I've Had Diabetes for Over 20yrs!

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I've Had Diabetes for Over 20yrs!

This group is for people out there who were born with or close to born with diabetes and have had it for a long time. I have had it for about 21yrs now and it's very hard to find people and talk to others who are dealing with the same issues I am.

Members: 336
Latest Activity: Aug 23

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Hi everyone! I'm new to this site, but I think I'm getting the hang of it lol. I have had diabetes for a very long time, and I can't seem to find any other diabetics that are in the same place as I am dealing with the complications such as nerve damage.

Diabetes Forum

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Does Anyone Else Have Memory Problems?

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Diabetic posterior cataract surgery

Started by Linda. Last reply by Linda Nov 22, 2011. 13 Replies

New to this group

Started by Dana Wehr Jones. Last reply by Natalie ._c- Jul 18, 2011. 5 Replies

Am I just whining?

Started by tammy galligher. Last reply by Stuart Jun 9, 2011. 6 Replies

20 years+ what effects us now?

Started by Stuart. Last reply by Nearing40years Mar 16, 2011. 67 Replies

How long diabetes mellitus?

Started by Mary Lynn Burke-Anderson. Last reply by Jim Devlin Feb 23, 2010. 3 Replies

Hello again

Started by Kayla. Last reply by Ryan Feb 14, 2010. 2 Replies

End Stage Diabetes?

Started by Sheila. Last reply by Jacky Oct 24, 2009. 7 Replies

20 Years

Started by Sami. Last reply by Kayla Jun 5, 2009. 2 Replies

HI Kayla

Started by Sarah. Last reply by Kayla Jun 5, 2009. 2 Replies

Comment Wall

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Comment by Leilani on April 13, 2011 at 8:31pm
I don’t recall anyone actually telling me that people with diabetes didn’t live very long . . . but distinctly remember the surprise I felt the first time I met someone who had lived with diabetes for more than 30 years. . . As somewhere in my subconscious I realized that I did not believe I would live that long.
Comment by Richard157 on April 13, 2011 at 8:21pm
I can certainly identify with these reports. In Richmond, VA, in 1970, a diabetes specialist gave me a book on my first appointment. He said to be sure and look at page xx. He had very little to say during that office visit, he just handed me the book. I went to my car and turned to page xx. There was a chart there. One column listed age at diagnosis, the other column gave an age. I was supposed to die by the time I reached that age, if not before. I was supposed on or before I was 46. I was 31 at the time, so I feared dieing in 15 more years, or sooner. My wife and I had a long talk and we threw the book away. I never saw that doctor again. Now I have been type 1 for 65 years, and am very healthy. Scare tactics like that were used by many doctors on their diabetic patients. I have read in some posts that some doctors still use similar scare tactics.
Comment by Richard157 on April 13, 2011 at 7:58pm
Hello Geoff, I have the 50 year medal and have been T1D for 65 years. Are you going to the Medalist meet-up in Boston on June 3 & 4? It would be nice to meet you there.
Comment by Michelle Forsman on April 13, 2011 at 7:52pm
My physician told my parents that I would be lucky to make it to 18. I was very sick after my diagnosis at 10 years old. It turns out, I also had celiac from about age 11 but that wasn't diagnosed until 6 1/2 years ago. Every year on my birthday, my Mom wishes me my birthday greetings in years added to 18. Last year I turned 18 plus 31. I never worry about getting older since I wasn't supposed to make it this far.
Comment by Mike Ratrie on April 13, 2011 at 6:55pm
Either I wasn't paying attention during the "you will only live for 'x' years" lecture, or I just had a doctor that was more interested in dealing with the present, but I am shocked, amazed and saddened when I hear these accounts.

Mike
Comment by Maureen Giannone on April 13, 2011 at 6:50pm
When I was 10 the doctor told me I would have about 40 years to live....who wanted to be 50 I remember thinking!
WELL that is only 2 short years away and I can honestly say his words have never left me so I will think turning 50 will be a milestone for me different from the norm!
Comment by Leilani on April 13, 2011 at 5:32pm
Great work and commitment to a lifestyle of caring for yourself!
Comment by Natalie ._c- on April 13, 2011 at 5:17pm
Congratulations, Geoff! :-) You hit the jackpot!
Comment by Geoff on April 13, 2011 at 5:09pm
I will hit the 60 year mark next year. It has been a strange trip. I can't complain too much. Things are much better now than they were back when I was diagnosed. I have had laser treatment on both eyes with no new changes. I have some minimal neuropathy. I have two children and two grandchildren none of them have any signs of DM. I am a medalist at the Joslin. This needless to say I beat what I was told when I was young that life expectancy was about 40 years old.
Comment by Maureen Giannone on April 11, 2011 at 8:12am
I also will be "celebrating 38 years" in September ('73) I had the chicken pox the month before. Although I also had the mumps 3 years before that ....who knows...it really doesn't matter. Luckily the workout craze began when i was 18 and I jumped on the bandwagon and have never jumped off! Today so easy to count carbs and monitor incoming calories! I am probably the healthiest in my very large family and will continue to remain positive.
 

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#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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