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Comment by Lisa on November 11, 2010 at 4:25am

I just happened to read in my chart 2 days ago that I have stage 3 chronic kidney disease and no one told me. I'm kinda in shock and could use a good word. My GFR is about 59.

Comment by Chaplain ET on August 18, 2010 at 4:15pm

Just had my SECOND appointment with my nephrologist, and he told us that he's re-evaluated things, and it looks as if I'm between 2nd and 3rd stage of Chronic Kidney Disease! That makes me feel a LITTLE BETTER. My BG is higher, in the 160 range, but my doctor doesn't seem to be too worried. So I guess I'm good for another few months, eh?

Comment by Scott on May 24, 2010 at 9:31pm

ET, I so sorry to hear of your health issues. All I can recommend, from my limited knowledge, is to do the best you can with today.

You are not alone, talk to us when you are ready

Comment by Chaplain ET on May 22, 2010 at 8:29pm

Hi, I'm E.T., or Everett. (I used to be called Chaplain ET, and the nickname stuck!) Two weeks ago, I was diagnosed by a nephrologist, as being Stage 3 Chronic Kidney Disease (not Diabetes related). However, the reading I've been doing, has got me really scared about my future, and like someone else, I'm tired of getting something new wrong with my body, everytime I see the doctor! I've lost 1/3 of my lungs due to Chronic Necrotizing Pneumonia, and I'm at the point where I'm wondering, what's next? Anybody have any advice at this point? Thanks, ET.

Comment by Jonah on February 28, 2010 at 3:29pm

I've had hyperfiltration for the last two years- my kidneys are hyperactive and my serum creatinine and BUN are low. I am wondering if this has anything to do with me getting stomach aches after I drink water. I am also wondering/afraid of what the future holds. I developed hyperfiltration less than two years post dx.

Comment by Lester Wetzel III on January 8, 2010 at 10:32am

Donna,

I was diagnosed with ESRD in May 2009 and started dialysis at the same time. It has been a challenge to stay positive about things but I just take one day at a time. As for home dialysis in the US, it exists but is not the predominant mode of dialysis here, but is growing. I actually hope to switch to HHD or PD in the near future. I can certainly understand your fright over the situation. I sometimes wonder why this happened to me. The doctor tells me that the chronic issue had not progressed much at the time of the failure and that I appear to have had an allergic reaction to something back in May. She is still not sure what exactly caused the acute issue. If I can answer any questions you have please feel free to ask. I'll try to answer as best I can. Goos luck to you in the future.

Comment by Donna Fletcher on January 8, 2010 at 9:41am

Hi Guys and Gals

I was told 8 years ago that I was in the very early stages of proteinurea. My BP has always been fine if not low but I have struggled with my bg for the last 30 years. I have had all kinds of problems but my biggest is now the kidneys.
I was told in March 2009 that I had about 12 - 18 months before I would need dialysis but when I went to clinic in Dec 09 he repeated the same thing so I'm holding out for a while I guess. I just don't know what to expect when I do start dialysis? I'm hoping to be able to do it at home (don't know if you guys in America have that option?) as I want to lead as normal a life as possible. I try not to make a big deal of it in front of my friends and family (that know) but I am constantly thinking about it.
I'm trying to be positive about it as I have been told that once I am on the transplant list, they will put me down for a double transplant and give me a new pancreas at the same time due to the other problems I have had / got, but the reality is I'm am frightened.
Thank you to all you guys for being so honest about it because it reassures me that I am not alone.

Comment by Mary Fitch on July 23, 2009 at 12:12pm

Hey there....anyone out there?????? New here & really need a hug right now. Am not accepting this latest Stage 3 CKD easily. I don't mean to seem like a baby but I'm tired of being the consmuate diabetic complication collector. I also "suffer from" (& i intensely dislike that expression btw)....hyperkelimia (sp) so I have trouble balancing my diabetic dietary restrictions with my new kidney kind requirements.Anyone else have this problem.?????
Thank you in advance.

Comment by joy de leon on May 13, 2009 at 9:54pm

hello im joy and type 2 diabetic pilipina , last march i was hospitalized and diagnosed with kidney stone 13mm im taking acalka and dupastalin , buscopan for gastropathy. due to hardship in our finanacial i cant sustain my medicines same with my daughter with type 1 diabetic. But i know GOD is very GOOD....

Comment by Debe on November 20, 2008 at 6:20pm

Sandy,

I did night time dialysis which was mainly an 8 hr shift. I did 5 hrs 3 nights a week.
When you least expect it , it will come. My crew sat on for 3 yrs and eventualyy 9 of us have had transplants since 2006. Debe

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