Gastroparesis

Comment

Comment by Margaret on February 5, 2010 at 9:47am

I too used to be on Reglan for a long time until I experienced a bad side effect one day from it, Tardive Dyskensia, which is uncontrolled muscle movements.

I also have the Gastric Stimulator/pacer, which I got in 2002. It doesn't really do anything to help your blood sugar fluctuations from the delayed gastric emptying, nor is it meant for that purpose. What it does though that is of great benefit is decrease nausea and vomitting symptoms. It doen't completely elimanate it, but it can really be helpful in preventing most of these symptoms from escalating into a major GP episode. This used to be a major problem for me. Once the nausea and vomiting started it would not stop and I would end up in the ER or admitted to the hospital. This rarely happens now since getting the device.

Comment by Jacki Przybylski on February 4, 2010 at 5:56pm

I have been diabetic for 39 years and was on reglan for about 8 years. I was taken off of it last Oct due to the FDA warning. Since then I have so much bloating and nausea off and on, I'm very uncomfortable. It also effects my blood sugars dramatically. My Dr & Nurse just keep adjusting my boluses and basal rates, carb/insulin ratios. It isn't working. Has anyone heard or had experience with the Gastric Electrical stimulation implant?

Comment by Alesha McElvogue-Calonkey on December 16, 2009 at 7:06pm

I use regalan and haven't had any problems, Harvey what side effects are you referencing??

Comment by Harvey Schwartz on December 16, 2009 at 7:01pm

I noticed several in this group use regalan. I would advice users of the drug (and it goes under generic names too) to understand the possible side effects relationships.

Comment by Linda Booth on November 10, 2009 at 3:58am

Thank You so much

Comment by tartis on November 9, 2009 at 4:06pm

My whole family is diabetic, but my dad was just diagnosed with Diabetic Gastroparisis. I am having a hard time finding recipes for my dad, so I am having a hard time with his stomach pain. I did find a website with some good basic meal information, and I will share this with you: http://www.gicare.com/diets/Gastroparesis.aspx

Comment by Donna on September 29, 2009 at 6:49am

One other thing to try...I just started a multi-enzyme full spectrum high potency digestive capsule at a health food store which helps to break down carbs, proteins and fats. It seems to be workingwell for now. One capsule per meal--but you must be careful if you take any other medication for another condition. Digestive enzymes can interfere with meds that must remain in your system for a period of time.

Comment by Donna on September 29, 2009 at 6:40am

My doctor has suggested Botox injections done via endoscopy into the pyloric sphincter. This is supposed to relax the muscles and allow the food to empty.
Before my islet transplant I was only able to eat soft, easily digestible foods--so protein, yogurt and puddings became my diet although food was not something I desired. Since the transplant I have regained much more stomach function but from time to time I still deal with the extreme nausea and discomfort when I consume some complex carbs

Comment by marti w on September 22, 2009 at 11:08pm

i'm in a weird spot. my gastroparesis was diagnosed a few months after my adult onset type i diagnosis. it turns out my gastroparesis is due to my MS and just wasn't noticed until i went on a low carb high fiber diet with scheduled mealtimes. before i had just eaten what filled me when i felt hungry and didn't really notice that i was already eating just small amounts several times a day.
it's been an interesting ride so far but i've managed to get it down to not vomiting more than a few times a week with just diet and blood sugar control. reglan turned out not to be an option for me and domperidone is a pain to get since my insurance won't cover it.
good luck to everyone here.

Comment by Rebecca on June 5, 2009 at 4:59am

I was recently diagnosed with this additional affliction. Can you tell I'm excited about it? NOT! It's been a tough pill... or 4 (Reglan 10 mg.) to swallow. So far I'm having a hard time remembering to take all 4 pills- at their correct pre-mela-times during the day. I'm working on it. 2 are in my pill organizer so I at least get those in on schedule. I', still full all of the time, but somehow I manage to eat. I am still heavier than I would like since I also continue on my meds regemine of Cymbalta, Lyrica, and Apidra insulin also- all associated with weight gain. ( Note: I also suffer from moderate Fibromyalgia, hence the additional no-diabetic meds).

Anyway, I'd like to join this group. Food has always been my struggle and now this just adds to my nutritional, emotional, and psychologial issues with my diet. I can use all of the support that I can get.

Best wishes. I'm glad that you all are here -working together with information and support.
Rebecca B.

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