For People With Multiple Conditions


For People With Multiple Conditions

This is a support group for people with multiple medical conditions.

Members: 104
Latest Activity: yesterday

Diabetes Forum

Introduce Yourself!

Started by pinkyspurse. Last reply by Nicole Spector Oct 21. 45 Replies

This category is for introducing yourself and explaining what medical conditions you have and how they affect your life or whatever.

Medical Jokes

Started by pinkyspurse. Last reply by Tavia V. Sep 13. 3 Replies

This is to help lighten the mood here. They say that laughter is the best medicine.

All of my problems

Started by Cocheze. Last reply by Tavia V. Sep 13. 1 Reply

type 1 diabetes, bipolar disorder, rynauds, ocd, anxiety, depression, the list goes on. how do i stay positive with all of my problems?Continue

Rheumatology all who are interested are invited to join the discussion

Started by rick the "Blogabetic". Last reply by rick the "Blogabetic" Aug 7. 47 Replies

Places for folks with rheumatology issues, what goes, right, wrong or indifferent.Continue

Tags: Rheumatology, RA, Diabetes

Comment Wall


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Comment by Natalie ._c- on January 12, 2012 at 8:40am

Paula, RLS is more common in the evening and night, because that's usually when we are trying to relax. There ARE a few people who experience it in the morning, or 24/7, but they're rare.

I'm single, so I have no partner to observe me, but when I was in the hospital and a roommate came in at night when I was sleeping, she said she thought I was in drug withdrawal because I looked like I was having convulsions. So I imagine I do have both. About 85% of RLS sufferers have PLMD also, but they don't know what the exact connection is. PLMD sufferers often DON'T have RLS, so it's clear that they are 2 different disease entities.

Yvonne, I have no idea whether your husband's bad aortic valve was related to PLMD, but it would be worth asking that question at or It WOULD be nice to know.

Comment by Yvonne on January 12, 2012 at 5:33am

Thank you, Natalie. Now I know what my husband had. It was PLMD--not RLS. He wasn't diabetic, but had a bad aortic valve. We did not know this until it had become extremely calcified and he had to have it replaced. Don't know whether that had anything to do with it. I'll have to ask my daughters if they have this.

Comment by PaulaO on January 11, 2012 at 7:29pm

Restless Leg Syndrome is often confused with Periodic Limb Movement Disorder. RLS happens primarily during the day and can happen as you are first laying down. PLMD happens at night and is the body twitching mostly in response to low oxygen although there can be other causes. It also mostly happens during the deep REM sleep and will wake you up, even though you may not remember it. Many people with untreated sleep apnea have PLMD. It is possible to have both RLS and PLMD. Yay.

I have kicked my 85lb Rottweiler over the foot high footboard of the bed during a kick caused by PLMD. She was not pleased. LOL

RLS is nerve wracking. I have been tempted to cut my legs off. Without anesthesia. The pain would be better than the sensations.

Comment by Robert Miles on January 11, 2012 at 6:05pm

I've heard of Restless Legs Syndrome. Is that it?

Comment by Natalie ._c- on January 11, 2012 at 6:05pm

Yvonne, it's Restless Legs Syndrome, soon to be known as Willis Ekbom Disease. It's a creepy-crawly, continuous electric shock, ants in your bones and muscles kind of feeling that starts when you are at rest and is agonizing, and the only relief for it is to move and keep moving the affected area. Obviously, THAT makes it impossible to sleep. At its worst, it affected the whole back side of my body, and lasted all night long, which is disastrous when you have to go to work in the morning. I'd spend all night jumping out of my skin, and then was a wreck at work!! After having it all my life, I have finally found a med regimen that works about 95% (and I'll forgive the last 5%) which consists of Xanax (actually an anti-anxiety drug, which has sleepiness as a side effect), melatonin, an iron supplement (because they have found that the brain is deficient in iron in RLS) and valerian root. As soon as I run out of the valerian root, I'm going to stop it because I tend to be suspicious of herbs, but my psychiatrist, who is the one treating me, recommended it. And if the RLS symptoms come back again after I've tried stopping it, I can always start it again. In my family, RLS is genetic, but it can also occur in conjunction with neuropathy and renal disease, so diabetics are at increased risk of it, too.

Comment by Yvonne on January 11, 2012 at 4:45am

Natalie, what is RLS?

Comment by muleman on January 10, 2012 at 4:58am

Hi Natalie and the Chaplain. I wrote to Chappie a while back. I wrote as a vet, Airborne! but didn't get a reply!
Sure sounds like the Chaplain has had a bad time. real sorry!
I have wild type 2! Had 2 miner heart attacks and have a stent in an artery to my heart. Hi BP, Eurhythmia, and sleep Apnia. I stop breathing over 1.000 times a night!
October 2008 I crashed my driving mule. Got an open fracture of my ankle. Dislocated it and broke my foot!
Got an infection in my ankle for 6 months and has Necrosis in it now. Both part of the Ankle bone are dead and decaying. They are talking about either pinning my ankle or taking my left foot off. I have the burning shines and heavy freckling of my legs. My foot has turned black once, but I worked on it hard with one of those small paint roller with the long handle and massaged what I could reach. It came right, kinda! I have a short deformed left arm after a parachute accident! So massaging a left foot aint easy. There is no support in the Free Health service here according to my Doc. I know my life is in God's hands, and the rest is up to me!

Comment by Liz on October 15, 2011 at 10:16pm
"Comment by PaulaO on Monday"
"We ought to make business cards with all our acronyms listed like degrees. Make people think we are edjamakatid when, in fact, we are just fubar."

& "Degenerative Disc Disease. A catch-all name for what they can't name yet. Like 'metabolic disease'."

You're so right, PaulaO! Lupus, DDD, fibromyalgia... It's all the same to me! I can't distinguish one from the other...
Comment by Natalie ._c- on October 14, 2011 at 6:35pm
I have a high pain threshold, too. I don't ever remember being in pain from my thyroidectomy enough to want meds; I just used them to get to sleep. And I've broken toes and received no treatment. I think Geo and I are related! :-)
Comment by justgeo1 on October 14, 2011 at 5:35pm
I have a very high pain threshold, so I don't need as much pain medication. When I had my neck dissection I only needed meds at night so I could sleep and that was only for less than a month. I've broken bones that never got set or had a cast because the pain never got me attention. Everyone is different.

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From the Diabetes Hands Foundation blog...

An eye opening experience at @CWDiabetes!

Last month, I had one of the most amazing experiences I have had with technology since I have been living with diabetes. It happened at the Focus On Technology conference organized by Children With Diabetes in Los Angeles (the first Read on! →

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REALM Charter is a middle school full of amazing young people eager to learn about World Diabetes Day. Team DHF spent the day with over 300 students and taught them about the Big Blue Test and what they can do Read on! →

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Manny Hernandez
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Corinna Cornejo
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Lead Administrator

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Gary (has type 2)

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