I have had Type 1 Diabetes for 46 years and have recently been diagnosed with Stage III Chronic Kidney Failure (CKF). Other than the usual high and low BG's over these many years that all Diabetics who take Insulin experience, I've had very few other complications and no major ones until this surprising development. Problem is, I don't believe it. I may be deluding myself, but I just don't feel like there's anything wrong with me (other than Type 1 Diabetes, that is). I have no symptoms that would lead me to believe that my Kidney function is not up to par.

I found out about the problem by accident really. I went to see a doctor about something completely unrelated and after being passed around from one doctor to another, ended up with a Nephrologist after my labs showed irregular numbers surrounding my Kidney function. But that lab work, too, was suspect, considering that I was very dehydrated at the time the blood was drawn.

At any rate, I have to do follow up blood and urine tests next week and wonder if there's anyone out there who has had complications related to their Kidney's and if so, can they tell me anything about their experiences. What symptoms have they endured? What have they gone through? If it turns out that I really do have Stage III CKF, What should I expect?

Thank you so much for sharing your personal experience with me.

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Replies to This Discussion

I brlieve kidney numbers go down slowly. If your numbers have always been good, then chances are it is from being dehydrated. Suggest you re do the labs. Do you take an ace inhibitor for prevention over the years?

Last spring I had a bad kidney infection on top of pneumonia and possibly mono. For the kidney infection, there was serious pain in about the middle of my back, like someone was kneeing me from the inside. I've heard cranberry concentrate can help with kidneys..

rrrruff, I "second" lisa c's recommendation-- definitely redo the labs before you worry. I've been Type 1 for 33 years; my mom has been for 49 years (genetic link maybe?!) and is in Stage IV, just approved to get on the transplant list (my sister has started the process to donate). She's had labs come back indicating that she NEEDS to go on dialysis immediately, then the next round she's back to functional-- and since you WERE dehydrated, and have had no other indications, there's a good chance that the numbers were wonky. (I've had a lab showing protein in my urine, and never had it appear again!) Mom would tell you that fatigue is her biggest symptom, and she experiences some nausea (although she also has gatroparesis)-- her nephrologist has had people on less than 20% kidney function for years, too (I wish I could tell you more about the drugs mom is taking, but I know treatment is very good compared to what it was not too long ago. I know she takes a diuretic, and she limits proteins and avoids foods that are high in potassium-- bananas, orange juice, etc.).

Please let us know how you're doing. I will be thinking about you-- hoping that you find that it was "nothing!"

I know it is *very important* to keep a close eye on your kidney function tests! My mom's varied for 1 1/2 years, but ultimately, she required dialysis for 9 months. She got a transplant last year and her kidney function still varies--depending on how much liquid she drinks. She needs a weekly infusion of fluid to help her transplanted kidney stay "well."

rrruff , I had kidney failure that lasted probably ten or more years- no symptoms, just knew from lab work> For me the k failure was very gradual. Find out what your k function is and keep track of it and follow all kidney saving advice. Nothing else you can do. I'm hoping good outcomes for You.

Very warm regards




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