Families with Multiple Members with Type 1

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Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.

Members: 90
Latest Activity: on Tuesday

Just to introduce myself my name is Tracy from Tulare, CA. A proud wife and mother. My Husband is a Type 1 diabetic ( dx @ 16 months )on the Omnipod since 6/2010 and both of my sons are also type 1. Michael age 8 dx 5/2008 on the Omnipod since 1/2009 and Owen is 6 dx with type 1 and hypothyrodism 7/2008 he is also on the Omnipod since 4/2010. He was also participating in TrailNet prior to dx where he was shown to be positive for the antibodies). I started this group to get to know other families that have multiple members with type 1.

If you have a partner or spouse with type 1 diabetes, check out the online program Just for Partners, offered by Behavioral Diabetes Institute.  It's free!

Diabetes Forum

DFF(Diabetes Friend Forever)

Started by Renata Pellino-Porter Feb 18, 2010. 0 Replies

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Comment by Jonna on March 15, 2011 at 5:57am
Hi Heather, I have two kids w/ Type 1 (ages 3 and 8 now). I've networked with a lot of other Type 1 parents and I met a woman who has twin boys who were diagnosed. I think they were around 2 when they were dx. They're both pumping now. I can ask her if she has any advice for you as far as starting the pump. I can tell you that both of my kids are on the Minimed. My daughter is on the Paradigm and my son is on the newest pump, the Revel. The Revel can administer the insulin in much smaller doses, so it was perfect for my son who started pumping when he was 2 1/2 yrs old. The Revel is also set up to work with a continuous glucose monitor. Overall, we're very happy with Medtronic. We initially wanted the Omnipod, but our insurance wouldn't cover it at the time. Feel free to e-mail me if you have specific ?? about the pump. Good luck!
Comment by type1twinsmom on March 14, 2011 at 8:38am
I should add that one of my sons (7) was tested for antibodies and so far he has none, thank God. My oldest son (half brother to my other children) is 14 and he also tested negative for antibodies but his bio father has type 1 dx at age 11.
Comment by type1twinsmom on March 14, 2011 at 8:30am
Hi everyone, my name is Heather and I am from Northern Wisconsin. I have identical twin girls who are both Type 1...they are both 6 years old. Molly was dx 7/2010 and Abbey dx 9/2010. Ever since the girls were diagnosed I have yet to find another family with type 1 twins. Anyone?
Also we are going to get the girls on pumps this summer, I wanted to know if anyone would suggest we do them at the same time or one at a time??? Also, we are considering Medtronic Minimed...thoughts/comments welcome! Thank you!
Comment by aliceclones on February 27, 2011 at 5:42pm
My youngest daughter assumes that since her sisters have D that she will also eventually get it. She even asks us to finger poke her occasionally, just to make sure! So far she is autoantibody negative, but she still has a long ways to go!
Comment by SpikeJ on February 27, 2011 at 5:10pm
Greetings!
I've had Type I since I was 3 months old. My youngest brother was diagnosed with it at the age of 29 a few years back. We keep on teasing our middle bro that it's only a matter of time. My maternal grandfather had myasthenia gravis. Apart from that there's no one else with any autoimmune problems.
Comment by Trev on January 30, 2011 at 12:07am
Hello everyone.
I have type 1 and 2 out of our five children have type one.
Hope everyone is well.
Cheers!
http://www.three2treat.com
Comment by aliceclones on December 15, 2010 at 7:20pm

We have a lot of thyroid in both sides (mine and my hubbys), and i have 2 cousins with celiacs, and we now know those are all related to D. so my girls just got the D on the wheel of auto immune diseases.

Comment by Renata Pellino-Porter on December 15, 2010 at 11:22am

We didn't have Diabetes in our family histories either however auto immune diseases run rampant...so...I guess it's not too suprising.

Comment by D. Bahr on December 15, 2010 at 9:34am

I'm Daun, and I've been on Tu for awhile now.  My oldest daughter was diagnosed in September of 2005 and my youngest was diagnosed in March of 2006.  Other than my nephew, who was diagnosed in 2001, T1 was non-existent in my family for three generations that we knew of.  My great-grandmother and her brother both had it.

My daughters were both diagnosed when we lived in Seattle.  Our endo there said that diagnosis seemed to occur in "waves".  Some really bad years and some years with almost none.  There were four other families in the PICU when my youngest was diagnosed.  We were the third sibling family they had that season.

 

We are back in San Diego now and the girls are two of four D children in the school. They have both been on the OmniPod for about a year.

Comment by Renata Pellino-Porter on December 14, 2010 at 7:37pm

Alice we moved from Seattle to New Zealand. My son was there when he was diagnosed. My daughter was diagnosed in Texas.

 

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