Diabetics with kidney problems

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Diabetics with kidney problems

If you are having problems with kidneys due to our diabetes, this is the group for you. Let us exchange tips on how to manage urea and kreatinine levels and how to cope with diet regimes.

Members: 88
Latest Activity: on Tuesday

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Comment by Cora on April 4, 2012 at 1:12pm

Hi there Sparky. What type of dialysis are you going to do. Both forms (hemodialysis and peritoneal dialysis) require some "plumbing". Here is the good news for you. Nothing is ever going to be as bad or as scary as you think it's going to be. It won't always be a barrel of laughs, but you will come out the other side, sigh deeply, and say "that sucked, but I could do it again if I had to". Are you also being worked up for transplant? I was on hemo for a year, tried pd (would have preferred it but couldn't do it due to female plumbing problems) and then had my transplant almost 10 years ago. Ask all the questions you want. I've probably been there, done that, and bought the tshirt.

Comment by brokenpole on April 4, 2012 at 9:57am

Hello folks, well this day has been coming for a while now. So it's time to look to others to get questions answered.

I saw my endo yesterday and my BUN and creatinine were both way out of spec high. One was 9.0 and the other was 97 (I never can remember which is which).

I am supposed to be seeing a surgeon next week to get the plumbing all setup. My wife is the one who is going to need a someone to talk to about diet and her own feelings. She is on Tu and I will try and get her to join this group.

Tu has been so much help for me with my diabetes. Now I just look for help for this latest problem.

Sparky

Comment by missrobbie on January 26, 2012 at 4:15am

Thank Jonah.

Comment by Jonah on January 25, 2012 at 6:34pm

Your kidney disease can certainly still be in early stages; kidney disease doesn't always progress, even with poor control. You're still in early stages. At this rate (and it doesn't have to progress evenly or at all), if you already had kidney disease, it's progressing so slowly it'll probably never kill you.

About three years ago I got some test results that were almost the same as what you've got. It was only two years after I was diagnosed with diabetes, my control was as good as I could get it (in the 6s) and I freaked out! All my anxiety about diabetes and about everything just came together and I felt like I was just waiting to die. Fog is a good word for how I felt. It was worse than when I was diagnosed with diabetes. That year I had a whole bunch more health diagnoses, and finally I got myself into therapy. I probably should have done that first.

My follow up bloodwork and 24 hour creatinine were better, almost normal. Since then my urine tests have been very dramatically abnormal when I've been very sick with other stuff (when I had gallstone pancreatitis, my urine protein was the highest they measure), and totally normal the rest of the time. My blood creatitine is always abnormal but it's been exactly the same for the last few years; no progress. My endocrinologist says that he's not even convinced that it's diabetes that's making my kidney stuff abnormal but that it's close enough to normal that I don't need to see a nephrologist at this point.

Comment by missrobbie on January 25, 2012 at 5:17pm

I left out something and that's why I am very worried . In 1999, I was told i had kidney damage but I wasn't treated for the disease because it was in the beginning stages. Fast forward 13 years later, I final have health insurance again to see a doctor and I know my kidneys can't still be in a the early stages after 13 years of uncontrolled diabetes.

Comment by Cora on January 25, 2012 at 4:33pm

Miss Robbie, I'm going to sound harsh here, but I mean it in the nicest way. Don't be ridiculous. You are not going to die. Your levels are almost normal. My creatinine was over 10 before I went on dialysis and that took over 20 years for me to get there. With the advent of modern drugs and treatments it is entirely possible that things may not progress for you at all. Things are very positive for folks in the earliest of stages (things are barely noticeable from your labwork). Talk to the doc. You may be put on an ACE inhibitor which is a drug that can help protect your kidneys. Best of luck.

Comment by missrobbie on January 25, 2012 at 4:20pm

Jonah, I'm in a fog right now over my kidney test results. My mind is thinking about how to say goodbye to my family,boyfriend and friends.

Comment by Jonah on January 25, 2012 at 8:19am

Miss Robbie- those numbers are only slightly abnormal. It probably means you have kidney disease but most diabetics with kidney disease don't get kidney failure. Also, according to your page, your A1c over the summer was way higher than it is now. If you can keep it down, it sounds like your kidney disease is early enough that it might be reversible.

Comment by missrobbie on January 24, 2012 at 9:14pm

Am I going to die? I got my test result and now I have to see my doctor to find out about my kidney.
My CREATININE 0.7 (low), Random Urine Creatinine 159.7(high), Random Urine Microalbumine 42(high) and Albumin to Creatinine Ratio 27.

Comment by Cora on October 30, 2011 at 4:03pm
Andrea - I only took my bp meds on non-dialysis days. I didn't need them on the days I was on the machine. I would have preferred pd as the diet is much less restrictive. Glad you feel better.

Todd - lisinopril is the gold standard in patient care. It has been shown to slow, or even in some cases, stop the progression of kidney disease. I was one of the very early adopters of an ace inhibitor in the 80s whe they first started using them, and it took mroe than 20 years for me to progress to dialysis. I would definitely see the nephrologist, They will be able to give excellent diet tips as they are used to diabetic patients.
 

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