Replies to This Discussion

Permalink Reply by Keldaran on December 6, 2011 at 12:46pm

I was Dx'd officially on Nov 16th. I was running very high CBGs, had lost 50# in about 3.5 months, polydipsia, polyuria, lethargic. My doc prescribed Metformin 500mg 2x a day over the phone on the 6th of November. At my appointment on the 16th she started me immediately on Levemir @ 2U a day, increasing it every day by 2 units until I got below 150. My next appointment the following week, she upped it a few extra units and dropped my "Good Zone" to 120. I am still increasing my insulin, will be at 46 tonight. She also upped my Metformin to 1000mg 2x a day. She also Dx'd me as being Type 1.5, as my C-peptide came back at 4.0, the scale is 1.1-4.4. We are waiting for the rest of the LADA antibody tests to come back. She is running GAD-65, ICA, IA2... basically the full workup.

I hate waiting. Not a very patient patient ;)

Permalink Reply by lizabetic on December 19, 2011 at 1:17am

Thats for this thread! See I was under the impression through what I have read is that the older you are diagnosed with LADA the longer it takes to become insulin dependant. No idea why mind you and i'd like to read up on this if anybody has any links.

When I was first diagnosed at 16yo they thought I was typically T1, I had insulin for 6 months until I hit some sort of honeymoon period and had to come off of it, then I could still eat pretty much anything but now without any meds I am diet controlled only.

Personally, what I would love to know is why in us lot our pancreas' hasn't been entirely attacked yet, but is slowly attacked... it doesn't really make sense !

Permalink Reply by ACS on December 23, 2011 at 8:03am

I was diagnosed in mid-April 2009, and began taking a small dose of insulin by the following February, 2010. Age 32 at diagnosis.

Permalink Reply by Khürt Williams on December 23, 2011 at 10:58am

I don't think LADA can be managed with oral meds. LADA is really just type 1 with a diagnosis as an adult I was diagnosed at 39.

http://en.wikipedia.org/wiki/Latent_autoimmune_diabetes

http://www.dlife.com/diabetes/type-1/about/lada_awareness_week

Permalink Reply by russell.stamets on December 23, 2011 at 2:42pm

That is the common western medicine belief at this time. I'm trying to raise awareness that LADA may be reversible with diet and other lifestyle changes. In my case, diagnosed at 49, I believe the metformin merely helped buy time. I've started to hear from other type 1's who've brought pancreas function back. Even those previously on insulin, which I would not have assumed possible. I'm an experiment in progress. My numbers will have to stay perfect as they are now for years to be proof enough for some. For me, living normally, without obsession, with no lows and no needles or pumps, for however many years, is priceless. http://russellstamets.blogspot.com

Permalink Reply by profrennie on April 17, 2013 at 11:39am

For me, it was almost 2 decades. I was misdiagnosed with type 2, because I was fat and old. Took them 20 years to get around to an antibody test.

I started insulin this year. Before then, I did a fair to poor job managing with metformin and glyberide. Insulin is a blessing. My control is much better and I can eat what I want. (in reasonable portions). Don't fear it.

Permalink Reply by Sheila Fitz on April 17, 2013 at 4:19pm

I'm writing a brief update. I was dxed as LADA in 2009. It is now 2013, and I'm still managing on exercise and very low carb diet. My last A1c was 4.9. That was not easy. The metaformin only lowered my bg maybe 5pts and did not make me feel well. Exercise works far better for me, but I really am required to exercise at a class or keep moving for the majority of my day. Shopping at Costco has an effect, as well as going up and down two flights of stairs all day long doing laundry. In recent months, I've found that I can drop to 70 just after being exposed to extreme cold, so I test more often in cold weather or when I sit down to relax.

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