How often has your dosage increased? Having severe symptoms of low thyroid but tests have been "perfect"

How often has your dosage increased? I've been having severe symptoms of low thyroid for more than a year and a half, but tests have been "perfect" according to my Endo and family doctor.

I was diagnosed with T1 in Feb 2009 and Hashimoto's in Oct. 2009. After the intial TSH test that was like 8.65 or something like that, they put me on 75 mg of synthyroid. All tests for the last three years have shown TSH at about 0.5. I can't remember for sure, but it's definitely always been under 1.

The symptoms
- Constipation (and I've tried everything, nothing works to improve it).
- Extremely heavy periods (Doc put me on the pill now)
- Water retention and puffiness around my eyes
- Pealing/flaking finger nails.
- My skin color is starting to look pale/yellow.

I brought this up to my endo last year. He said everything was fine bc the tests are good. Brought it to my doc, she put me on the pill and refered me to a gastroentrologist for the constapation.

There is a year-long waiting to see the GI doc. I finally saw her in April and she agreed to test my thyroid but thinks it likely irritable bowel. Waiting for the test results for "TSH, T4 and T3."

Just wondering, is it normal to have such a steady TSH?

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Replies to This Discussion

I was feeling like that, so tired I had to take maps all the time. my tsh is 7.06 and I have no thyroid. my medication has been good for 4 years at 155 now it is 175 still feel tired so we will see

I was dx with type 1 and hypothyroid at the same time in 2000. In the beginning my dosage went up periodically then it leveled out and was steady for years. It has recently, in the past year, been needed to be raised twice. I now take 150mcg. It surprised me cuz it had been steady for so long. My doc said the dosage will need to be raised until no thyroid is made by your own body. My tests are in good range at this dosage but I am usually cold and also have heavy cycles. I am tired too but I found out I am pretty anemic (7.9) so that is probably why. I wish you luck on straightening out your symptoms.

I found that if I took my synthroid in the morning and went and had morning blood tests that it would come back as way to high. I always make sure I don't take my synthroid before bloodwork (I always have to do a fasting blood test).

You need to be tested for FT3 and FT4. Not T3 and T4, which are also protein bound and not representing the available hormone.

FT4 should be at least mid range. FT3 should be a bit higher than mid range. Better all in the upper 1/2 of the range.

TSH can be falsely suppressed with thyorid meds and doesn't always accurately reflect the real status.

Also, never take thyroid meds before the blood draw - it will give falsely high results for FT3/FT4.

If your FT4 is Midrange, but your FT3 is low you would need a T3 med in addition to a T4 med. It is FT3 that is most important for the bioavailable thyroid hormone.

let us know when you get more results.

I always have gastric issues if my thyorid is out (both reflux / slow digestion and constipation).

My levothyroxine has got my levels into the correct ranges but I still feel all the symptoms. My doctor told me that while the meds should have some impact they don't always work to illeviate the symptoms and some are just unlucky that way. I have felt a slight improvement but I've more seen results from doing other things. However, the symptoms of thyroid issues are very similar to other symptoms. My hypothyroid, endomitriosis and chronic fatigue syndrome all overlap each other symptom wise so it might be useful to get checked for other things now that your hormone levels have been balanced thyroid wise.

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