I've been having some pretty bad short term memory loss lately. :( It's been going on the past few years ever since I had a seizure from an extreme low.In the 25+ yrs of being diabetic I've had 3 extreme lows like that prior to pump therapy.(the last 2 I went into a seizure and the first one I lost consciousness but did not have a seizure). The last seizure I actually passed out, hit my face and head on the side of the bathroom door ,bruised my face and had a fat lip then went into the seizure! Not a pretty thing!
But I have noticed that my memory has gotten worse over time. I have talked to several Dr's over the years about this and have wondered if it was from my last seizure which was about 6 yrs ago now and could that have contributed to the issues I'm having now. They all said that low's can kill brain cells. I also realize having D's for so long now can contribute to memory loss as well. But maybe it's not even related to D's. I'm actually pretty concerned about this because I'm only in my early 30's and it's effecting my daily life now and it can sometimes be really embarrassing when I don't remember things I should. I have been referred to a neurologist to be checked out but honestly I'm kind of scared.:-( I started taking Ginkgo Biloba to see if that would help at all but know it takes time to start working. So my question is how many of you are experiencing similar problems? If so, have you been able to do anything to help with it? I'm wondering how common this is among us that have D's for such long periods of time. Thanks for any feedback you may have!

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Yes I've had my thyroid checked regularly because I have many symptoms of a low thyroid problem. But my tests always come back ok although I know there are debates in the medical community about what is a "normal" thyroid level. I asked my last DR to check my T3 and T4 level last year too and all turned out within the normal range. While I'm happy my lab work comes out "normal" I get frustrated too because I want to know why I am experiencing all these symptoms typical to a thyroid problem and feel like maybe something is being overlooked. Everything I have read about thyroid problems sure sounds like what I am experiencing! I'm still taking the Vit.D that my DR prescribed and my memory seems to be significantly better then before taking it so that's been a good thing!
"White coats" are pretty blessed good about dain bramage & memory loss.

Seizures while spooky as is unconsciousness is not likely to be causing you the problems you are having. In the abstract, "theoretically" sure maybe, but just not very likely. You're not having them daily, not having them weekly, and they are the result of nasty, nasty lows.

When I was single, I had few external responsibilities, just "me" stuff and memory was easy. Hey did I remember to change the sheets last night.... hummmngh? Now, cleen sheets are barely on the list; the kids homework, their projects, attending the dopey PTA meeting, did I get the work rosters to the employers, did I schedule the flu shots, do we have stewardship meetings at chuurch this week or next week.... etc., etc.

There is a heck of a lot more stuff on Stuart's plate going on, and very little of it can be ignored, and very little involves solely me. Having to care for other people, other interactions which are not directly us, IMHO account for a great deal of memory loss. Toss in a side-order of horemonal changes, brain chemisty, body chemistry for all of us as we grow older, and the mixture means we are forgetting things more easily.

