Families with Multiple Members with Type 1

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Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.

Members: 87
Latest Activity: Aug 12

Just to introduce myself my name is Tracy from Tulare, CA. A proud wife and mother. My Husband is a Type 1 diabetic ( dx @ 16 months )on the Omnipod since 6/2010 and both of my sons are also type 1. Michael age 8 dx 5/2008 on the Omnipod since 1/2009 and Owen is 6 dx with type 1 and hypothyrodism 7/2008 he is also on the Omnipod since 4/2010. He was also participating in TrailNet prior to dx where he was shown to be positive for the antibodies). I started this group to get to know other families that have multiple members with type 1.

If you have a partner or spouse with type 1 diabetes, check out the online program Just for Partners, offered by Behavioral Diabetes Institute.  It's free!

Diabetes Forum

DFF(Diabetes Friend Forever)

Started by Renata Pellino-Porter Feb 18, 2010. 0 Replies

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Comment by marley21 on March 23, 2011 at 6:24am
Hi my name is Shelley. I have Type 1 and my 6 year old daughter was diagnosed with Type 1 almost a year ago. I have a 12 month old and hope she never gets this! So glad to have found this group!!
Comment by Amy on March 20, 2011 at 4:33pm
Hi, My name is Amy. I have two type 1 children. Kayla was dx 4/10 at 14 she is using a minimed pump currently and loving it. My 12 year old, Noah, was dx the day before his birthday this year on 1/31/11. His was found through antibody testing and impaired glucose tolerance with one or two numbers a week in the 200's after meals. He is not on insulin yet thankfully and hopefully won't be for awhile. Noah is very active and since the start of spring his numbers are near perfect again :) He plays about 4 to 5 hours a day in sports 3 to 4 times a week. Oddly enough we have even had to treat him for lows in the 50's. My third son has had fasting numbers elevated and pp numbers slightly elevated (170 range) but no antibody testing on him as of yet.. he has other health issues which is how we found the other numbers.
Comment by T1Student on March 18, 2011 at 6:18pm
My twin and I dx'ed at the age of six and her two yr old dx'ed 5 months ago! Busy diabetes household here we are all on the mini med revel and cgm.
Comment by missarachnid on March 18, 2011 at 5:36pm
Hi! I'm from Northwest Georgia. Both my little brother (dx 2008) and I (dx 1984) are type 1s. Its kind of weird, because he was adopted. My cousin has it and my grandma who passed away in the mid 80's had it.
Comment by shirleyanne on March 18, 2011 at 5:09pm
Hello! I'm from Delta, BC, Canada and both me (dx 1986) and my son (dx 2006) have Type 1.

http://diabetesx2.jigsy.com
Comment by Jonna on March 15, 2011 at 2:25pm
I'm so sorry to hear about your ER visit. I hope the girls are recovering and that you are all able to catch some sleep and keep BG in control. Hang in there!
Comment by type1twinsmom on March 15, 2011 at 11:27am
Thanks for your comment Jonna. We are going through a bout of sickness in the house now, the girls were both in the ER getting IV fluids until 3am this morning, so right now were just battling this...I will definately be interested in talking with you as the time gets closer to pumping :)
Comment by Jonna on March 15, 2011 at 5:57am
Hi Heather, I have two kids w/ Type 1 (ages 3 and 8 now). I've networked with a lot of other Type 1 parents and I met a woman who has twin boys who were diagnosed. I think they were around 2 when they were dx. They're both pumping now. I can ask her if she has any advice for you as far as starting the pump. I can tell you that both of my kids are on the Minimed. My daughter is on the Paradigm and my son is on the newest pump, the Revel. The Revel can administer the insulin in much smaller doses, so it was perfect for my son who started pumping when he was 2 1/2 yrs old. The Revel is also set up to work with a continuous glucose monitor. Overall, we're very happy with Medtronic. We initially wanted the Omnipod, but our insurance wouldn't cover it at the time. Feel free to e-mail me if you have specific ?? about the pump. Good luck!
Comment by type1twinsmom on March 14, 2011 at 8:38am
I should add that one of my sons (7) was tested for antibodies and so far he has none, thank God. My oldest son (half brother to my other children) is 14 and he also tested negative for antibodies but his bio father has type 1 dx at age 11.
Comment by type1twinsmom on March 14, 2011 at 8:30am
Hi everyone, my name is Heather and I am from Northern Wisconsin. I have identical twin girls who are both Type 1...they are both 6 years old. Molly was dx 7/2010 and Abbey dx 9/2010. Ever since the girls were diagnosed I have yet to find another family with type 1 twins. Anyone?
Also we are going to get the girls on pumps this summer, I wanted to know if anyone would suggest we do them at the same time or one at a time??? Also, we are considering Medtronic Minimed...thoughts/comments welcome! Thank you!
 

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From the Diabetes Hands Foundation blog...

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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