Replies to This Discussion

Permalink Reply by ChristinaNadine on October 20, 2012 at 12:08pm

I haven't moved there yet... Moving in January...
When I was diagnosed I was in DKA and in a coma for 3 days... I was tested for Insulin production and for antibodies... At that time I had no Insulinproduction left and my antibodies where positive.. Which indicates a diagnosis of Type 1 Diabetes...

I don't think I've been misdiagnosed... but I believe I found a perfect way of managing MY diabetes...

Let me know which endo you are gonna go to and if you like him or her!!!

Currently I am not seeing a doctor at all... Starting to run low on supplies so I am gonna have to make a compromise soon and try to find another doc who will prescribe the things I need!

Permalink Reply by Super_sally on October 20, 2012 at 5:17pm

After my ex-endo (who I saw at the hospital yesterday when going to see the rheumatologist - that was an awkward conversation -

He: "How are you Sally? I haven't seen you for ages".
me: "I'm doing great! Yes, haven't seen you for more than 6 months!
He: "are you going to have another baby soon?".
Me: Umm.... Maybe not yet....". (That is one of the things I don't like about him - he seems obsessed with me getting my family finished).

Then I showed him pictures of my kids, and asked him about his. He said his kids have measles at the moment. I said I want mine to catch it too. He then asked me if I vaccinate. I said no. He said he also didn't give his kids MMR.. Interesting... off track. Sorry.

Anyway I found a great GP (we've agreed to disagree on the target A1c) and he is a really good guy to oversee everything for me - he pretty much lets me self manage and do what I know works (Diabetes and thyroid so far - hopefully not arthritis). But I discuss with him / he's my sounding board in case I miss anything / go off track - and he makes sure we do screenings / monitorings etc, as relevant). He will refer me if there's anything he can't handle/ is not comfortable with. Maybe you can find a GP or an internal med doc.

Don't know if I'll see my endo again. Maybe if it's something my GP can't handle - after all he does know my very long and complicated history....

Permalink Reply by Phishery on December 1, 2012 at 10:54am

I just left you a recommendation for a great endo in Denver--Dr. Claudia Panzer. I have a few I would steer very clear of as well.

Permalink Reply by Super_sally on October 19, 2012 at 6:44pm

Didn't she ask how much insulin you take? Which of couse, combined with diet, is why your a1c is so good.

I sacked my endo when he told me, when i finally saw him 2 months after my delivery (baby), that I could stop insulin - without asking to see my blood sugar monitoring or how much insulin I'd been taking "just do an ogtt and hba1c in 2 months and we'll see then if you're still diabetic".

My last a1c was 4.9. But it took about 18 units of insulin/day and low carb to get me there. My gp thinks 5.5 - 6 is a safer hba1c. But I don't have many lows (and always predictable), and only mild if ever, so I'll continue doing what works.

Permalink Reply by Judith on October 19, 2012 at 8:44pm

Lovely, Sally. Keep it up! Brava.....

Permalink Reply by breaddrink on October 20, 2012 at 2:36am

That is truly incredible.

Permalink Reply by ChristinaNadine on October 20, 2012 at 12:11pm

Exactly... I take about 30 units a day and don't get too many lows either... I just don't understand why these docs think it's so much safer to be at 6 ... when I can be at 4.9 or 5.2 and lead a perfectly normal and healthy life...

Permalink Reply by Hana Rous on October 20, 2012 at 6:00am

That's plain daft!
non diabetics with normal blood glucose levels often have A1c in the 4s. 5s implies imperfect blood glucose control at the very least. I've been in the 5s for several years and my doctor knows I'm diabetic. I'm T2 on diet and minimal medication. Icould probably manage without the medication, but certainly couldn't manage without the low carb diet.
If your doctor won't prescribe for you, can you change doctors? and in the meantime stick to the low carb like glue. You may not need a pump, but if you are a T1, you do need insulin. If you can keep BG numbers down without medication, you are probably not T1 if not, keep a log and take it to whoever is in charge of medical services in your region .
Hana
Hana

Permalink Reply by Dub1045 on November 13, 2012 at 1:21pm

Congrats on confirming what an increasing number of people are discovering, unfortunately most of us are not doctors....
good luck with your new Doctor..

Permalink Reply by RacheEH on November 14, 2012 at 12:20pm

Hey Christina,

I hope you're still checking this post! What's going on with you now?

I'm a Type 1 and haven't taken any insulin for 12 days, initially as an experiment but now I'm totally unsure where to go from here. Today my b/s readings have been 4.4, 5.1, 4.3, 4.6. These are great readings. But I still haven't taken any insulin, basal or bolus. It's not that I'm avoiding insulin any more for some reason, but my levels don't really warrant any, or am I missing something? Surely if I take a basal dose I will have a hypo. I rarely need bolus doses as eating VLC. Can you see my dilemma? I'm fully expecting my b/s levels to go up, but they haven't yet and so I don't know what to do.

Any ideas? Anyone?

Permalink Reply by David (dns) on November 14, 2012 at 12:29pm

I don't see how you can be Type 1 if you can go nearly two weeks without insulin and still have normal BG. Type 1 means that you have no natural insulin (or so close to none as makes no difference). That can't be the case if you can go this long and keep your BG down. What piece of this puzzle am I missing?

Permalink Reply by Capin101 on November 14, 2012 at 12:41pm

Please be careful and monitor your BG closely. I would be concerned that you may go into DKA quickly if something changes. The overall goal of any diabetic is to maintain (near) normal BG levels. If you can and choose to do that without insulin then that is fine by me. My two guesses would be you are either honeymooning and still producing some insulin or you have a rare type of diabetes like MODY (Maturity Onset Diabetes of the Young). Some rare forms of diabetes can seem like your insulin production starts and stops abruptly.

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