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Comment by Baby Tee on May 1, 2013 at 9:30pm

Welcome Sivaram. Sorry we couldn't meet under better circumstances. I tell people (friends and collegues) that I am a chemistry experiment, so I don't give dietary advice, so I am sympathetic.

For best kidney function / protection, do the following:
1. Keep your A1c below 6.5 (some people say 6, but my neuropathy disappeared at 6.5)
2. Keep your blood pressure within normal range.
3. Keep your sodium content below 1500 mg/day. Verifying this involves getting a scale.
4. Avoid NSAIDS and other drugs that are known to damage kidneys. Whenever I am prescribed a new pill, I ask my doc if it is likely to damage my kidneys.

You have to be patient. My kidney function, retinopathy, gastroparesis, nephrophathy and neuropathy have improved or resolved with about 2 years of an A1c between 6 and 6.8, so 6 is better, but 7 is also really good. I still have problems with my feet, but I am hopeful.

I am type 1, so I think it might be easier for me to keep my blood sugars level, because type 2's sometimes create irregular amounts of insulin, and I think that would be tricky.

Comment by sivaram on May 1, 2013 at 1:20am

Good morning every body. I am new to this group and tudiabetes. I am suffering with BP and Diabetes and its associated problems. I am worring that i may get Diabeti nephropathy. For my neck pain and body pais i use Pain killers. I can not avoid using pain killers because i have to go to office regularly. Already I am suffering with Diabetic Neuropathy. I came to this group to get an idea about how to solve this problem. Thanks

Comment by Reese on April 19, 2013 at 7:50pm

A friend sent me this link and I thought maybe it may be helpful to others as well

http://blog.medicaremadeclear.com/blog/bid/114576/Medicare-Covers-M...

Comment by brokenpole on January 11, 2013 at 1:47pm

Something is wrong with the plumbing. I saw the surgeon today and they are going to have to do a fistulagram to take a look at my access and try to figure out why it is not maturing as expected. Could be a blockage...a kink...branching...whatever it is they plan on fixing it. So next Friday I go to the hospital to let'em have at me. Keep y'all updated. Sparky.

Comment by Cora on July 2, 2012 at 7:54am

Sharon, I would consider the transplant. At the very least consider getting the work up done. It can take a while and you will then know of how well you are doing physically. The differences in life expectancy between transplant and dialysis are phenomenal. There is simply no comparison. Don't overestimate the effects of the drugs. Most of us have minimal side effects. It's funny, my cousin is an O and I am an A and I have now had my kidney from her for almost 10 years. I had a biopsy of the kidney recently and it looks very good. Minimal changes over the years. Yay!

Comment by smokinbeaver on July 1, 2012 at 3:13pm

I've thought seriously of giving Sparky one of my kidneys. I am 0 neg, he is A neg, so its possible. His other health issues make us think again. Its not that its not worth it, its just that with the anti rejection drugs, and his having diabetes, healing takes longer and he just could live longer having hemodialysis with all the inconvenience and problems that go with that. Its a gamble whether it would work and whether it could shorten his life span in the long run. Organs eventually fail with transplant, nothing is a given, and its not a cure, just a way of buying time. Love my baby emmensely, and I would do it if it meant a complete cure.

Sharon

Comment by brokenpole on June 30, 2012 at 2:42pm

My wife and I have discussed the topic of transplant and, at least for right now, I am going to stay on in-center hemo. With all of my other medical problems I just don't want to get a kidney just to have it fail. Not that I am old, I am only 58, but I think it better is someone in better health and maybe younger get the kidney.

Comment by Cora on June 30, 2012 at 12:53pm

You will find, especially once you get more experience, that the dialysis nurses let you make most of the decisions. It's kind of scary, but the more you know about it, the better your treatment will be. It's not always fun, but definitely manageable. Are you on the list for transplant? I have had my kidney from my cousin for almost 10 years now.

Comment by brokenpole on June 28, 2012 at 12:59pm

Thanks Cora. They haven't done much adjusting to my treatment yet. They even let me pick how much fluid to take off since I am way under my listed dry weight (they have it at 155 kg and I am currently 144).

Still fighting the infection so we shall see how all of that goes.

Comment by Cora on June 28, 2012 at 8:07am

I am so glad you are starting to feel better. It often takes a bit of time to get the prescription right for dialysis. Once stabilized, you do feel better. Hope the infection clears.

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