Gestational to Type 1

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Gestational to Type 1

For those ladies who had GD and were told: "it will be years before you should get diabetes, IF YOU GET DIABETES. I went for GD to diagnosed with LADA within 6 months.

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Gestational to Type???

Started by Anita. Last reply by dickengel Jan 17, 2011. 7 Replies

Gestational to Type 1, I know what you mean......

Started by Shawna Staats. Last reply by DebMc Feb 1, 2008. 1 Reply

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Comment by Diabeticglasses on April 11, 2013 at 10:51am

After reading many of your stories, I feel incredibly blessed to have been diagnosed with type 1 during my first brush with "GD." After I failed the OGTT at week 26, my OB sent me to an endocrinologist who immediately suspected T1. I was 27, thin, and apparently healthy, and my blood sugar was still over 200 when I went to the doctor four hours after breakfast. She sent me home with insulin and tested me for antibodies. Naturally, I tested positive. So as soon as my son was born, I was back at the endo, working on a new insulin regimen and discussing my future as a type 1 diabetic. I feel so lucky that I wasn't sent home to torture myself with a bird's diet and soaring BGs, as it seems so many of you were. I feel less lucky that I have type 1, though. I'd take plain old GD any day!

Comment by Christine910 on June 2, 2012 at 6:00pm

So glad to find this group.

Here is my story:
With my 3rd pregnacy I ended up with GD the last 3 months of my pregnacy. After I had my son, my Endo never had me come back to see if my GD went away or went full on Type 2. Type 2 runs in my family, so he should have checked. I got pregnant in 2010 and miscarried the baby. Found out that I had type 2. Went to the same Endo I had before and he said "You are not my typical patient" "I would never think someone as small as you would have diabetes". Really? Umm It runs in my family, so why would you not think I was at risk? Anyways he puts me on Glybride. I got pregnant again and went on insulin. I lost that one too. This stupid Endo nearly put me in a diabetic coma because of how stupid he is. One morning I had breakfast, went to work and not even 2 hours after I ate I crashed to 37. I had a few other lows before that and after. I called his office (it was the weekend) on Monday and left a message with my #'s. His nurse called me back and told me he wanted me to increase my morning dose. I asked her "Are you sure? I crashed to 37 not even 2 hours after eating. He does know this right?" She said she would double check with him. She calls back and said Yep, he knows you crashed to 37 and still wants you to increase your dose.

I thought to myself "Is this guy that damn stupid or what?" I called my mom and told her, she is a type 2 and has been for many years. Oh and this happened when I was pregnant for the second time.

I was diagnosed with type 2 in Sept. 2010 after my first miscarriage and by Jan. 2011 I was diagnosed as a Type 1. I got pregnant for a 3rd time and my OB put me in the hospital to get my BS under control. While I was there I met a new Endo (who was in the same office as my other one). I talked with him and told him what the other guy did and he even said he was crazy and should never have increased my dose if I was already crashing. He talked to me about getting on a pump. He is a Type 1 and it helped me trust him more in knowing what he was talking about. So I switched to him.

I ended up losing that baby as well. So that is 3 miscarriages I had, all due to diabetes. In May I got on Omnipod and I put my bolus and basal rates at what it would be if I were pregnant. I wanted to be ahead of the game incase I got pregnant again. Which in June I did. I fought hard to keep this baby and it was a long, tough road, but I am proud to say that on June 7th my beautiful little girl will be 3 months old.

When I told people my story, they said there is no way I could be a type 1. People said that you can't go from GD to type 1. They said maybe it was something else, but when I told them that my pancreas is no longer working and that is what makes me a type 1, they were like "Ohhhhh".

why is my pancreas not working any more? Because the stupid Endo I had before never checked me after I had my 3rd child. I went over 6 years not knowing. Over 6 years my pancreas worked it's butt off trying to keept up and finally it just couldn't do it anymore and gave out.

I started a blog on what happened to me, so that maybe others will not go through what I did.

