LADA Diabetics

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LADA Diabetics

Do you have Latent Autoimmune Diabetes in Adults? Need support in having this type of Diabetes. Do not understand much about it? Join us as we discuss, support and learn more about LADA!

Website: http://tud4.us/LADAdiabetes
Members: 416
Latest Activity: on Thursday

Diabetes Forum

Carb counting app

Started by Flem07. Last reply by Lorraine Nov 13. 13 Replies

have to hang up my shoes !

Started by Joe Dennis. Last reply by Joe Dennis Oct 19. 7 Replies

Marshall protocol

Started by lh378. Last reply by Joe Dennis Oct 5. 3 Replies

breakfast ideas

Started by ticky. Last reply by Mohanned Sep 19. 9 Replies

LADA myths

Started by Melitta. Last reply by janetiscute Sep 19. 12 Replies

Tired of water

Started by Hummingbird. Last reply by Joe Dennis Aug 23. 11 Replies

To pump or not to pump

Started by Hummingbird. Last reply by Hummingbird Apr 15. 6 Replies

Paleo types out there?

Started by Jan. Last reply by Googy Mar 21. 2 Replies

Diet confusion

Started by thompam. Last reply by Hummingbird Jan 31. 13 Replies

Diagnostic Code for LADA

Started by Meda-Kay. Last reply by Meda-Kay Dec 15, 2013. 8 Replies

False Low A1C values

Started by Mark. Last reply by Mark Nov 25, 2013. 3 Replies

Progression to insulin

Started by lubdubology. Last reply by Mark Nov 18, 2013. 16 Replies

Do I Have LADA?

Started by David (dns). Last reply by silver07 Nov 8, 2013. 13 Replies

Regulating Insulin dosing

Started by Rose. Last reply by Melitta Nov 7, 2013. 6 Replies

Comment Wall

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Comment by Mike on December 1, 2012 at 4:15pm

Hi Zoe

I just had a medical exam & report done by my Endo, a PhD and a leading researcher on Endocrine medicine in North America, and head of Endocrinology at the University of Alberta here in Edmonton. In his report to the Alberta Government for medical reinstatement of my Driver's licence he stated LADA is NOT true Type 1. I do NOT make up information to mislead anyone, having learned about LADA through living with it for over a decade, researching it and working with my Dr. When they were trying to diagnose me in January 2002.....all they could come up with was " Type 1.5 ? " Much has been learned since about it since then and it is officially named LADA diabetes for a reason and hence is in it's own category.
Do research on the net, there is a lot of good information and make sure to check the sources.
I have had high insulin resistance from the get go....typical of Type 2 & I am not type 2. I have had major reversals in c-peptide that the Dr. could NOT explain. We are all different. I have exacerbating factors with the psych stuff of course. Someone mentioned Type 1's still produce trace insulin years later, maybe so but not what the Dr's told me.
Once again, diabetes is an ever changing situation. I sometimes need NO insulin and just use metformin because of insulin resistance. How many type ones can do that ? So I am a true Type 1 ?....don't think so !

There are many different scenarios out there, I did not mean to generalize ? I am getting alab soon....oughtta be interesting to see if I have had another " unexplained reversal in c-peptide !

Comment by mary on December 1, 2012 at 3:40pm

The type of diabetes in which insulin isn't released as required is MODY, not LADA. It is a genetic disorder.

It's hard to say how long people with LADA are able to survive before going on insulin since many of us aren't diagnosed until we start showing signs (weight loss, thirst, peeing often) and then we are often misdiagnosed as Type 2 and told we must be lying or not trying hard enough. Even once we are diagnosed correctly, many healthcare personnel still insist we must be overweight Type 2s and that LADA doesnt' exist. It is also confused with Type 1.5, which is a Type 1 with insulin resistance. I have LADA and am very sensitive to insulin.

Comment by David (dns) on December 1, 2012 at 3:08pm

P.S. Her name is Lilah and she is about 15 years old.

Comment by David (dns) on December 1, 2012 at 3:08pm

Hi Zoe,

Yes, I'm certain.

(1) I don't use any basal insulin. Don't need it. If I don't eat, my BG stays in the 80s. It's only food that causes problems.

(2) C-pep (tested quite recently) says I have some remaining beta cell function. Just not enough.

