Families with Multiple Members with Type 1

Information

Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.

Members: 90
Latest Activity: Dec 3

Just to introduce myself my name is Tracy from Tulare, CA. A proud wife and mother. My Husband is a Type 1 diabetic ( dx @ 16 months )on the Omnipod since 6/2010 and both of my sons are also type 1. Michael age 8 dx 5/2008 on the Omnipod since 1/2009 and Owen is 6 dx with type 1 and hypothyrodism 7/2008 he is also on the Omnipod since 4/2010. He was also participating in TrailNet prior to dx where he was shown to be positive for the antibodies). I started this group to get to know other families that have multiple members with type 1.

If you have a partner or spouse with type 1 diabetes, check out the online program Just for Partners, offered by Behavioral Diabetes Institute.  It's free!

Diabetes Forum

Endo Appointments at the same time

Started by Jennifer. Last reply by Jennifer Dec 3. 4 Replies

DFF(Diabetes Friend Forever)

Started by Renata Pellino-Porter Feb 18, 2010. 0 Replies

Comment Wall

Comment

You need to be a member of Families with Multiple Members with Type 1 to add comments!

Comment by Emjaybee on April 27, 2013 at 11:03am

Kilij - thanks for the info on the dairy. I had no idea. I'll check that out! Regarding Trial Net, I'm not too sure, but I'm seeing a lot of people post about it. It looks like aliceclones also just posted on how they use it. aliceclones - thank you for the info on trial net. I will look into it. I'm sorry to hear that two of your kids and a nephew have it. My sister and I often comment on how we won the worst lotto ever too.

Comment by aliceclones on April 26, 2013 at 10:10pm

Hi Emjaybee! We were told that our other 2 children still only have a 5% chance of developing the disease. We look at is as having won the worst lotto ever! We are of scandinavian decent, so that puts you at higher risk. Our 2 non d kids are in trial net, aside from early detection (as much as 5 years prior to clinical threshold, which is a huge advantage in itself), trial net can also direct you to trials that can delay onset if you fit criteria. There are several very promising new trials out there, so getting in early can be life changing! Even if you are guarenteed a D child, i would still have them. My D girls are fabulous people! I wouldnt change them. Yes i wish i could cure them, but this disease has shaped who they are, not just for bad, but for lots of good too! Blessings on you and your husband! good luck!

Comment by Kilij on April 26, 2013 at 5:05pm

It's been recommended since I can remember to avoid feeding children cow's milk during infancy to help avoid the onset of type 1 diabetes. The American Academy of Pediatrics suggests avoiding cow's milk protein for the first several months of life to reduce the development of type 1 diabetes. http://pediatrics.aappublications.org/content/94/5/752 Here are a couple of abstracts suggesting cow's milk protein is an issue: http://www.ncbi.nlm.nih.gov/pubmed/11206413 and more recently, http://www.ncbi.nlm.nih.gov/pubmed/21067382. Sorry I can't seem to find where I put the studies in whole.

I've not done anything with Trial Net. What do they have to offer other than early detection?

Comment by Emjaybee on April 26, 2013 at 3:29pm

Thanks so much for sharing, Kilij. That's good to know. Is Dairy a trigger? I'm seeing a lot on this page about Trial Net. Do you know what that is? Do you recommend?

Comment by Kilij on April 26, 2013 at 1:54pm

Hi Emjaybee. I was diagnosed at age 3 and my younger sister was diagnosed at age 11. I also have no other siblings. My daughter, who will be five in a few days doesn't have it (yet) and neither does my nephew who just turned four. We do stay away from dairy though.

Comment by Emjaybee on April 26, 2013 at 1:44pm

Hi all, I have type 1 and my younger sister does too. We were both diagnosed at age 20. Our father had type 1 as well and he was diagnosed at age 6. We don't have any other siblings. My husband and I are considering starting a family and wanted to get a decent idea of the risks. Our genetic counselor told us it would be 15 - 20%. Reading through this thread, I just...don't know. It seems like once it's in your family - it's in. My sister has one son who at age 7 doesn't have it so far. Just sharing a story for now.

Comment by aliceclones on April 22, 2013 at 12:38pm

Hi my peeps! Well as i have previously posted, two of my little girls were dxd 3 years ago, with no previous family history. Just got a new dx today for my 18yo nephew. our family is reeling, again! This disease sucks!

Comment by Type one trio on February 26, 2013 at 8:01pm
Hi everyone,we are new members and just had our third child diagnosed.Now 3 t1.We had no history in either family and perfect health until five years ago when my wife began her battle with cancer. I wonder if the stress of that then the stress of diabetes has pushed us into this health downfall? The last child to be diagnosed just had major knee surgery to screw his femur bone back together only to be diagnosed a couple weeks out of surgery with t1. Any ideas? Kinda interesting I guess. Dr.says we are just very unlucky. We know God makes no mistakes.
Comment by Joey on February 7, 2013 at 6:51am

Hi Tracy and everyone else :) I am Joey, a new member of TuDiabetes from Montreal and I am the mother of 2 boys with T1D. Like Tracy, one of my boys, (the oldest, Raphael) was diagnosed as a result of his participation in TrialNet. My youngest, Hillel, was diagnosed at age 7 and it was 2 1/2 years later after many TrialNet blood tests that my oldest was diagnosed at age 17. We are currently trying to decide which pump to put Hillel on. Here in Quebec, the provincial government pays for the pump and supplies. We can chose among Animas, Medtronic and OmniPod. We are leaning towards OmniPod, but we know the Animas Ping would be good too. If anyone has any comments about those pumps, I would to hear them. I do note that Tracy's kids and husband are all on the OmniPod. I guess that speaks for itself! Thank you all, and I hope to not only get information from you but also to contribute in meaningful ways whenever I can.

Comment by Regge on December 1, 2012 at 5:19pm

Hey everyone! Quick intro!!! Mom to 4 great kids. I am Type 1 pumping with MM and 3 of my children are Type 1 and pumping with MM as well. Their cgms units will be here on Tuesday.

 

Members (90)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

DHF receives $200,000 grant from Novo Nordisk

Grant given to support programs aimed at bringing together people touched by diabetes for positive change BERKELEY, CA: December 4, 2014 – Diabetes Hands Foundation (DHF) has received a grant of US$200,000 from Novo Nordisk to support programs aimed at Read on! →

Guest Post: World Diabetes Day 2014 on Twitter… sifting through the data

At Symplur we track hashtags, keywords, user accounts, and pretty much anything else on Twitter that has to do with healthcare. We collect the data and then build countless ways to slice it up so that we’re able to better Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service