Comment by Super_sally on February 16, 2012 at 5:33pm

Hi MKSSS,

I truely think you are type 1 and should be on insulin. There is no way in the world you should be having numbers in the 3 and 400s with what you describe.

Thank goodness you insisted on follow up and your hubby is also advocating for you.

My endo told me my GD (was on insulin by 3rd month of my first pregnancy) would go away after I gave birth and not to worry about testing "take a holiday". However, I found it didn't go away and I put myself back on insulin. This pregnancy he still refers to me as GD and seems to think I'll be fine after the pregnancy.

I am now up to about 90 units of insulin a day at 34 weeks compared to about 30 units with my last pregnancy at a similar time. I know it won't go away any more and am just prepared to deal with it. I will totally refuse to go onto oral meds (though I will be happy to add metformin to the mix later, in case there is any insulin resistance happening).

Keep at it and keep advocating for your health!

Comment by type1VT on February 16, 2012 at 10:54am

Your story sounds so much like mine, I truly think you are Type I. You should demand that you be put on insulin....metformin will not help a Type I at all (which is why you're not seeing any benefits). When I was GD I religiously exercised after every meal, ate low carb, etc. and nothing helped, I would get blood sugars of 400+ when eating one piece of whole grain toast. Your high blood sugars, your unresponsiveness to metformin, your lack of family history, your underweight pregnancy, your small baby, all of these things point to T1. My advice is to change endocrinologists (especially since they told you that you are too "old" to have T1...this is a myth and misconception that was debunked long ago). Good luck and keep us posted!

Comment by MKSSS on February 16, 2012 at 10:23am

Can I just tell you how relieved I am to find this group?! I have never had any health problems or any issues. Had two healthy babies, but during my third pregnancy was told I had GD (which was so weird since I was underweight). Ended up on insulin since I couldn't control it with diet and exercise. Had my baby (who was 5lbs) and was told I didn't even need to go in to be re-checked to see if my blood sugar was high. Good thing I checked it myself and pushed to have an a1c afterwards because it was high and for two years I have been told I have type 2 diabetes although it never made sense! I'm thin and have NO family history of diabetes. Absolutely zero. For the last two years I have felt like a freak show. A few weeks ago my metformin, diet, and exercise have not helped in the slightest and I have had #'s in the 300 and 400's. I have seen two doctors (one an internal medicine doc) who insist I am too old to have type 1. Thankfully, my husband is in medical school and is advocating on my behalf and getting answers and tests done. Anyways, I'm just thankful I'm not alone. :) Also, I do feel like even if I am not type 2 anymore I know what is has been like, and I am sick and tired of people referring to type 2 as a "fat disease" or telling me I don't look like the typical type 2. Grrr. People are so quick to judge and so ignorant of diabetes in general!!

Comment by Rebecca on January 19, 2012 at 7:40am

I totally agree. Read al that you can get your hands on about diet for diabetes. I too am trying to avoid processed carbs and am enjoying my reduced carb lifestyle again. I love not having to bolus with every meal. I too recommend Dr. Bernstein's Diabetes Solution. Another great aid fir information is medical researcher and reporter Gary Taubes book: Why We Get Fat. Check it out!

Comment by Super_sally on January 15, 2012 at 3:12pm

Hi Type1phd. Welcome!

Your story sounds a bit like me (and seems to be pretty common) - but my diabetes didn't go away after my first pregnancy. Before my first pregnancy I was a triathlete and pretty conscious of diet. Was diagnosed as soon as I got pregnant with my first (I am also hypothyroid and my endo tested me for diabetes as soon as I got pregnant) and was on insulin straight away. After I gave birth they told me the D would be gone and not to bother testing. I didn't listen and found that the D had not gone away, though it had improved a lot. So I managed with diet for a while and then back on insulin while attempting my second pregnancy. Am now 30 weeks pregnant and on high doses of insulin. My endo still refers to me as Gestational Diabetes. I KNOW it is not GD. No family history. Presentation not right. Am not significantly insulin resistant either. So frustrating! Anyway, I am doing very well on low carb approach (not always as strict as bernstein) and an intensive insulin regime. My doctor also seems amazed at how well I am doing - apparently most of his patients don't do so well.

