I've Had Diabetes for Over 20yrs!


I've Had Diabetes for Over 20yrs!

This group is for people out there who were born with or close to born with diabetes and have had it for a long time. I have had it for about 21yrs now and it's very hard to find people and talk to others who are dealing with the same issues I am.

Members: 334
Latest Activity: Sep 30, 2014


Hi everyone! I'm new to this site, but I think I'm getting the hang of it lol. I have had diabetes for a very long time, and I can't seem to find any other diabetics that are in the same place as I am dealing with the complications such as nerve damage.

Diabetes Forum

How long have you had diabetes?

Started by Kayla. Last reply by Phil Diment Sep 30, 2014. 180 Replies

Are you on a pump?

Started by Kayla. Last reply by PMichel Aug 20, 2014. 18 Replies


Started by Patticake. Last reply by Janice Nov 13, 2012. 1 Reply

Medical ID Bracelets

Started by Cara1028. Last reply by Natalie ._c- Jun 26, 2012. 11 Replies


Started by shoshana27. Last reply by Natalie ._c- Jun 26, 2012. 2 Replies

Does Anyone Else Have Memory Problems?

Started by Stacey :0)~. Last reply by Scott Wilkins Jun 26, 2012. 24 Replies

Diabetic posterior cataract surgery

Started by Linda. Last reply by Linda Nov 22, 2011. 13 Replies

New to this group

Started by Dana Wehr Jones. Last reply by Natalie ._c- Jul 18, 2011. 5 Replies

Am I just whining?

Started by tammy galligher. Last reply by Stuart Jun 9, 2011. 6 Replies

20 years+ what effects us now?

Started by Stuart. Last reply by Nearing40years Mar 16, 2011. 67 Replies

How long diabetes mellitus?

Started by Mary Lynn Burke-Anderson. Last reply by Jim Devlin Feb 23, 2010. 3 Replies

Hello again

Started by Kayla. Last reply by Ryan Feb 14, 2010. 2 Replies

End Stage Diabetes?

Started by Sheila. Last reply by Jacky Oct 24, 2009. 7 Replies

20 Years

Started by Sami. Last reply by Kayla Jun 5, 2009. 2 Replies

HI Kayla

Started by Sarah. Last reply by Kayla Jun 5, 2009. 2 Replies

Comment Wall


You need to be a member of I've Had Diabetes for Over 20yrs! to add comments!

Comment by Cabaretro- The Diabetic Dancer on February 6, 2012 at 11:58am

http://youtu.be/VgeEECxONJ8 Amanda Lynne The Diabetic Dancer talks of diabetes and dance for television. For more information view the video and please join me on facebook https://www.facebook.com/Model.Cabaretro.Amanda.Lynne

Comment by Richard157 on November 19, 2011 at 7:56pm

Hi Aaron, I am 72 and not very strong, but I am healthy after 66 years of T1. It sounds like you are on the right track. Stay on it and you can have a long healthy life too!

Comment by Aaron on November 19, 2011 at 12:49pm

its great to see a forum where ppl like me can talk to others with diabetes for a longtime , I have had type1 for 32 years ,Im a healthy strong 39yr old that has worked his ass off to stay healthy , and its good to see that there r others out there

Comment by Zazou on November 10, 2011 at 7:11pm

Hi there, experience diabetic!! Is there someone who had lipoatrophie because of insuline shots? Is this problem solve? thanks for your comments...

Comment by YogaO on July 14, 2011 at 2:12pm
FWIW - (Apologies if I am repeating myself...) I treat all my numbers as just that -- NUMBERS! Don't let the numbers beat you up!

IOW, I look at it kind of like a thermostat. If the temperature is too high, I turn on the AC, if it's too low I turn on the heat.

Comment by Natalie ._c- on July 12, 2011 at 11:20pm
I hit the "I don't care" phase periodically, mostly due to the major depressive disorder I have had since childhood. Almost killed myself doing that last year.

So I've developed my own mantra "It's the insulin, DUMMY" because when my BGs are good, I irrationally imagine the diabetes has gone away while I wasn't looking, and I can eat unwisely and omit insulin, which has not once done anything other than show me that the diabetes is relentlessly there. I have to convince my emotional self that it's the insulin that gives me good BGs, and my own pancreas functions more like a dirty dish rag! LOL!!

The second thing I am working on convincing myself about is that diabetes is going to be my best buddy for the rest of my life -- joined at the hip, and no matter what I do, it's not going away, so I might as well figure out ways to get comfortable with it instead of fighting it all the time. I have to say that the CGM and pump help TREMENDOUSLY for me, and I'm terrified that when I get to Medicare in a year and a half, they'll take them away from me. So I'm going to work with my psychiatrist to see if we can get them to realize that this is a matter of life and death for me. Already almost killed myself before the CGM -- I want whatever will help me avoid going through THAT again!

Good luck on figuring out how to remedy whatever it is that's causing your "I don't care" problems -- because in the long run, you HAVE to care! :-)
Comment by Michelle Forsman on July 12, 2011 at 8:08pm
Kayla, I am at 39 years, and yes, I have hit diabetes burn-out a few time. Depression is an on-going battle that comes and goes, but is here for me more than it's not. That plays heavily in the "I just don't care" diabetes burn-out phases.
Comment by Geoff on July 12, 2011 at 7:31pm
Well I will hit 60 years next year. I have a distinct memory of what I was informed that I would be lucky if I made it to 40. At that time diabetes was at its infancy in treament. The only way to test was urine. Now we have meters, insulin pumps and CGMs. I can not complain I have very few complications. I have had 2 major laser surgeries and 2 touch ups. I have miminal periphal neuropathy. No kidney problems. the thing that through me for a lupe was the clinical depression I suffered through. Things are better. I had hoped to make the Joslin program but was unable, Planning for the next one
Comment by Eliot LeBow LCSW on June 23, 2011 at 7:26pm
Hi I just joined the group. I am a psychotherapist in NYC who has 33 years coming up on 34 this september living with diabetes.
Comment by Natalie ._c- on April 13, 2011 at 9:19pm
Telling a PWD how long they will live is so WRONG! Because NO ONE knows how long they will live. All you can do is take each day as a gift, because there are no guarantees about tomorrow. (Ask the earthquake and tsunami victims about that!) I am so glad you folks have made it this long -- I hope to live a lot longer with the D too! :-)

Members (334)




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service