(3) I've been using insulin for less than a year. And here is a direct quote from something you wrote during a discussion we had last summer: "IMHO, it is highly unlikely you are Type 1. The typical length of time for LADA's to manage without insulin is anywhere from a few months to about 4 years; some people have gone a bit longer, but a 17-year onset of type 1 (needing insulin) seems very unlikely. It is however, a typical period of time before Type 2's go on to need insulin."

Here's what it amounts to. There are different T2 patterns. Some have high BG because they have high IR. Others, because they have very little insulin of their own. Still others suffer from both. I am in the second category.

I will just add, as a personal and highly subjective postscript, that using insulin has given me a degree of control I was never able to achieve before, diet and exercise notwithstanding. I wish I had done this years ago.

Comment by Zoe on December 1, 2012 at 2:03pm

Cute cat, David! You are absolutely right that there is an enormous variation in Diabetics, and I also admit to knowing more about Type 1 than Type 2, but since Insulin Resistance is the very definition of Type 2, are you sure you are not in fact, LADA? Back when you were diagnosed (and a lot more recently than that) many people were automatically diagnosed as Type 2 if they were over a certain age.

Comment by Sheila Fitz on December 1, 2012 at 1:47pm

Hi, Mike. I was dxed with the low c-peptide and high GAD antibodies three years ago. I had an Endo for another condition, so when I developed symptoms of diabetes, I got tested earlier than most of you. I went ultra low carb immediatedly and have always exercised more than most. I really play games to keep my A1c at 5.1-5.2, but I've been able to do this without insulin. There was a theory going at the time of my dx that you may preserve function if you could rest your pancreas. I thought it was worth the gamble, but I was used to not eating certain foods because of food allergies. So, the food allergy thing helped! Right now, I'm icing my poor knees, so this isnt' for everyone.

Comment by David (dns) on December 1, 2012 at 1:45pm

Hi Zoe --

As you pointed out to Mike, it's dangerous to generalize because every case is different. Now, I have one to point out to you . . . not all T2s are highly IR. I am a "classic" T2 with some (but not much) beta cell function remaining, and my typical bolus is about 4 units of regular; much more than that and I risk a serious low. We're all individuals. :)

Comment by David (dns) on December 1, 2012 at 1:42pm

Comment by Zoe on December 1, 2012 at 12:07pm

I'm sorry Mike, but there are a few inaccuracies in your post. LADA is Type 1; it is just a slower onset form. It has no connection to Type 2 at all. Most LADA's do not have insulin resistance; it is not a characteristic feature of Type 1, though it can be developed later on for various reasons (usually related to high carb, high insulin use and weight gain) and it sounds like in your case, the medication you take may have contributed. The chief evidence of lack of insulin resistance is that we take very low doses of insulin the same as any other Type 1 (in comparison to type 2's who take high doses due to IR).. The amount of insulin LADA's still produce varies, as does the amount of insulin produced by any Type 1; many type 1's still produce a small amount of insulin even after years, even decades.
Ultimately, for most LADA's our management after a few years is virtually indistinguishable from other Type 1's. You say that your LADA behaves very differently from regular Type 1; we are all different, but for most of us that is not the case. I don't even believe there is a diagnostic code for LADA,(I could be wrong about that, maybe it has been developed now) so we are all classed as Type 1; we have an autoimmune type of diabetes.

Oh, and by the way, Type 2, when you count all the ones who were misdiagnosed LADA's is only about 75% of the total Diabetes population.

Please don't be offended, I just think it's really important to put out accurate information for those who might be new and still learning.

Comment by Mike on December 1, 2012 at 11:41am

Hi Zoe

Actually, around Edmonton there aren't many, according to my Endo, and he is one of the leading Endos in Canada & in charge of the University of Alberta Endocrinology dept and a PhD. After 11 years, my lada behaves a lot differently than Type 1.....a lot of the time. Of course it is exacerbated by the psych illnesses and psych meds. LADA is distinctly different from Type 1 or 2, and is not true Type 1, possesses characteristics of 1 & 2, but is in a category of it's own. One unique characteristic of LADA is that one must possess " GAD " antibodies to be LADA. LADA also has a responsivity problem, as we still produce our own pancreatic insulin ( I still do after 11 years ) but it doesn't get released as required. Type 1's produce 0 insulin and have 0 insulin resistance. LADA's have insulin resistance similar to type 2 or higher...mine is higher due to being on antipsychotic drugs. LADA is definitely in it's own category for a reason. Many ( most ) people haven't heard of LADA because it is quite uncommon versus 1 and particularily 2,( which is about 95% of diabetics. )

 

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