Type 1 and Blind


Type 1 and Blind

at 22 im dealing with pretty aggressive retinopathy alone. If you are also experiencing retinopathy, know someone who is or have something to share, please join and help support!

Members: 10
Latest Activity: Jul 13, 2012


It's been officially 1 year ago today that I got my keys taken away. It's been over 5 months since Ive been able to put my own eye liner on and it's been close to year since I have been able to pick up a magazine, a menu, a Bible and read it. Retinopathy has defintly taken over my life and now it's time I learn to deal with it. At 22 and a type 1, it's not like this is a common problem among my peers and so I want to create this group in hopes HOPES of finding at least a couple of people who can just simply relate to losing one of their most valued senses! Please feel free to join, share and just be another person who can relate!

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Comment by Susan on July 13, 2012 at 10:45pm

Does anyone recommend a particular insulin pump model for someone with visual limitations???

Comment by Molly P. on December 22, 2011 at 2:28pm

I found out I have proliferative retinopathy 3 weeks ago. I've been T1 for 10 years and am 21 years old. I'm so, so thankful that I didn't just ignore a mysterious black floater! I'm in the middle of laser treatments and have done a few injections of Avastin to help slow it down. Any words of advice would be greatly appreciated! This is the first complication I've developed...

Comment by Jam Ham on October 2, 2011 at 10:19am
T1 since 6 yrs old developed retinopathy about 16, legally blind 25 yr's now nearing the end of transition hmmmm use to love working with wood, building thing, wood carving, still try to, but it's disappointing, use to drive & ride mountain bike, now;s it's an excise bike @ de window & a lot of listening for enjoyable sounds. I live in Canada, found my biggest help & support from the CNIB who provide government programs for magnifiers, amber colored glasses, computers CCTV magnifiers & many other thing like a white cane I seem to need all the time 8(
Comment by VikkiToria on August 24, 2011 at 12:48am
Hi, I have just been diagnosed with retinopathy in my left eye, and have vision loss. I am devastated!! Can stronger glasses help with the vision loss? If anyone has any info please share, I feel so alone.
Comment by Jen on October 30, 2009 at 9:05am
Herlinda that is amazing, I didnt' know people who were legally blind could drive! Do you use bioptics or any other low vision devices? Not that I'd be able to drive even with those, I'm just very curious now. :) I've heard of people with low vision (acuity of 20/60 to 20/150 or so) drive but never anyone who's legally blind.
Comment by herlinda on October 2, 2009 at 10:34pm
its only been 3 years that i have been legally blind. my left eye is blind and the right still has floaters but still have some sight left. i have diabetes and lupus(sle) which both contributed to my vision loss retinopathy in both eyes and then a stroke in the optical nerve in left eye. at first, i was not able to see print and people's faces looked disfigured and i did not drive at all. i became depressed and everyone around me felt sorry for me and made me feel like i couldn't do anything. my self-esteem and self-confidence went out the window and i also lost friends and family members because they couldn't see me go through this. until one day, i choose to get up and go and live life. i joined the national federation of the blind and met all sorts of people their who are effected by blindness. with time and patience, i was able to regain some sight and am able to drive. i did go to the school for the blind to learn blind skills. yes, i do use the white cane for my personal surroundings. i guess for me i feel like i am stuck in between two worlds and benefit from both. i don't know if my sight will stay how it is or if it will one day be gone. everyday is a new day and each day i learn somethng new about myself and sometimes i get slapped in the face because i forget i'm blind....lol but most of all i live life to the fullest....jessica if you have any questions you may contace me
Comment by Jen on October 2, 2009 at 4:02pm
I have been legally blind my entire life so cannot relate to the adjustment process, but I wanted to say that being blind doesn't have to mean being dependent or having to give up things you love doing! I'm also a professional in the blindness field and teach people -- both those who have been blind or visually impaired since birth and those who are losing vision -- the skills they need to continue to live full lives. Like diabetes, it's not easy and it requires hard word and learning new skills, but it is possible. If anyone needs support, encouragement, information, or a pointer to resources, I hope I can help. :) In the meantime, hang in there!
Comment by Joe Brocato on May 29, 2009 at 7:52pm
I have had T1 since i was 8 yrs old developed retinopathy about 20 yrs ago lost all my sight then recovered some back. It is difficult / i understand how lonley this can be. It is tough to have to give up driving -independance etc. I still drive but only during the day and not during rainy weather.. I hope you have found a support system to help you nthrough this. You can allways contact me . take care of yourself

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