It took 4 years after I was erroniously diagnosed as a type 2 diabetic (at age 48), and visits to several different endocronologists before one finally listened to me and and my several notebooks full of notes on what and how much I was eating, how much exercise I was getting, what medications I was taking when, what my blood sugar was running........
Our family doctor had put me on long acting insulin which helped, but not enough. One of my biggest pet peeves is doctors (any kind of doctor) who won't truly listen to me. Unfortunately, in my experience, those are a very small minority.
Been there done that.....it took 5 years to change my diagnosis from Type 2 to Type 1. By that time me A1C was almost 9, and I was down to 118 lbs (I'm 5-8+). My doctor sent me to an endo, who immediately put me on 2 types of insulin and gave me both antibody tests, and I failed both miserably--or is that passing with flying colors? Now I'm on a pump(love it). Shots are no big deal--the needles we use are almost too small to see.
I would recommend Taking Control of your Diabetes, by Dr Edelman of TCOYD (and go to one of their programs if one is near you). The book will tell you everything you want to know about diabetes, and is a great reference. Also lots of new information at diatribe, and great recipes on Dlife and the magazine Diabetic Living--the pictures alone will make you hungry.
I just CANNOT understand why you are not allowed to be tested!! What does she have to gain or lose from this...while YOU have everything to gain. What has it to do with the endo anyway....this is YOUR body, YOUR decision and YOU have all the pointers indicating that the test is a valid choice. The doc says she's a 100% sure? Well...with what proof?
I feel it's time to take it up a notch....raise your voice. This all fall under the "God Syndrome" umbrella.
I am with Linda totally on this one. I wish I had a dollar for every tuD member who was told they had Type 2 and then turned out to be LADA after all. I could buy us all a nice no-carb . . . . something.
Anyway: you need a new endo. I don't care what the context is! A doctor who watches a patient's condition steadily worsen and says they know exactly "100%" what's wrong without doing the relevant tests is a doctor who is not doctoring.
As others have said, you are the one with skin in the game here -- no one else. You are doing exactly what you should be: demanding the diagnosis and the treatment that can save your life. Don't be deflected or diverted and don't take no for an answer. It's your health, not theirs.
P.S. And as important as it is to have the correct diagnosis, there's something infinitely more important. The bottom line here is not what pigeonhole you fit into or what label is attached to you. At the end of the day, what matters is having stable blood sugars. Whatever it takes to do that is what it takes. Insulin, pills, diet, whatever. That goal is what matters. Eyes on the prize!