Diabetics with kidney problems


Diabetics with kidney problems

If you are having problems with kidneys due to our diabetes, this is the group for you. Let us exchange tips on how to manage urea and kreatinine levels and how to cope with diet regimes.

Members: 92
Latest Activity: 17 hours ago

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Comment by angivan 17 hours ago

I want to talk about CKD more, too. I'm just Stage 2, but my endo is concerned and doesn't want it to get any worse. I've been eating low-sodium for about 6 months now, and it's been rough at best. 1500mg/day goes really fast! And trying to coordinate my needs with that of my husband, while still trying to maintain an active life has been challenging and depressing. I'm about ready to go back to my counselor for a tune-up. Not being able to enjoy food like I used to really has me down, and I'm having trouble finding things that pick me up. Natalie, it sounds like you are in good care at this point, but I understand there are so many questions. I appreciate that you're trying to find out everything you can.

Comment by Natalie ._c- on February 21, 2015 at 10:25pm

Thanks for your reply, Janice. I'm not even eligible for a transplant because of my age (going to be 67 on March 7), and it's not in the plans right now, because I'm not THAT far advanced. I do have a dietitian, but she isn't even recommending dietary changes right now, because so far, my electrolytes are OK, except low potassium because I'm on a diuretic, because I was retaining so much water. So I'm on a potassium supplement, and low-salt diet, but that's all. Which is good, because I have an eating disorder on top of it. If I progress to the point of needing dialysis, so be it, but I'm trying to find out all I can about it BEFORE anything like that happens. Same with diet, and electrolytes, and all the other things that go along with the territory. I don't know if there are symptoms of electrolyte imbalance, but I know you have to watch phosphorus, potassium, salt, and what else? Vitamins? I know the symptoms of low or high potassium and too much salt, but are there any symptoms when phosphorus gets out of whack? What were your indications of all this starting to happen? Did it progress rapidly? Did you have dialysis, or did you go straight to a transplant? Did you get a pancreas too? I would really like to hear your story!

Comment by Janice on February 21, 2015 at 9:54pm

I wish you well, Natalie. It's not an easy disease to live with. I wish I had talked to more people prior to getting my transplant, as there are no support groups for recipients where I live. Good luck with everything, and God bless. If you ever want to know about the immunosuppressives, or just the transplant itself, let's talk. Take care

Comment by Natalie ._c- on February 21, 2015 at 7:55pm

Janice, I appreciate your willingness to talk about it! I've just been diagnosed with what turned out to be stage 3b kidney disease since last fall. The kidney nurse is optimistic that it won't progress rapidly, but I don't know -- my eGFR and creatinine were NORMAL in June, and had deteriorated markedly by August. So I'm here and watching and reading, but I still just don't know what to make of it. And I certainly can't offer advice to anyone -- I still have to figure it out for myself! :-)

Comment by Linda G on February 21, 2015 at 8:57am

That's but 2 months ago Janice! Perhaps people are busy....perhaps they got the answers they wanted. Some members don't necessarily post a comment, but nevertheless READ the comments and take it from there!

Comment by Janice on February 20, 2015 at 11:08pm

I just realized that I'm the first one to respond to this post since December 10, 2014. Why is that? If people need to talk about kidney disease, let's talk about it. I feel like I've been silenced for so long, not only because of t1 diabetes, but because of kidney failure too. Why are people so reluctant to talk about it? It is a disease that needs to be discussed. When I had my kidney transplant, I knew nothing about the immunosuppressives I had to take after the surgery, what affects it would have on my body, plus the potential complications that could occur, including kidney rejection. Now that I've experience it all, I feel like I can englighten other people going through a similar experience.

Comment by Janice on February 20, 2015 at 4:01pm

I was diagnosed with T1 diabetes and hypothyroidism in 1993. Due to bad control for many years, I developed kidney disease and had a transplant four years ago. I was never on dialysis, but I probably should have been. I was extremely fortunate that my sister gave me one of her kidneys. The experience of finding a donor was horrid. I became extremely depressed and isolated myself. I dealt with the whole thing alone as nobody understood what I was going through. Stage 3 was bad for me because I wasn't on dialysis so I wasn't releasing any of the poisons in my body. I was also constipated and couldn't release urine, so I became very sick. I would suggest that if you are questioning dialysis, you shouldn't. T1s with kidney failure need dialysis and to take care of sugar levels. It could save your life and reduce the complications that could occur

Comment by sumit kumar on December 10, 2014 at 11:44pm
i i am new to this group and hoping to get the suggestion from member of this group .
suffering from preclinic diabetes since 2011 and i dont have any complications till now but from last two months i constantly feeling pain in my left kidney so dr suggeste me to do some test (gfr ,creatinine i dont know exactly) so today i am expecting my result so i just want to know what are the normal result ranges.and also feeling sever pain in my left shoulder and left but .
Comment by xtessa1x on November 10, 2014 at 12:28pm

What is kionex powder

Comment by Chris Ullger on October 19, 2014 at 5:29pm

@ Natalie
Not sure which post your talking about?


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