Families with Multiple Members with Type 1

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Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.

Members: 86
Latest Activity: May 16

Just to introduce myself my name is Tracy from Tulare, CA. A proud wife and mother. My Husband is a Type 1 diabetic ( dx @ 16 months )on the Omnipod since 6/2010 and both of my sons are also type 1. Michael age 8 dx 5/2008 on the Omnipod since 1/2009 and Owen is 6 dx with type 1 and hypothyrodism 7/2008 he is also on the Omnipod since 4/2010. He was also participating in TrailNet prior to dx where he was shown to be positive for the antibodies). I started this group to get to know other families that have multiple members with type 1.

If you have a partner or spouse with type 1 diabetes, check out the online program Just for Partners, offered by Behavioral Diabetes Institute.  It's free!

Diabetes Forum

DFF(Diabetes Friend Forever)

Started by Renata Pellino-Porter Feb 18, 2010. 0 Replies

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Comment by Dani on July 11, 2011 at 11:27am
Hi, my name is Dani from Houston, TX. My daughter was dx'd with T1 at the age of 9 months (she is 20 now) and I was recently with T1 this year. I just received my TrialNet information so my 9 year old can be tested. I don't know anyone with T1 besides the two of us, so I am so glad to have found this group!
Comment by shirleyanne on June 23, 2011 at 9:27am
I posted earlier that we were waiting for my son Max's TrialNet results .... thankfully he tested negative again (4th test, had his 1st at 12 months). His brother Nicholas was dX in 2006 and I was dX in 1986. The incidences of multiple family members developing T1 is really shocking .... I believe it should be researched more thoroughly (which TrialNet is attempting to do) ... I have 2 sisters and 6 nieces and nephews and none of them are T1. Really hoping the link ends in our family and my youngest son Max escapes this lifelong burden.
Comment by Jacky on June 22, 2011 at 8:03pm
Hi. Just a quick question.I have type 1 running throughyself, my 2 girls, and my mom. We were all D'xed at less than 12 months old. I have my sister in law and her family living with us until they find jobs and get settled I to our area. And I'm afraid that one of her kids will end up with D. I know d is not co taigious, or can be passed on in any type of contact way, you need to be unlucky enough to have the correct genetic makeup with some sort of environmental kicker

But I can't shake this fear. Anyone else experience this? Or am I just overwhelmed by the stress of two families in a one family household and letting my imagination run wild on one of my largest fears?
Comment by Caroline L on June 22, 2011 at 8:00pm
Hi - My husband was diagnosed at T1 in Sep 2008 at the age of 32, my son was dx in December of 2009 at the age of 5. We are waiting for our youngest daughter's (2 1/2) trialnet results - she's positive for the antibodies, and she just did her OGT test a few weeks ago.
Comment by tribalstew on June 22, 2011 at 4:14pm
My son was diagnosed in feb 2007 at age 8, i was diagnosed while deployed to Iraq in sep 2009 at age 36. lI am still in the Army just non-deployable now. I was adopted at age 7, so i don't know any of my families medical history.
Comment by Rob B on June 22, 2011 at 3:01pm
I was diagnosed 33 years ago at age 8. My younger Brother became a type 1 when he was 12 and my older Brother just became a type 1 last year at age 42. Neither of our parents are type 1 with hardly any family history of diabetes. None of my 3 or my Brothers 4 kids are diabetics.
Comment by dbaer on June 13, 2011 at 8:09pm
Type 1 diabetics outnumbered non-diabetics 3/1 in my house growing up. My brother, myself, and my father were all type 1. This is now affecting me and my wife's decision to have children. We don't want the gene to go any further. My fathers uncle was also a type 1. My brother and I are the only two still alive. Both my father and my uncle died in hypoglycemic related incidents.
Comment by shirleyanne on May 7, 2011 at 5:34pm
It's May and we're still waiting for my 2nd son's TrialNet's results .... this will be the 4th year he's testing ... I hate this wait ... hopefully he'll be negative again .... big brother Nicholas ws dX 2006 and mom Shirley was dX 1986. Hoping the Type 1 link ends there and brother Max will never develop T1.
Comment by type1twinsmom on April 7, 2011 at 8:29pm
Comment by marley21 on March 23, 2011 at 6:24am
Hi my name is Shelley. I have Type 1 and my 6 year old daughter was diagnosed with Type 1 almost a year ago. I have a 12 month old and hope she never gets this! So glad to have found this group!!
 

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From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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