Gastroparesis

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Comment by cheryl Taylor on December 15, 2008 at 1:59pm

I was just diagnosed with that and I think it stinks but now i can do something about it

Comment by Michelle Reinhardt on September 16, 2008 at 5:14am

Sami, if he Reglan make your stomach feel that way, call your dr. Misdiagnoses often happens. As I stated below don't just settle for a GI dr.

Where is everyone going for treatment for the gastroparesis? I live in the southwest area of Iowa, and I travel to St. Louis for treament for my daughter.

Comment by Sami on September 15, 2008 at 8:21pm

I was misdiagnosed by a GI doctor as having IBS and even had a gastroparesis test that failed before being diagnosed five years later. My case seems mild compared to the ones I've read here but I do have to eat very small amounts at a time and often feel sick to my stomach and miserable if I don't. I take Reglan 3x a day but sometimes it makes me feel like I have snakes crawling around in my stomach...weird!

Comment by Michelle Reinhardt on September 15, 2008 at 2:00pm

Just got a phone call from my daughters dr. in St. Louis, he has refered my daughter to the surgeon who hopefully will be doing the stomach pacemaker for her. Please pray for her!

Comment by Michelle Reinhardt on September 15, 2008 at 12:26pm

As promised here is a few websites that are great. Just copy and paste them in your browser.

http://www.gicare.com/pated/edtgs08.htm

http://www.digestivedistress.com/main/page.php?page_id=26

Find your self a GOOD GI Dr. that does deal with gastroapresis and knows what he is doing. Just dont settle for a GI dr.

Comment by Michelle Reinhardt on September 14, 2008 at 6:43pm

Jess, recomedations.................... stay away from foods that your stomach has to work hard at breaking down. Raw vegies, meat, you can have baked potatoe, just not the skin. Try to stick to a soft diet as much as possible. If you like meats, just cut them up very small and chew, chew, chew the heck out of them, it just makes your stomach work smarter not harder.

Everything is a learning curve and your diet will very from everyone elses. My daughter dietitian has recommended 6 small meals a day, and for my daughter liquid meal only.

Eating smaller meals is really much better than 3 large meals. The more food you put into your stomach the hard it really has to work.

I'll try and post a few websites that have some great ideas on what you can have. Belive me its not limited either,you do have to use your imagination to come up with meal plans, but hey its a challenge that everyone should enjoy.

Keeping your blood sugars under control is for the best. The better your control the better your stomach is.

Comment by Michelle Reinhardt on September 14, 2008 at 6:34pm

I am so sorry this has taken me time to respond, my daughter has not been feeling well. Then I was out of town or medical on my daughter. Things just tend to get worse for her. Weight loss now is 42 lbs, not good!

Doris, all of my daughters drs have decided not to put her on any meds for the gastroparesis. They all say that meds will not help her. The only thing they try to do i surpress the nerves in the stomach to reduce to nausa feelings. Right now, one of her GI drs (she has two, one for the lower GI issues and the other for the stomach and acid reflux), has decided to put her on domparidone, its a med that is supose to help with the nausea feelings too, then hopeful she will be able to eat a bit more. However this med is not FDA approved and only available in New Zeland, Canada, Mexico and one other place out side of the USA. I am waiting for dosing recomendation for the dr.

Its hard watch my daughter loose this weigh, as she is not a heavy young adult to begin with. Then throw diabeties in the mix and trying to control blood sugars................. not good.

Comment by MidnightButterflyIris on August 31, 2008 at 4:50am

hello, i'm rather new to Gastroparesis.. in fact so far i haven't had it anywhere close to as bad as some of the stories i've read out there, but it's strange for me trying to sort things out nevertheless. for the last 3 months i haven't had much trouble with it since after my test showing only a minor delay in digesion, my doc put me on omaprezol and it has helped a lot for some reason..along with modifying my diet to keep from throwing up my food all the time like i used to...i try to avoid swallowing anything that i can't fully chew up in my mouth...
so yeah, its been ok ... untill yesterday when my stomach has started to be mean to me. and that's not the only thing that all of a sudden starting acting up around the same time... 3 days before, my sciatic back/leg pain decided to come back and be even worse, after a few months of being reasonably good.
its just been a bad day phisically wise with that plus feeling like my entire body muscles ache exhaustion.. for no real good reason...
On the story of my dear stomach new antics,
i cooked a healthy pasta meal and ate that yesterday...just like i did 4 days before without any problems... but this day, two hours after eating, i threw up half of my food that i had eaten, and 6-10 hours later i was still feeling the food trying to churn in the UPPER part of my stomach, and it was hurting the whole time..like that feeling you get when you have eaten WAAAy too much except the pain is 3 times as bad and its coming from stomach muscle.
and every hour or so i'd actually feel it when a little bit of the food went down some and it would make me burp. i tried getting up and walking a bit in the house to help digestion but it hurt even worse than it hurt sitting down.. on a 1=fine to 10=bad /scale, it was like a 4.
....on the other hand i had a pretty good bg day as far as it being stable -which is almost rare. (I've been having a hard time learning to time my insulin bolus dosages taken on my pump correctly with the absorption delay.)

Today, i had a slice of toast and a yogurt smoothie for breakfast and it made me full pretty fast, but it didn't hurt as bad. then for lunch i tried to eat a extra small spinach waldorf salad with some quiche and tried to eat MUCH slower than usual, like one bite every 5 minutes. after 5 bites, my stomach started to hurt and feel like a overfilled water balloon. i had already taken my insulin so i forced myself to eat the quiche ..trying for the logic that its mushy food;..but i couldn't finish my salad. i ate that when it was 8pm and its now 5 hours later and my stomach still hurts.
i just want to know if any body has experienced this kind of thing and furthermore, how the heck do you deal with this?? .. its kind of aggravating and depressing me and i don't know what to do since these symptoms are kind of a new experience for me.

??...is it going to keep being like this or will it ever go away once in a while or is there some other tricks i should know about or do you just eat baby food or do you just not eat and only drink juice or do you alternate the days that you do eat solid food or is there certain foods that are absolutely the doomers of us or are there other less obviously known foods -besides things with peels and stalks- that can make it worse or is there a certain specific tiny measurement of food that the stomach can only handle at a time or does it hurt no matter what you eat or no matter how much you eat???? What are the very beginning stages/symptoms of Gastroparesis that you had to go through, and how long does each last before you developed new /worse symptoms??
I feel so unprepared and so confused in dealing with all this. please help.
-Jess

Comment by Doris Ann Dickerson on August 28, 2008 at 11:25am

May I ask if the dr has put your daughter on reglan and (generic name here) Omeprazole. I have to take the Omeprazole once a day in the morning about 30 minets before I eat ans 2 reglan tables at every meal even after taking the Omeprazole at breakfast

Comment by Doris Ann Dickerson on August 22, 2008 at 11:26am

Good idea Michelle this group! I'm sure others will come give them time!!!

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