Replies to This Discussion

Permalink Reply by Linda Booth on April 20, 2010 at 9:05am

Thank you Katie! I thought that I read something like that about Reglan. Guess I will have to talk to my doctor about it.

Permalink Reply by Jacki Przybylski on May 23, 2010 at 8:39am

Hi Katie,

I have had Gastroparesis for a number of years and had been on Raglan for about 6 years. My Dr took me off of it last Feb due to the potential side effects. I am going to ask him about Domperidone. Do you live in the US? Is it difficult to get the drug from Canada? I was very excited to read that there is another drug out there!

Permalink Reply by Amy on June 14, 2010 at 7:05pm

Hi Linda,
I was glad to read your post. I've had type 1 diabetes for over 50 years. I was hospitalized last year for a fecal impaction and was given Reglan. I didn't realize it at the time but I had a horrible reaction to the Reglan. It made me very jumpy, I couldn't stay still, couldn't sleep, etc. This can be a side effect for some people, certainlly not all. I too had tests done that came back negative. I also knew better. I think they should come up with some more accurate tests. My blood sugars have been okay but I've put on a lot of weight. I don't understand this since gastroparesis is usually associated with weight loss. I am extrememly bloated and suffer from some nausea and vomiting. The worst thing is severe constipation (autonomic dysfunction) It's nice to know we are not alone.
Any help or advice is welcome.

Permalink Reply by Rebecca on July 6, 2010 at 2:06am

I too am a T1 w/ gastroparesis. I was diagnosed spring a year ago. I was put on Reglan/ Metocloprimide 4 x per day. I don't always remember to take it 30 min. before meals. ( I truly wish something worked fatser) . I just always forget. Anyway, I was also prescribed Amitiza for the other side effects of gastoparesis, the bloating, fullness, and prblems with passing the food in a tinely manner. You takeduring the meal. I should be able to remember to take it more, but the doc said if I take it with my largest meals of the day at least, then I will see positive effects. By the way, I was diagnosed after only having a diabetes diagnosis for 3 years. I think my stomach issues started way before my T1.

I should and will do better taking my meds. You know how it goes sometimes.

I too will look into G.A.T.E. sounds informative and like a great sounding board.

Permalink Reply by Marcia Skidmore on July 6, 2010 at 10:54am

I was on Reglan but was recently taken off at my request. When I started taking it the nurse practitioner was careful to explain side effects. Reglan has permanent side effects -- muscle jerks - that make it what the tv commercials refer to as a black box drug (whatever that means!). I took the med with reservation and when it really was not really doing me much good I questioned why bother. My endo was reviewing my med list (I have three doctors who prescribe for me) and asked me why I was still on - he said most people do not stay on for long periods of time because of side effect risks. So my gastro doctor at my request took me off. She said there are other meds if I start having problems.

I seem to control my gastroparesis with my 5 small meals a day. I keep to 300 calorie snacks/meals. I do eat some fiber -- some people can't handle - in the form of salads and veggies. I don't eat much meat because it just sits there in my stomach. I do get the diahrea - no fun. I also have acid reflux so I take my happy little purple pill. I finally got the eating sorted out and my BS levels are good. My problem is I tend to bottom out. Luckily my endo saw my testing results for gastroparesis and knew exactly what to do, changed my insulin and I was fine.

I also have problems in the HEAT -- get really dehydrated and my BS plummets. Like right now! lol Much worse than it used to be.

ANYWAYS -- I gave up on the Reglan because it wasn't effective for me and the side effect risks. I already had to be taken off of Lipitor because of muscle spasms so I just felt too at risk.

Good Luck. Everyone is different and you will find the right combo for you.

Permalink Reply by Cynthia on October 16, 2010 at 9:06am

I tried Reglan but it never seem to work....so I went off of it...My dr. put me back on it...but I have never heard any one say they have been helped by Reglan...
Right now I am very bloated and having a terrible time with the Gastroparesis...
It is making my quality of life miserable.
I am hungry most of the time.
I try the liquid diet for three days..but every time ---I eat the stabbing pain and the nausea.
I am not throwing up as much as I used to but I feel like I have a basketball sitting in my stomach if I just eat an apple.
I have cut back on fiber and fat.
Does any one know if you can take the little packets of Green Grass( has lots of greens in it)
Will that affect the Gastroparesis.? How are we suppose to get our fiber in????

I also do a bowel tolerance test of Vitamin C with bioflavinoids...to the point of diarrhea--it cleans out the system.
You just basically put Vitamin C (powered) with Bioflavinoids in water, starting at 5000 mg...and then every half hour you drink water with 1000mgs of the Vitamin C powedered with Bioflavinoids.--until you develop diarrhea--You do have to be at home for this...the first time I did this---it took 100,000 mg before I develop diarrhea. Everyone is different ---
But my body was needing the Immune System boost...so it took lots of vitamin C for me.
Dr. Maureen Salaman talks about this in her book...I have done this for years..and I believe it has saved me from getting inffections..
Dr. Linus Pauling won a nobel peace prize for his work with Vitamin C...
Gastroparesis is awful and affects your quality of life..
I feel as if I am in a 100 year old body sometimes..

My Dr. does prescribe me the ethromycin...Antibiotic..

Permalink Reply by Amber Gentry on November 8, 2012 at 8:15pm

I found that the Raglan made me feel "weird" for lack of a better word. Kind of like spacy restless, jittery. I was in the hospital for a week in April and they put me on Erythromycin- normally used as an antibiotic but apparently also used for gastroperisis and it caused Severe Liver inflammation.
I was told the domperidone does have side affects... one of them being painful lactation. After reactions to everything they've put me on I really didn't want to chance this one. Maybe I should look into it again.

Permalink Reply by AlMac on November 12, 2012 at 11:17pm

I take erythromycin (antibiotic) 400mg morning & night. No more bloating, reflux, D&V.Tried stopping and symptoms returned.No noticeable side effects. Risk of resistance but not likely. Erythromycin is usedas a motilin (stimulates contraction to move food throughthe stomach, not for any antibiotic effect.

Permalink Reply by PJ on November 21, 2012 at 9:00am

I tried Reglan but it did not work for me. My doc then gave me Zofran which is a med they give to cancer patients taking chemo. It worked wonders!! Hope you find something that works for you. Feel better!

Permalink Reply by vickim1970 on March 1, 2013 at 5:16am

i'm new to this group and thought i would throw in my experience with gastroparesis. i too was on reglan and erythromiacin. the doctor slowly increased my dose of reglan until it started working, but at the dose it worked, i started having side effects (the feeling weird and lactating). my doctor took me off reglan and did botox injections in the muscle at the bottom of the stomache that controls where the food passes into the small intestines. this worked wonderfully for me!! and then the guy who did the study and got it approved by the fda, changed his mind and said it didn't really work in that many patients, so now insurance won't cover it. in comes domperidone. it is easy to get. you fax a prescription from your doc to cheapodrugs.com and it comes in about a month. and it's pretty inexpensive. unfortunately, once again, when i got to a dose that kind of started to work, the lactation began. i have since gone back to the botox injections. insurance covers the whole procedure EXCEPT the botox (which is around $2500 at the blue cross negotiated rate). my doctor keeps fighting them on it. i am one of the people that this treatment really works for. my gastro jokes that for 5 months i go away, then i call like clockwork b/c i'm in crazy pain, do the procedure, and i go away again for another 5 months. hoping to find a better solution soon!!

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