Families with Multiple Members with Type 1

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Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.

Members: 86
Latest Activity: May 16

Just to introduce myself my name is Tracy from Tulare, CA. A proud wife and mother. My Husband is a Type 1 diabetic ( dx @ 16 months )on the Omnipod since 6/2010 and both of my sons are also type 1. Michael age 8 dx 5/2008 on the Omnipod since 1/2009 and Owen is 6 dx with type 1 and hypothyrodism 7/2008 he is also on the Omnipod since 4/2010. He was also participating in TrailNet prior to dx where he was shown to be positive for the antibodies). I started this group to get to know other families that have multiple members with type 1.

If you have a partner or spouse with type 1 diabetes, check out the online program Just for Partners, offered by Behavioral Diabetes Institute.  It's free!

Diabetes Forum

DFF(Diabetes Friend Forever)

Started by Renata Pellino-Porter Feb 18, 2010. 0 Replies

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Comment by Kilij on April 26, 2013 at 1:54pm

Hi Emjaybee. I was diagnosed at age 3 and my younger sister was diagnosed at age 11. I also have no other siblings. My daughter, who will be five in a few days doesn't have it (yet) and neither does my nephew who just turned four. We do stay away from dairy though.

Comment by Emjaybee on April 26, 2013 at 1:44pm

Hi all, I have type 1 and my younger sister does too. We were both diagnosed at age 20. Our father had type 1 as well and he was diagnosed at age 6. We don't have any other siblings. My husband and I are considering starting a family and wanted to get a decent idea of the risks. Our genetic counselor told us it would be 15 - 20%. Reading through this thread, I just...don't know. It seems like once it's in your family - it's in. My sister has one son who at age 7 doesn't have it so far. Just sharing a story for now.

Comment by aliceclones on April 22, 2013 at 12:38pm

Hi my peeps! Well as i have previously posted, two of my little girls were dxd 3 years ago, with no previous family history. Just got a new dx today for my 18yo nephew. our family is reeling, again! This disease sucks!

Comment by Type one trio on February 26, 2013 at 8:01pm
Hi everyone,we are new members and just had our third child diagnosed.Now 3 t1.We had no history in either family and perfect health until five years ago when my wife began her battle with cancer. I wonder if the stress of that then the stress of diabetes has pushed us into this health downfall? The last child to be diagnosed just had major knee surgery to screw his femur bone back together only to be diagnosed a couple weeks out of surgery with t1. Any ideas? Kinda interesting I guess. Dr.says we are just very unlucky. We know God makes no mistakes.
Comment by Joey on February 7, 2013 at 6:51am

Hi Tracy and everyone else :) I am Joey, a new member of TuDiabetes from Montreal and I am the mother of 2 boys with T1D. Like Tracy, one of my boys, (the oldest, Raphael) was diagnosed as a result of his participation in TrialNet. My youngest, Hillel, was diagnosed at age 7 and it was 2 1/2 years later after many TrialNet blood tests that my oldest was diagnosed at age 17. We are currently trying to decide which pump to put Hillel on. Here in Quebec, the provincial government pays for the pump and supplies. We can chose among Animas, Medtronic and OmniPod. We are leaning towards OmniPod, but we know the Animas Ping would be good too. If anyone has any comments about those pumps, I would to hear them. I do note that Tracy's kids and husband are all on the OmniPod. I guess that speaks for itself! Thank you all, and I hope to not only get information from you but also to contribute in meaningful ways whenever I can.

Comment by Regge on December 1, 2012 at 5:19pm

Hey everyone! Quick intro!!! Mom to 4 great kids. I am Type 1 pumping with MM and 3 of my children are Type 1 and pumping with MM as well. Their cgms units will be here on Tuesday.

Comment by we3 on April 2, 2012 at 11:23am

hi, new member here :) - after being diagnosed T1D at 35 yrs old, the silent prayer that kept me going was "at least my kids don't have it"...3 years later 2 of my 3 children were diagnosed T1D - 1 day apart :(

Comment by Mrs Stone on March 19, 2012 at 9:47am

Thanks Colleen - I agree there are many things that would be a lot more difficult, I just wonder about the guilt I'd project if I did pass it along; but that's something I'll deal with IF it happens. I have a brother with down syndrome and it's true, each challenge brings a different set of circumstances. Facing the known is easier because you are more prepared. I appreciate your encouragement and support. I'm loving TuDiabetes.

Comment by Colleen on March 17, 2012 at 5:28pm

Angela,

Great words of advice from Jonna. I subscribe to the "what's the worst that could happen? And if that happened, what would you do?" camp. The worst that could happen is you have a child who is eventually diagnosed with Type 1 Diabetes. As a responsible parent you would make sure your child was tested ahead of time through TrialNet so you would know if they are going to get it. If they tested positive you would then have them tested regularly to detect it as soon as it happens (this is what we did with my daughter so she never even developed symptoms and felt sick). Then, when they are diagnosed with diabetes you would know what to do because you have it and so do your siblings. Of course, we also hope progress will be made in treating (curing??) the disease by then so it will not be the same experience you had when your were diagnosed. There are a lot worse things out there to have (we have a son who has special needs - he had a bleed at birth and we later learned he had birth defects as well - he just turned 18 and is doing well with a lot of support). I would much rather face the enemy I know than the enemy I don't. (I'm sure some famous person Tweeted that before me, ha, ha). Let's get back to you. I am so awed by your A1C of 6.1!!!! You should be proud of what you have accomplished with the technology available today. You are the ideal patient and any ob/gyn would be happy to have you because you are so compliant and diligent. I applaud you and your husband because you are thinking ahead and trying to make the right moral decision. You will make excellent parents :) Good luck to you!

Comment by SamiiiG on March 16, 2012 at 2:23pm

My sister and I are type 1 - diagnosed on the same day in 1988. We're 17 months apart.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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