For People With Multiple Conditions

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For People With Multiple Conditions

This is a support group for people with multiple medical conditions.

Members: 87
Latest Activity: 21 hours ago

Diabetes Forum

All of my problems

Started by Cocheze 21 hours ago. 0 Replies

type 1 diabetes, bipolar disorder, rynauds, ocd, anxiety, depression, the list goes on. how do i stay positive with all of my problems?Continue

Introduce Yourself!

Started by pinkyspurse. Last reply by JenJen777 Mar 3. 41 Replies

This category is for introducing yourself and explaining what medical conditions you have and how they affect your life or whatever.

Mistreatment Discussion

Started by pinkyspurse. Last reply by Eileen Apr 27, 2013. 1 Reply

This is for people who feel like they've been mistreated with their medical conditions and would like to talk about it.

Prurigo Nodularis (skin disease) and Diabetes

Started by Tinkersmom. Last reply by Mohanned Oct 29, 2012. 4 Replies

I'm searching for a connection between PN and Diabetes. The "experts" say the cause of PN is unknown. It presents as a "bite" that causes extreme itching. Next, lesions appear and the itching…Continue

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Comment by justgeo1 on January 12, 2012 at 7:30pm

Natalie, you might also have a problem with central sleep apnea, which has nothing to do with weight. I'm dealing with CSA...

Comment by PaulaO on January 12, 2012 at 5:01pm

LOL What I was saying is that being overweight is one of the causes of sleep apnea, not RLS.

No, I've not tried any medication. We have noticed that it is worse when my potassium drops so I take a multivitamin and, when I experience it, I eat a banana. Doesn't always help but I do like bananas.

Comment by Yvonne on January 12, 2012 at 4:51pm

I Paula I am new to the group. I am one of those skinny snots with restless leg. Several years ago I went on Clonzapam and 1 tab of codeine 3 at bedtime. It has made a huge difference in my life. It not only lets me sleep but it also takes care of the Neuropothy in my legs, arms and hands. I agree with you on the horridness of the restless leg syndrome. It's just can't be described can it? I tried a couple of the modern restless leg syndrome modern meds but they make me paranoid and I woke up and thought someone was shooting at me. My poor husband didn't know what to do with me. There I am ducking and running to the front room - it certainly wasn't a pretty scene for him. It took over twenty-four hours to shake the results. The next day I drove to the store and when I got back in my car, and put it in reverse, to come home I could not tell whether I was going backwards or forward. That was quite a dilemma as I had left my phone at home. Anyway - want you to know I understand what your experiencing. Have you tried the Clonzapam?

Comment by Yvonne on January 12, 2012 at 4:37pm

Comment by PaulaO on January 12, 2012 at 3:28pm

Being overweight is one cause but not the only one. I know of several folk who have it and are skinny snots. An easy test your doctor can do to see if a sleep test is necessary is to have you sleep one night with one of those finger oximeters. It will monitor your blood oxygen during the night. If it drops too low, then a sleep test will help not only to rule out sleep apnea, but one of the many other sleep disorders. Like you need another dx to add to the list, right?

Comment by Natalie ._c- on January 12, 2012 at 2:48pm

You know, Paula, I have THOUGHT about being tested for sleep apnea, but don't really know whether it's really warranted in my case. On the one hand, I have ALWAYS snored, because of a birth defect inside my nose that makes the breathing passages all messed up. I don't have any partner to notice whether I breathe regularly or not, and I'm not overweight, nor do I have any other reasons to suspect sleep apnea. So I really don't know!

Comment by PaulaO on January 12, 2012 at 9:36am

Yeah, mine is worse when I am watching television in the evening and sometimes when I first lay down. Annoying as heck.

Have you ever been tested for sleep apnea?

Comment by Natalie ._c- on January 12, 2012 at 8:40am

Paula, RLS is more common in the evening and night, because that's usually when we are trying to relax. There ARE a few people who experience it in the morning, or 24/7, but they're rare.

I'm single, so I have no partner to observe me, but when I was in the hospital and a roommate came in at night when I was sleeping, she said she thought I was in drug withdrawal because I looked like I was having convulsions. So I imagine I do have both. About 85% of RLS sufferers have PLMD also, but they don't know what the exact connection is. PLMD sufferers often DON'T have RLS, so it's clear that they are 2 different disease entities.

Yvonne, I have no idea whether your husband's bad aortic valve was related to PLMD, but it would be worth asking that question at http://www.rls.org/ or http://www.sleepfoundation.org/article/sleep-related-problems/perio... It WOULD be nice to know.

Comment by Yvonne on January 12, 2012 at 5:33am

Thank you, Natalie. Now I know what my husband had. It was PLMD--not RLS. He wasn't diabetic, but had a bad aortic valve. We did not know this until it had become extremely calcified and he had to have it replaced. Don't know whether that had anything to do with it. I'll have to ask my daughters if they have this.
Yvonne

Comment by PaulaO on January 11, 2012 at 7:29pm

Restless Leg Syndrome is often confused with Periodic Limb Movement Disorder. RLS happens primarily during the day and can happen as you are first laying down. PLMD happens at night and is the body twitching mostly in response to low oxygen although there can be other causes. It also mostly happens during the deep REM sleep and will wake you up, even though you may not remember it. Many people with untreated sleep apnea have PLMD. It is possible to have both RLS and PLMD. Yay.

I have kicked my 85lb Rottweiler over the foot high footboard of the bed during a kick caused by PLMD. She was not pleased. LOL

RLS is nerve wracking. I have been tempted to cut my legs off. Without anesthesia. The pain would be better than the sensations.

 

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