For people who want to share how they were diagnosed. Did they have symptoms or just discovered it by accident.

Members: 106
Latest Activity: Dec 16, 2014

Diabetes Forum

finding out

Started by Donna58 Oct 13, 2014. 0 Replies

How I found out

Started by desireanickyf Jan 28, 2014. 0 Replies

Comment Wall


You need to be a member of HOW DID YOU KNOW YOU HAD DIABETES to add comments!

Comment by Hanna T on September 30, 2014 at 5:51pm

I was unable to sleep well for a couple of nights because I kept having to get up and go to the bathroom. So I thought I might have had a urinary tract infection. I went to the doctor to check it out only to be told that my sugar was outrageously high and that I might have Diabetes. Fast forward one week, and I was diagnosed with Type 1 Diabetes.

Comment by Joan on May 27, 2014 at 5:17pm

I found out after going into Diabetic Ketoacidosis, becoming unresponsive. My adult children took me to the ER and I was diagnosed as Type I. I had no symptoms until 3 days prior to that, and the symptoms were vague, and I attributed the exhaustion to lack of sleep and menopause. I have always consumed large quantities of water, so I didn't think anything of that either. I drink three to four quarts of water daily prior to diagnosis and continue to do that.

Comment by midwatchcowboy on March 5, 2013 at 5:30pm

Oh, and I'm a Senior Reactor Operator and have had my license suspended until I can prove my diabetes is under control. I have to get an A1C result that is < 8.5 - which might take a few months.

Comment by midwatchcowboy on March 5, 2013 at 5:26pm

I felt like crap for 3 weeks after getting over the flu. I was run down, kept getting up to drink and pee. I dropped like 15 lbs and someone said, are you OK. Finally googled unexpected weight loss and found it's usually HIV, cancer or diabetes.

Went to the doctor after working 6pm to 6am shift. He asked like three questions and checked my BG with a meter - 503! Then he orders a bunch of tests to rule out pancreatic cancer. Get the full blood workup and I get sent home with Metformin.

He calls back to say you need to be at the office at 0900, no appointment. I think I've got Steve Jobs disease (pancreatic cancer). He says, "bingo, you're T1D." My A1C is 16 and C-peptide is like nothing. So, I start on MDI. Now, I have to figure out the diet with only very simple dosing until I can get with the dietician.

I think I've been pretty good for an amateur.


Comment by tiamaria on January 18, 2013 at 1:19pm

i found in June 2012, i went for my yearly thyroid blood test and they told me i was diabetic!! had no idea what it was. I was told by dr to go home, go on a diet and dont eat cake!!!thats all she said. i had no idea at all. i had to google everything i no.

Comment by dandmanz on December 3, 2012 at 1:29am

I was diagnosed about 6 weeks or so again after being admitted to hospital with ketonitis. had blurred vision to start with for a couple of months beforehand, then came thirst and even more thirst coupled with hunger and aching tired heavy muscles. i didn't know i had diabetes at all really. i started losing weight like crazy in the weeks leading up to being diagnosed a type 1 diabetic, even though i was eating heaps more food and sugary food at that, not knowing the damage i was doing. so i went to a local doctor recommended by a friend who sent me for blood tests, less than 24 hrs after that i was told to go straight to hospital where i was put on fluids for days and told i had type 1 diabetes and hyperthyroidism. what a shock to the system!

