Gastroparesis

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Comment by Cheryl Pealer on April 24, 2009 at 7:48am

I was diagnosed with Gastroparesis Last year in the hospital. They did an endoscopy and stretched the opening between the stomach and intestine. That helped so much but is not a permanent fix. They cannot stent it because it has to be able to open and close. I may have to do the procedure again soon. I am starting to have symptoms of the nausea. I am also a Type 1 diabetic and my sugars get hard to control.

Comment by Kevin on January 31, 2009 at 6:07pm

Bentyl didn't help me at all. I still had attacks at work that put me on the floor in a fetal position and they lasted for about 5 minutes. Then I would get myself together and work the rest of my shift. My empolyer says I need to be there 100% or I could lose my job. Just last week I had an episode at work and just got myself off of the floor and shut the door to the department and waited till the pain subsided so I could get back on my feet and finish out my shift. Isn't it sad how employers don't really care for the well being of their employees. I think if people knew how a company takes care of it's employees, they probably wouldn't let their parents live in the facilty.

Comment by Sandy on January 31, 2009 at 5:47pm

Kevin - no I dont think (and I have to think because I have been on so much) that I have been on Bentyl. The other medication was Domperidone ama Motillium. I am thinking that because I was allergic to both of these is why they did not give me Bentyl but I will ask on Tuesday.

Curious - I have these as I am having these attacks in the few days around. Strong dizziness...I have to kind of stop for a minute and get my ground. I can be talking and mid sentence it hits and I have to stop and get my bearings...you also or no?

What was your experience like with Bentyl?

Comment by Debe on January 30, 2009 at 4:47am

I have severe pain with thistoo, but allergic to all pain meds. I took a pain management class. However I do get major nausea and vomiting. I vomit 24/7 and usually ended up in the hospital many time with dehydration, always carrying my bucket to the ER. Now my MD has a standing or for me for Anzamet(it is a shot for Chemo pts for nausea and vomiting.) Low and behold, no more bucket. When the vomiting starts , I go straight to the ER and get my shot. Now able to control the vomiting, dehydration and mostly no more hospital stays. Hope hope this can help someone with the severe vomiting and nausea........Debe

Comment by Kevin on January 29, 2009 at 7:16pm

Sorry. I meant message for Sandy. Too many work hours today. Sorry about that. Know all about the bloating too. Sometimes I feel like I should just put a string around my foot and let a child float me around like a balloon.

Comment by Kevin on January 29, 2009 at 7:13pm

Gerri,
Have you tried Bentyl? It does about the same thing as reglan. My doctor put me on reglan becasue it is better for diabetics, he said. Since you are not diabetic, maybe this would be a choice for you since you are allergic to the reglan. Bentyl is also in generic form -dicyclomine- so it would be cheaper.
Kevin

Comment by Gerri on January 29, 2009 at 2:30pm

Kevin,

I'm feel fortunate that I don't have the awful pain, but as a newly diagnosed Type 1 (May) I think my gastroparesis is just in the beginning stages. Not being able to time insulin to food--not so lucky there.

Comment by Sandy on January 29, 2009 at 1:25pm

Hello all - I am new to the group. I do not have diabetes but do have gastroparesis. I am so frustrated with my doctor - I am allergic to Reglan and also was able to get the motility medicine in the UK which I was also allergic to. My doctor just kind of threw up his hands and told me to join Jenny Craig - I am overweight but not greatly. My stomach is swollen very much from this condition - my response to my doctor was "why should I pay 3 times what I pay to each healthy at home just to not digest it or get sick from it"

I am naseaus all the time and the sharp pains in the upper stomach are unbearable. I actually found this group by following a post from Kevin on this issue...

I went to the Cleveland Clinic for what I thought was consultation for the stomach pacemaker but they told me that there are too many issue with this and that it is not a permanent fix.

I am curious what remedies have worked for this group and any suggestions on how to deal with the sharp pains. I am definetely having an attack of them today :(

Comment by Kevin on January 29, 2009 at 12:44pm

Gerri and Laurie,
You are lucky. I wouldn't wish thee pains on my wost enemy.

Comment by Gerri on January 24, 2009 at 9:52pm

Thanks, Laurie.

I don't have stomach pain, bloating or heartburn. I have is good BG two hours after meals & highs 4-5 hours later. Can't figure out what else is causing this other than gastroparesis.

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