Comment by type1VT on January 15, 2012 at 7:33am

Nice to find this group, since I feel pretty isolated with my diabetes story and I find comfort in this small group! I had GD and was insulin dependent with both pregnancies, and since I'm fit and normal body weight and didn't gain very much weight with my pregnancies, the doctors always kind of joked with me and scratched their heads. No one ever even suggested that I might be developing Type I, and this was at a high-risk clinic at an academic research hospital. I was "normal" after my first delivery, but after my 2nd daughter was born I rapidly lost weight over a year until I was skeletal, then was diagnosed as Type I and put on insulin immediately.
I am angry at times that, despite not having any risk factors for developing GD, my docs didn't think about the potential that it might be Type I. Sometimes I fantasize about marching into the clinic, slapping down my lab results, and saying "SEE!! You guys freakin' missed this diagnosis!!" They never even tested for autoantibodies or insulin levels, they just assumed that I was insulin resistant and Type II. I also was extremely insulin sensitive (typical in Type I as you know) which should have been another tip-off.
I suppose it doesn't do any good to get upset, since now everything's under control. I religiously follow the Dr. Bernstein low carb diet, which is life-changing and has allowed me to establish control of this wicked disease. My blood sugars never rise over 130-140mg/dl, and typically I am steady at 90mg/dl. My HbA1C has gone from 12% (at diagnosis) to ~5% (around normal), which has my endo scratching her head (since she doesn't believe diabetics can actually achieve normal blood sugars and HbA1cs). My blood chemistry profile is better than it was when I wasn't diabetic. If any of you are intersted in Dr. Bernstein's diet and want life-long control of your blood sugars, check out his book.

Comment by LNG on November 26, 2011 at 3:27pm

I thought I was the oddball but as I read these stories I realize that I am one of many. I too had run-of-the-mill GD with my older daughter. Knowing what I know now I realize that I was already developing T1 before I got pregnant with my 2nd daughter 4 years later. I have often wondered if the development of T1 had anything to do with an episode that occurred about 4 weeks into my first pregnancy. I had a ruptured ovarian cyst (it actually was the corpus luteum cyst that had released the egg) and I bled internally for 16 hours before I went to the hospital. I thought it was just a stomach bug and would get better until the pain got too bad. Anyway the ER thought it was a ruptured ectopic pregnancy and I went into emergency surgery thinking I had lost the baby. When I woke up, my husband said "They think you're still pregnant." I've often wondered if all of that somehow triggered the autoimmune process that eventually destroyed all my islet cells. With my second pregnancy I was promptly put on insulin because my numbers were so high. Six months after my younger was born, I noticed my numbers creeping up. The last of those precious cells were giving up. I called this to the attention of my OB who referred me to an internist. He tried the meds and would scratch his head and say, "Those aren't working? Then take more of them!" I finally took myself to an endo because I knew something else was going on and I felt awful. He immediately knew what was really the situation and I've been on insulin ever since. Bottom line to me is that general doctors don't really have a clue about T1.

Comment by smileandnod on November 9, 2011 at 8:25am

I'm new to tudiabetes but wish I would have found this community long ago! I was diagnosed with GD 25 years ago and told it would probably go away when I delivered but I would be more prone to type 2 as I aged. My grandmother was type 2 later in life. OB-GYN said from the result of my initial glucose tolerance test that they knew right away I would be on insulin before I delivered - diet just didn't bring it down enough. Healthy happy baby girl and normal blood sugars the minute I delivered. Fast forward 6 months and I was rapidly losing weight, sick, constant thirst and urination, classic symptoms. Internist tried to put me on oral medications - I shortly begged to be put back on insulin because I felt so bad. Endo told me that I was type 1 and the reason they probably missed the diagnosis was because of the honeymoon period.

 

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