For People With Multiple Conditions

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For People With Multiple Conditions

This is a support group for people with multiple medical conditions.

Members: 111
Latest Activity: Mar 7

Diabetes Forum

Ankle injury -- unrealized -- common for RA / diabetes patients?:

Started by Kate. Last reply by Kate Jan 19. 6 Replies

Hey everyone. Hope everyone is enjoying the new year so far. Well, Tuesday morning I woke at 6 am with my right (good) ankle aching, but I didn't think anything of it. Got dressed for work, but my…Continue

Tags: diabetes, arthritis, rheumatoid, RA, Injury

RA Cure?

Started by Terrie. Last reply by Terrie Dec 30, 2014. 2 Replies

Hi All! I hope that you had a good Christmas and will enjoy a healthier New Year 2015.I thought that I'd add this article. I found it interesting and encouraging, although I do not think of it as a…Continue

RA and chronic iritis--anyone found relief?

Started by Kate. Last reply by krisa Dec 14, 2014. 4 Replies

Hi all -Had my annual vision and medical eye exams yesterday. Need a new prescription after one year--I'm guessing due to the diabetes diagnosis. Thankfully no diabetic retinopathy (which my mom…Continue

Tags: diabetes, prednisone, iritis, arthritis, rheumatoid

Increasing Remicade, A1C stable, getting second endo opinion (YAY!)

Started by Kate Dec 9, 2014. 0 Replies

Hi all, hope everyone's well dealing with the artic vortex in some form or fashion. Here it's cold in the mornings and nice by mid-morning until evening.Got my Remicade today--so happy, it's only…Continue

Tags: A1C, BGs, hypos, diabetes, Remicade

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Comment by Natalie ._c- on January 12, 2012 at 2:48pm

You know, Paula, I have THOUGHT about being tested for sleep apnea, but don't really know whether it's really warranted in my case. On the one hand, I have ALWAYS snored, because of a birth defect inside my nose that makes the breathing passages all messed up. I don't have any partner to notice whether I breathe regularly or not, and I'm not overweight, nor do I have any other reasons to suspect sleep apnea. So I really don't know!

Comment by PaulaO on January 12, 2012 at 9:36am

Yeah, mine is worse when I am watching television in the evening and sometimes when I first lay down. Annoying as heck.

Have you ever been tested for sleep apnea?

Comment by Natalie ._c- on January 12, 2012 at 8:40am

Paula, RLS is more common in the evening and night, because that's usually when we are trying to relax. There ARE a few people who experience it in the morning, or 24/7, but they're rare.

I'm single, so I have no partner to observe me, but when I was in the hospital and a roommate came in at night when I was sleeping, she said she thought I was in drug withdrawal because I looked like I was having convulsions. So I imagine I do have both. About 85% of RLS sufferers have PLMD also, but they don't know what the exact connection is. PLMD sufferers often DON'T have RLS, so it's clear that they are 2 different disease entities.

Yvonne, I have no idea whether your husband's bad aortic valve was related to PLMD, but it would be worth asking that question at http://www.rls.org/ or http://www.sleepfoundation.org/article/sleep-related-problems/perio... It WOULD be nice to know.

Comment by Yvonne on January 12, 2012 at 5:33am

Thank you, Natalie. Now I know what my husband had. It was PLMD--not RLS. He wasn't diabetic, but had a bad aortic valve. We did not know this until it had become extremely calcified and he had to have it replaced. Don't know whether that had anything to do with it. I'll have to ask my daughters if they have this.
Yvonne

Comment by PaulaO on January 11, 2012 at 7:29pm

Restless Leg Syndrome is often confused with Periodic Limb Movement Disorder. RLS happens primarily during the day and can happen as you are first laying down. PLMD happens at night and is the body twitching mostly in response to low oxygen although there can be other causes. It also mostly happens during the deep REM sleep and will wake you up, even though you may not remember it. Many people with untreated sleep apnea have PLMD. It is possible to have both RLS and PLMD. Yay.

I have kicked my 85lb Rottweiler over the foot high footboard of the bed during a kick caused by PLMD. She was not pleased. LOL

RLS is nerve wracking. I have been tempted to cut my legs off. Without anesthesia. The pain would be better than the sensations.

Comment by Robert Miles on January 11, 2012 at 6:05pm

I've heard of Restless Legs Syndrome. Is that it?

Comment by Natalie ._c- on January 11, 2012 at 6:05pm

Yvonne, it's Restless Legs Syndrome, soon to be known as Willis Ekbom Disease. It's a creepy-crawly, continuous electric shock, ants in your bones and muscles kind of feeling that starts when you are at rest and is agonizing, and the only relief for it is to move and keep moving the affected area. Obviously, THAT makes it impossible to sleep. At its worst, it affected the whole back side of my body, and lasted all night long, which is disastrous when you have to go to work in the morning. I'd spend all night jumping out of my skin, and then was a wreck at work!! After having it all my life, I have finally found a med regimen that works about 95% (and I'll forgive the last 5%) which consists of Xanax (actually an anti-anxiety drug, which has sleepiness as a side effect), melatonin, an iron supplement (because they have found that the brain is deficient in iron in RLS) and valerian root. As soon as I run out of the valerian root, I'm going to stop it because I tend to be suspicious of herbs, but my psychiatrist, who is the one treating me, recommended it. And if the RLS symptoms come back again after I've tried stopping it, I can always start it again. In my family, RLS is genetic, but it can also occur in conjunction with neuropathy and renal disease, so diabetics are at increased risk of it, too.

Comment by Yvonne on January 11, 2012 at 4:45am

Natalie, what is RLS?

Comment by muleman on January 10, 2012 at 4:58am

Hi Natalie and the Chaplain. I wrote to Chappie a while back. I wrote as a vet, Airborne! but didn't get a reply!
Sure sounds like the Chaplain has had a bad time. real sorry!
I have wild type 2! Had 2 miner heart attacks and have a stent in an artery to my heart. Hi BP, Eurhythmia, and sleep Apnia. I stop breathing over 1.000 times a night!
October 2008 I crashed my driving mule. Got an open fracture of my ankle. Dislocated it and broke my foot!
Got an infection in my ankle for 6 months and has Necrosis in it now. Both part of the Ankle bone are dead and decaying. They are talking about either pinning my ankle or taking my left foot off. I have the burning shines and heavy freckling of my legs. My foot has turned black once, but I worked on it hard with one of those small paint roller with the long handle and massaged what I could reach. It came right, kinda! I have a short deformed left arm after a parachute accident! So massaging a left foot aint easy. There is no support in the Free Health service here according to my Doc. I know my life is in God's hands, and the rest is up to me!

Comment by Liz on October 15, 2011 at 10:16pm
"Comment by PaulaO on Monday"
"We ought to make business cards with all our acronyms listed like degrees. Make people think we are edjamakatid when, in fact, we are just fubar."

& "Degenerative Disc Disease. A catch-all name for what they can't name yet. Like 'metabolic disease'."

You're so right, PaulaO! Lupus, DDD, fibromyalgia... It's all the same to me! I can't distinguish one from the other...
 

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From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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