Comment

Comment by JDavid on October 8, 2012 at 5:48pm

Sorry to hear of your being sick, no fun.

Do you think your rebif is part of your high BG readings?

My numbers so far (knock on wood) been great.

Also, taken any steroids lately for MS Sx?

Those can drive your BGs really wacko

Comment by Bill D on October 8, 2012 at 4:19pm

I am still on insulin pump with Novlog as of 10/8/12 and have switched MS medication to REBIF in early Sepy 2012. It OK the side effects are diffcult but manageing. An MS nurse due a house on 10/09/12. Been sick for few days Bg at one point was 553 few days ago as of this moment is 158 7 day avg is 163 last A1c was 6.4 a month ago

Comment by Bill D on November 23, 2010 at 3:50pm

I hope everything been worked out between Aetna Speciality Pharmacy and the Chronic Disease Fund. They said I should receive my copaaxone by 11/30/2010
Now all I need to find out if I have enough Novol;og to last the balance of 2010. Did call Doctor office and he said he will hold some for me in case.

Comment by Bill D on October 30, 2010 at 6:44am

Thank you for all your help. I contacted SS and the CDF on 10/29. After some problems the CDF said I was approved for help in MAY 2010 I never knew. The ball is rolling now the next step it to get things stright with DR. Aetna, and the CDF I hope to have better news by the 10th of Nov. My 31 days Bg is 113 ms is holding

Comment by marti w on October 10, 2010 at 12:26pm

bill, if you are thinking of switching therapies, ask your doctor what he/she knows about assistance programs or call the manufacturers and see what options they have. i'd never advocate switching therapies just for cost, but it definitely happens. not all of them assist with medicare since it's government funding and there's a whole slew of red tape around providing help. i work for one of them and i can't say which one [legally, it's too much like advertising] but i know two of the therapies definitely provide assistance for people with medicare

Comment by Bill D on October 10, 2010 at 12:13pm

sorry about spelling

Comment by Bill D on October 10, 2010 at 12:12pm

Thanks marti w
I have tried NORD and the CDF and both turned me down. And the medicare low income assistance turned me down also. They said I make over 150% above povertie level and it seems like NORD and the CDF have close to the same standerds. It's getting to the point where I am going to call it quit's it seems that if you can work (pt) they are turning you down. I have called the NMSS office they took information sent me material that I mailed back and nothing. I know if i stip taking MS medication it will catch up with me. My parents has helped in past but but they ate in there late 70's and retired and don't have alot of money. Looking at price's Aetna sent me REBIF looks like the cheapest that I may be able to afford for a littlke bit. Even if I stop taking insulin for diabetis that will only hurt me even more.

Comment by marti w on October 10, 2010 at 9:02am

shared solutions doesn't help for medicare if i recall correctly [i have MS, i work for MS]
you may be able to get assistance through
NORD [national organization for rare disorders]
PANF [patient assistance network foundation] or
CDF [chronic disease fund]

have you asked the NMSS if they have any info on other programs that could help?
have you already tried the centers for medicare/medicaid services to see if you qualify for a low income subsidy on your copay?

Comment by Bill D on October 10, 2010 at 8:16am

Thanks for the advice I contactedd shared solutions back a few months ago they sent me the paper work that I filled out and they sent it turning me down. I have an HMO Aetna Medacare for insurance drug coverage and thats ok for the Movalog insulin in using for diabetis it just the Copaxone that is expensive. The wife quit her job and moved out of state and I was able to get on a COBRA program for a year befor I had to go to Medacare

Comment by JDavid on October 10, 2010 at 7:29am

Hi Bill........
Glad you found this group, but sorry to hear another double blessed diabetic.

Even if your wIFe divorced you, she still might be made to continue as a DEPENDENT on HER ins. IF you contact Shared Solutions, tell them you are TRYING to get some kind of ins etc, they MIGHT help you for maybe a year. The DMD drug companies do not want to loose a patient already on their drug. (Copaxone).

Without any ins, Copaxone is almost $3,200/30 days (box) at Walmart where I live. I get mine thru the VA with a $8/month co-apy. (I was in the Navy).

Good luck and DON't give up, KEEP TRYING!

Gomer

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