@ Natalie
Not sure which post your talking about?

Comment by Natalie ._c- on Sunday

So, Chris Ullger, look at the post below yours, and tell me whether you know about eGFRs and whether they can recover, and please respond to the post in general! Thanks!

Comment by Chris Ullger on Sunday

Hi all..
I've been a T1D for almost 20 years now, been on Dialysis now for almost 6 years. Been on the transplant list since I first got on Dialysis back in March 2009. I have done as much reading, research, learning from first hand experience every day I go to Dialysis. I go 3 days a week and am on the machine for 3 1/2 hours. My Clearances are in target range or better than target range. I just started using an Insulin Pump "Accu Chek Combo" my A1c was always in the upper 9's up until 6 months ago when I got back on a pump. I also have Gastroparesis so managing my T1D has been tough.
Anyhow if anyone needs any help, has questions etc I am here, I don't claim to be a MD or expert in any health field but I've been through more than my fair share to know a thing or twi :)

Comment by Natalie ._c- on Sunday

Well, I really hadn't been feeling well for 2 months, and my legs were swollen up like sausages, and I felt feverish, and and fatigued, so in October, I made an appt. with my APN, and she decided to do some tests. There were abnormalities in my lungs, which concerns me, so she's sending me to a pulmonologist, but that's not enough. For the first time ever, my eGFR was 45 (when it's always been in the 70s or so) and my creatinine was 1.25 when top of range is 1.0, and mine has always been in the 0.70 - 0.85 range.
SHOCK!!!!!!!!

So she sent me to a nephrologist (I'm tired of seeing so many -ologists), and he said I HAVE stage 3 (exact borderline between 3a and 3b)kidney disease. No if, and, or maybe. No we'll watch and retest in 3 months. So what I want to know is whether a person's kidneys can bounce back from that level. It seems like a sudden drop to me, and I wonder whether it could be a temporary result of a viral infection or something, because I'm actually feeling better now. Perfect, no, but pretty well functional, and able to take care of the things I need to do.

So what do I do now? Can I hope that this is just a temporary thing, and I'll get back to normal, or do I need to start figuring out how to cope with the things I'm going to need to do. Diet is the worst, because I have an eating disorder, and coping with that is hard enough. At least I have a good dietitian, but I am by no means recovered from the eating disorder.

So if you have any wise advice, or just some good words, I'd appreciate it.

Comment by Linda G on March 27, 2014 at 4:11am

Hugs Jen....All this sounds very much like depression to me...at the stage where he really doesn't care anymore (not helping out has to do with being drained and being depressed). He is likely doubting the reason to go on. The state of depression is amplified by forever feeling tired. It's a domino effect. I would indeed seek help....this is too much for you alone.

Comment by Jonah on March 26, 2014 at 7:57pm

Only 20% of people on dialysis have jobs. Not that they lose them when they go on dialysis; only 20% have jobs at the time they start dialysis.

Kidney failure is almost always exhausting, and diabetic kidney failure is usually accompanied by fairly severe and hard to treat anemia, which makes it more exhausting.

I don't think you have the obligation to take care of him (in a medical way) unless you made a promise that you would. I do think that it's not reasonable to expect him to be helping out around the house.

If it's at all possible, I would suggest you use the money that he makes working to get somebody to help around the house. Or talk to him about what the priorities are, given that he has maybe 35 hours' worth of energy per week.

I think that the two of you have to decide how your marriage works. I certainly would not be willing to put in a lot of effort to sustain the health of a person who shows little willingness to do any part of the job himself.

I would suspect that he's dealing with depression and is avoiding checking his blood sugar and so forth because he doesn't want to face what's going on, doesn't want to think about it at all, and maybe also because he knows you'll do it. Being exhausted probably doesn't help.

Possibly psychiatric help would be in order.

Comment by Jen on March 26, 2014 at 7:19pm
I feel like I am his nurse. I already have six kids to take care of, one who is a type I and my own diabetes. Since all this started all he does is sleep. Well, he goes to work too. About 32 hrs. He sleeps until 12:30-1 and then gets ready for work. He leaves for work at 1:30. He comes home at 10:30. And is back in bed by 11:30- 12. If he isn't working he sleeps until 4-5pm. And goes to bed at 10:00. Right now I have empty dialysis boxes piled up in our bedroon. Full pee bags in my bedroom, bathroom and laundryroom. I have been finding his dialysis garbage everywhere! He is supposed to get on a transplant list, but he had to do some follow up tests. That was two or three weeks ago. And he still has not made the appointments. He is supposed to sign up for extra insurance too, but that is not done either. He has given all the bill paying, medical insurance stuff to me.
He does nothing to help in the house. Worse, he leaves his dirty dishes and clothes everywhere. My 9year old has taken over hauling the garbage. I am alone with taking care of the kids.
I am just wondering, is this part of dialysis? Does everyone get so tired that they cease to function? Am I just lucky he still goes to work?
At the transplant appointment the finacial advisor said maybe he should go on disability and I work to support him and his transplant drugs. The job he has now he has had for three years this month. Other than that it was me supporting the family. And it wasn't working. I would come home to a messy house, kids still up at 10:30. Later I found out he would just drive around with kids in the car. Or he would go visit or fishing and make kids wait in car. I can't go back to that.
How do you feel on dialysis? Can you work?
I had to set up his machine tonight because he isn't feeling well. I know he will just not do it if I don't get it ready. I want to say screw it. Let him get sick. Those on dialysis, is it right for me to give it all to him? When he gets sick because he didn't check his sugars all day do I have to nurse him back to health? I know it sounds mean, and thats what I want to know, am I being selfish? Is this just part of a s***** marriage and a chronic disease? If he dies on one of his episodes are not I to blame too for not pushing his medicine? I believe he would have died the other week and today too. He just sleeps, through severe highs and lows. What do you feel your spouses obligations are in your treatment?
Comment by Cora on March 26, 2014 at 6:06pm

Hi Jen. I was on hemo, not pd but do know a lot about it, as I had several friends on it. Could you tell us what you are frustrated about? Diabetes is hard enough and then to add dialysis is pretty tough. And the dialysate can affect blood sugars too, making things harder.

Comment by Jen on March 26, 2014 at 11:58am
Hi. I am looking for someone to talk to who is in dialysis to get an idea on what is going on with my husband. He just started dialysis a few months ago. He started ccpd? this past month. He has had diabetes for 25 years. I am so frustrated with him!
Comment by Baby Tee on May 1, 2013 at 9:30pm

Welcome Sivaram. Sorry we couldn't meet under better circumstances. I tell people (friends and collegues) that I am a chemistry experiment, so I don't give dietary advice, so I am sympathetic.

For best kidney function / protection, do the following:
1. Keep your A1c below 6.5 (some people say 6, but my neuropathy disappeared at 6.5)
2. Keep your blood pressure within normal range.
3. Keep your sodium content below 1500 mg/day. Verifying this involves getting a scale.
4. Avoid NSAIDS and other drugs that are known to damage kidneys. Whenever I am prescribed a new pill, I ask my doc if it is likely to damage my kidneys.

You have to be patient. My kidney function, retinopathy, gastroparesis, nephrophathy and neuropathy have improved or resolved with about 2 years of an A1c between 6 and 6.8, so 6 is better, but 7 is also really good. I still have problems with my feet, but I am hopeful.

I am type 1, so I think it might be easier for me to keep my blood sugars level, because type 2's sometimes create irregular amounts of insulin, and I think that would be tricky.

 

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