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Comment by Parrformance on April 6, 2013 at 11:51am

Welcome to our group Jay Hobbs, we are glad to have you and hope you will be in our group for a looooong time to come. Low carb and lots of exercise have me honeymooning over 2 years now.

Comment by Parrformance on March 25, 2013 at 3:27pm

Cool with Sherims 1 we are now 10 members strong:) I am glad to still be honeymooning after 27, almost 28 months.

Comment by dandmanz on January 10, 2013 at 8:27pm

11 weeks since i was diagnosed and now only dosing for dinner meal, its like my pancreas has woken up haha

Comment by Parrformance on May 13, 2012 at 2:34pm

I am testing 8+ times a day, my case seems to be a little strange, aren't we all. I had a turkey wrap with veggies for lunch in a low carb Tortilla 10g. Then I had 1/2 cup of real ice cream:) 23 g. I was 100bg b4 lunch and up to 112bg at 1 hour after. Two hours after lunch I was at 172, so I continued to relax until I felt better.
Once I felt well enough I went out and washed the wifes little VW Jetta, then came back inside took a shower and bathed the dog. I started feeling hungry so I thought let's check and eat, I was at 72. If I had bolosed even a tiny amount I would have crshed Hypo.
I am so sick of this, I am back to feeling the way I did before I knew what was wrong. If I eat I need to fall asleep in 45-65 minutes after first bite, I only sleep for 5-10 minutes but if I fight it I am a wreck for quite a while.
When I don't eat of course I feel hungry and weak. The times I feel well are becoming fewer and farther apart.
I imagine that I am about to see some major changes with my bloodsugar numbers and the way I feel is just the precurser to the next big drop in my own Insulin production.
I am certainly not looking forward with anticipation, but I am sure glad I have something on hand to correct the inevitable highs, other than climbing on my bike and going out for a ride, which is all I have had thus far.
Michael

Comment by Shawnmarie on May 13, 2012 at 1:17pm

So great you found someone who will listen! Interesting that he's going with corrections instead of bolusing. It will be interesting to see how that works out for you. Guess it's all about watching the CGM and testing, testing, testing to be safe so you don't go low.

Comment by Parrformance on May 13, 2012 at 12:54pm

My wife and I met with my new Endo on Friday morning, He introduced himself and asked "tell me about yourself". You may not believe this but he listened. I gave him as brief an explanation as I thought was prudent. Without hesitation or prompting from me, he mentioned LADA and Adult Onset. He also asked if I had been given a prescription for correction dose of Insulin when I was first diagnosed(with an A1C of 10.7), of course my answer was no. He then asked if I currently had a correction dose to treat highs, once again I had to say no. He said we will fix that today, Doc then asked if I had had a Glucose tolerance test, I said nope, he said the c-peptide test is most effective when taken during the stress of the tolerance test. He also mentioned the rest of the antibody tests such as GADA and IA2, along with the Islet cell test.
I do not feel any better physically, but mentally I am so relieved. I finally feel like I am being heard and I now have an advocate who will work with me, being proactive in my care instead of reactive to BG and A1C numbers.
I feel I can at least deal with the high numbers now.
I also am looking forward to my Dex arriving this week so as the transition continues I will be able to pretreat upcoming lows, and highs.
He was going to send me home with a Humolg pen with the understanding to give 1 unit for every 50 points above 200(sliding scale), I expressed a concern that 1 may be a little steep for me as I am very sensitive to my own Insulin, I asked if perhaps I could start off with 1/2 unit to see what effects it might have. I had gleened this approach from "Think Like a Pancreas", he stated that the pens would not do 1/2 units, then the light went off above his head and he said a pediatric pen would do that. He said "let me go see if we have one of those, we asked the rep to leave some". He came back changed the sliding scale accordingly and sent one with me.
I have an appointment tomorrow, Monday at 7:30 for the tolerance test.
I am so grateful for him and for my wife and friends, and for all of my TU friends encouragement. Miss Melitta I want to mention you by name, THANK YOU!!!!!!!!!!!

Comment by Shawnmarie on April 29, 2012 at 8:26pm

Yes, sounds like you need insulin. I'm 5'6" and weigh 110. I'm eating about 120g of carb a day. I was a carboholic before my diagnosis, so that's a lot less than before.

Without insulin, I'd be going well over 200 after meals. Hopefully, your new endo will see that you need help other than just limiting the carbs. Every story I hear like yours makes me realize how lucky I was to have the medical care I did when I was diagnosed. I was reluctant to go on insulin that first week, but I'm so glad I did. While lows are a risk, it's about learning your ratios and being cognizant of what's going on with your body. It seems that no T1 should ever have to go without insulin.

Comment by Parrformance on April 29, 2012 at 5:37pm

Well, I am just a little heavier than a mummy now, I was 136.1 pounds the morning I went to see the Endo(I was 185 before I "got sick"). Did I mention I am 5'9"? I have a catch 22, I eat like a bird to keep my sugars "normal" I lose weight, and feel awful. If I eat enough carbs for the exercise I do I struggle with the spikes and loss of performance they bring. I have chosen the latter only because I feel it will show a more true picture of my spikes to the Endo, so he can make a better decision on my treatment. I hate the roller coaster rides of blood sugars if I eat anything beyond raw veggies and low fat meat. Just seems to me we could better manage this condition, than to just "wait and see".

Comment by Shawnmarie on April 29, 2012 at 3:41pm

That seems so crazy! At least it sounds like your spikes aren't too high - yet. I think I'd be crazy myself if I didn't have the option to bolus. As it is, I'm ten pounds lighter now than at my diagnosis because I'm so aware of every bite I put in my mouth. I didn't really need to lose any weight. If I had to control my BG strictly through limiting carbs, I'd probably be a skeleton -- an insane, depressed, skeleton.

Comment by Parrformance on April 26, 2012 at 12:28pm

Well strike 3 for the current Endo, he would rather I feel poor/awful then to start a low dose Insulin prescription and risk Hypo's. Next appointment with new/different Endo is in two weeks we will see what he has got to say.

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