I just joined tudiabetes. I am a T2 mom with a newly diagnosed T1 9yo daughter. I have been following Bernstein with amazing success for myself before my dd's dx. So obviously, I went right to the insulin section of Dr. B's book and read it about 5 times through. On the way to the hospital, I told my daughter that I would always tell her the truth about what I know about Diabetes, and to take what everyone says with a grain of salt. Well, after they got her stabilized they put her on the hospital "diabetic diet"...aka no fat, little meat, and VERY HIGH carbs...sometime 90/meal. Needless to say I tried my best not to FREAK when they jacked her up on 10 units for one meal (she weighs 60 lbs!). And then predictably had to watch the crashing lows.....30-40!
We took her home and put her on the Dr. B. diet and walla.....great numbers and a happy, smiling, cheeseburger-eating (sans bun!) 9yo girl.
Yes, I am one of those DIY folks who is not afraid of figuring out stuff on my own (with Dr. Bernstein and others' materials). Also, my father is an Ophthalmologist and read Bernstein after dd's dx, and so I do have an MD relative for immediate advice. He encouraged me to follow Bernstein's regimen. DD is now on 3 daily units of Levemir and we have just switched her from Humulog for most of her meals to Regular with great success. She is even-stephen and feeling great.
We rejected our endo right off the bat for a number of reasons. The biggest was that the guy and is staff are extremely unfriendly and do not listen. There is the ADA way or the highway! (And he said that to us verbatim!) Well I guess he was shocked when we took the highway to find other providers and build our OWN team for our daughter.
We live in a rural state that only has ONE pediatric Endo. for DT1
We now have a GREAT team consisting of a family practice MD, an amazing Naturopath specializing in Diabetes, and a private Nutritionist who has DT1 herself. They are all in agreement with Bernstein!
Ok, here is the kicker......the Endo sent us a letter certified mail saying that he is REPORTING US TO DHHS FOR MEDICAL NEGLECT!
Hello? Has ANYONE heard of such a thing??
Any words of support would be appreciated.
Nunya was my response to his questioning who the doctors are because it isn't any of his business. Actually, that could be considered confidential medical info. I wasn't suggesting that should have been the response to his letter.
I would contact HSLDA right away and tell them what you are facing. They just might take this case in their hands or at least advise you what to do if and when.......
Praying for you. You are doing a terrific job with your daughter. Dont back down to this guy.
Thanks for the prayers!! We do have HSDLA on the case, and they advised us to write back with who her team is and politely say we are moving on. They think it is just CYA on their part.
I have been at this for four months....this is the first time in my homeschooling life that I can't wait to "just get back to homeschooling" in June! Well, at least they will all get credit for Nutrition Science + lab work!! LOL