I found that the Raglan made me feel "weird" for lack of a better word. Kind of like spacy restless, jittery. I was in the hospital for a week in April and they put me on Erythromycin- normally used as an antibiotic but apparently also used for gastroperisis and it caused Severe Liver inflammation.
I was told the domperidone does have side affects... one of them being painful lactation. After reactions to everything they've put me on I really didn't want to chance this one. Maybe I should look into it again.
I take erythromycin (antibiotic) 400mg morning & night. No more bloating, reflux, D&V.Tried stopping and symptoms returned.No noticeable side effects. Risk of resistance but not likely. Erythromycin is usedas a motilin (stimulates contraction to move food throughthe stomach, not for any antibiotic effect.
I tried Reglan but it did not work for me. My doc then gave me Zofran which is a med they give to cancer patients taking chemo. It worked wonders!! Hope you find something that works for you. Feel better!
i'm new to this group and thought i would throw in my experience with gastroparesis. i too was on reglan and erythromiacin. the doctor slowly increased my dose of reglan until it started working, but at the dose it worked, i started having side effects (the feeling weird and lactating). my doctor took me off reglan and did botox injections in the muscle at the bottom of the stomache that controls where the food passes into the small intestines. this worked wonderfully for me!! and then the guy who did the study and got it approved by the fda, changed his mind and said it didn't really work in that many patients, so now insurance won't cover it. in comes domperidone. it is easy to get. you fax a prescription from your doc to cheapodrugs.com and it comes in about a month. and it's pretty inexpensive. unfortunately, once again, when i got to a dose that kind of started to work, the lactation began. i have since gone back to the botox injections. insurance covers the whole procedure EXCEPT the botox (which is around $2500 at the blue cross negotiated rate). my doctor keeps fighting them on it. i am one of the people that this treatment really works for. my gastro jokes that for 5 months i go away, then i call like clockwork b/c i'm in crazy pain, do the procedure, and i go away again for another 5 months. hoping to find a better solution soon!!