Comment by Cherise on December 2, 2012 at 11:11pm
I was sixteen years old. It was the week of homecoming for me my junior year of high school. I was peeing constantly. Constantly thirsty and just felt awful. My grandmother who was Type 2 diabetic took my blood sugar one night and it was in the 200s. Off to the dr for me. By the time I got there I was in the 800s according to their tests but still walking and conscious. Even now I can hit lows like 26 and still be conscious.
Comment by Roberta on December 2, 2012 at 9:03pm
I found out after returning home from a 10 day trip to Japan. I thought something was wrong before I had left for the trip because I was suffering from female problems for a couple of months. I live on Kauai, HI so getting in to see a dr. Within two months time is nearly impossible. So I left on my trip with an appointment to see my OBGYN two weeks after my return. While on the trip we took a self guided hiked To the top of Mt. Fuji. The hike was the hardest physical challenge I had ever endured including a marathon. Well to make a hard hike even harder, Japan was hit with a typhoon the week prior to our hike and unbeknown to us it had washed out part of the trail. So after 5 hours of hiking,declining temperatures and darkness upon us, we were lost and stranded at 10,000 feet. We were not prepared. We didn't have much food, water or warm clothing. We had no choice but to spend the night on the mountain with snuggled together under one sleeping bag in 25 degrees with unbearable wind chill. Needless to say it was a stressful and scary situation. Thankfully, We made it through the night and summited the mountain the next morning. On the hike back down I couldn't feel my fingers and thought that I had frost bite. When we got back to being tourists rather than pseudo survivor contestants we did what tourists!!! Lots Japanese stuff, rice, noodles, and green tea ice cream. Stuff I never eat at home. I usually eat very low carbs and I couldn't get enough carbs. I ate three bowls of cereal one morning. I attributed the unsatisfiable hunger on the hike. Near the end of the trip, the constant thirst And urination started. Again i attributed that to beng dehydrated from the hike. It was ridiculous! I couldn't quench my thirst and I could barely make it to the bathroom. All the while my fingers were still numb that I had to use two hands to hold something. I lost 8 pounds on the trip despite eating everything in sight.

When I returned home I thought I was suffering from extreme jet lag because I was so exhausted and could barely get out of bed.but After a week of this prolonged jet lag i knew it had to be something else. I looked up my symptoms on the Internet and diabetes kept coming up. I disregarded it because I thought to myself, I can't be diabetic, I'm not overweight, I eat healthy and I exercise regularly. I finally decided not to wait to see my OBGYN and went in to see an urgent care Dr. I told the nurse I suspected that I had a UTI so she took a urine sample and came back to ask me if I had diabetics in my family because I had a lot of sugar in my urine. She pricked my finger and my BG was 390. My A1C was 13.2. That was 4 1/2 months ago and I have since been diagnosed as a LADA. My A1C is down to 7 so far:) I'm on humalog, lantus, metformin and symlin. I have never been on regular meds especially ones that I have to inject so this is all a quite bit overwhelming. Sometimes I think I'm in a bad dream. Then I realize that as hard as this is to endure and manage we are fortunate that we have the resources and medications available to live long lives if we want to. That's my story. I'll always be grateful for taking the trip to Japan. If it weren't for the trip, today I could be one of the millions of diabetics walking around not knowing.
Comment by Krista on September 27, 2012 at 4:15pm

I found out 2 days before my 23rd birthday (6 months ago). I was in the middle of student teaching and working. I thought the exhaustion I was feeling was because I was spreading myself too thin. Then it was around my bday so I had a lot of pasta meals and sugary drinks. Then I thought I was super sick, nauscious etc. I was beyond thirsty, would sit with water in my mouth. Nothing would help and the fact that I kept having to go to the bathroom every 10 minutes, I was so confused. So I happened to mention to my dr how thirsty I was and if htere was a drink to quench my thirst. Needless to say he decided to do an extra test on my. He called me that night to go to the hospital immediately. My first thought was NO NEEDLES. I use to hyperventilate whenever I would see a needle. THat night in the hospital was the worst night sleep I have had so far. Not to mention how scared, confused I was feeling. I met with my endo and the rest of my team the next day. The official diagnosis of type 1 was given to me on my birthday. What a birthday present. It has been a trying 6 months, but I am doing better everyday!

Comment by Clare on August 21, 2012 at 10:31am

I found out in May 1975 because my family did camping trips in the spring. We would drive from our house 1 1/2 hours to Cape Cod. On the drive to the Cape I asked my father to stop the car 3 times so I could go to the bathroom. I made him get a campsite next to the bathroom and on the way back home we stopped 4 times. It was then my parents realized something was not right and took me that afternoon to see the pediatrician. 3 hours later I was in Boston Floating Hospital with a blood sugar of 324 and "mild ketosis". I was so thirsty that is the thing that I remember the most. I had lost about 10 pounds and at 5'6" I was 97 pounds which was stick thin. The endocrinologist gave my mom a load of crap about that, saying "didn't you notice her weight loss?" My mom said no it was winter she was wearing sweaters. To this day, my mom still remembers that question and how guilty and bad it made her feel. It's amazing the small comments over a lifetime and what a difference they can make...


Members (106)




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service