What kinds of things are you "loosing" exactly?
Stuart
I am starting to have this issue as well. I have had T1 for a little over 24 years now and I can't figure out why, I used to be able to remember everything. Now, things "come back" to me a day or two after something happens and I "remember" this or that. It's weird, and I don't really know how to explain it but that is the way it is with me. Hope things get better for you, Mike
Hi Stacey,
I also have the same issues with short term memory loss, have had T1 for 44yrs, am 51; and am waiting to get an ultrasound test on my Carotid Artery as I have a Murmur. I believe that this is a Diabetic related thing (Memory Loss) amongst others!!!! The older I am getting, the more seems to go wrong, sigh when will it all end?????
I had a massive heart attack at 50, ending up with 4 bypass grafts.
I tried using a pump, but with my brain being harder to use, found it extremely stressful to try and work with the machine and gave it up! Dumb eh?
Ive been type 1 for almost 38 years now,,i recently started pump therapy
i have had memory loss for awhile now too..i have had a major problem most of my diabetic life with lows and extreme lows,,,,The Endo said this kind of hypos can cause memeory lost,,ive been told that keeping the sugar a bit high for a short time helps improve your memory,,,i havent found this to be true in my case....i forget where i park my car,,,forget what my husband asked me to do or say,,,ect,,,too many too explain
T1 since 52'
Had terrible problem with lows until I got a Continuous Glucose Monitor (CGM).
Never have had a pump. See few pluses.
My CGM alerts me when my glucose gets down to 80mg/dl or above 200mg/dl. It's far from perfect, however, I have not had my glucose lower than 75mg/dl since I first received it 14 months ago. My last A1c was .06%.
I have hypoglycemic unawareness too.
I love my CGM, but not nearly as much as my wife does (no more low sugar reactions she would deal with frequently).
My memory gives me problems but so far not extreme.Lately, it seems improved.
Hi Everyone.
I was diagnosed at 2 years. been living with Diabetes for 21 years. The only time I've had problems with memory is after a low. The worst case happened on a Choir camp 10years ago. woke up in the hospital and I started freaking out because I'm going to miss the camp. I finally got a nurse and she told me the teacher just called and will be along to collect me in about an hours time, but first I must have breakfast. I was really confused and thought that maybe my mom took my luggage to the school and asked them to pick me up at the hospital before they depart for the camp (totally out of character for my mom). I then asked the nurse the time, she replied 6:30 Sunday 3 March 2002.WHOA! SUNDAY!?!? What happened to Friday and Saturday? To this day I can't remember anything about that Friday and Saturday at the camp.

Surprised I just found this thread. I've been type 1 since 1990. I am 53. A couple of months ago I started a group "Diabetes and Memory Issues." I was having significant issues with my memory so I took a battery of cognitive tests that showed my short term memory was not good. Went to a speech therapist, who recommended Lumosity, a brain training aid. I also saw a neurologist. In their opinion, I had early Alzheimers. That totally freaked me out. I then went to the Memory Clinic at my local university. Saw a great psychiatrist who told me there is no way that I could be diagnosed with Alz, based on my presentation. She said my problem was likely losses from low blood sugar. She also recommended I drink less alcohol...she thought 1 drink a day was too much for me (at 108 lbs.) When she disputed the neuro's Alz diagnosis, I was so incredibly happy. Like a huge weight lifted from my brain. I have kept up the training with lumosity and I'm really improving (it's pricey, but it works). Also, I've noted that getting a good night's sleep also helps with focus.

hi type 1 for 37 yrs now..i have had memory lost for quiet awhile now,,,i didnt know ifi t was from all my lows over the years,,,which were quiet severe or stress
im on a pump now but still have memory problems cant remember where the car is,,,cant remember what my husband told me ect ,,,it can be scary somedays...

Throwing my 2 cents in, have you been checked for any other autoimmune diseases? I hae celiac, and memory issues prior to dx or after dx but not being gf can occur. That being said, I have recently started having memory issues. Went to my doc, and before doing a bunch of tests he is doing some med changes. I go back in a month and based on how I feel things have gone, we will proceed from there. I have been T1 for 28 years, celiac for 4. Have had very low bs on and off over the years. Some pretty severe. But I never had a seizure or ended up in the er bc of one. My lowest low was 23, and I was still conscious. Think in that way I have been pretty lucky. My doc told me that my memory must still be ok bc I take care of myself and 4 other people. I told him maybe, but why would I suddenly start having major memory issues for no reason. Hope these med changes do the trick.

I think I have memory problems, at least from what I can remember... (sorry, had to do it.)

I'm a 40 year Type 1. I had some extreme lows when I was very young, one where the right side of my body curled up and became useless for about 1 hour. Left side was just fine, but my right side was immobile and very tight.

I've always had memory problems. I blame that on why it took me 7 years to get a B.S. degree. I just couldn't take on the normal load of college hours. I'm a rather intelligent person otherwise, or so I've been told. But hate it when I can't even remember the slightest detail of something I was just thinking or talking about. Very frustrating.

Diabetese definately affects 100% of you, heart and soul.

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