Replies to This Discussion

Permalink Reply by Abbey on September 19, 2010 at 4:22pm

It sounds like your doctor isn't listening to YOU. I'm a type 1 with a insulin pump and cgms and I have just changed endo's for the same reason as you, my endo wasn't listening to me. It has been a satisfactory decision and my A1c is now down from 7.0 to 6.0.

Also, I would highly recommend going to Children's Memorial Hosptial. I am an employee of Children's and know first hand how the physicians put the kids first. I know it would be a bit of a hike for you, but it's worth it.

Good luck!

Permalink Reply by Kathy on September 19, 2010 at 11:50pm

Thanks Abbey, I currently go to Luthern General. I do get weekly BS follow-ups and calls from the nurse the day I send in his weekly sheet. If I don't get the results today I am looking for I will look into Children's. I don't mind the drive. I already drive over an hour to get to Luthern in Park Ridge.

Permalink Reply by Abbey on September 20, 2010 at 1:14pm

How did it go?

Permalink Reply by Kathy on September 20, 2010 at 6:43pm

Well, we had a good visit. She said we could start with the pump process and continued to tell my son a few things he really already knew. They he said "I don't think I am ready"!!! OMG! I about fell off my chair. We (him, I, his Dad) been talking about wanting to do this since March 10...now all the sudden he says this. He has never said that to me. In fact, he kept asking my when we were changing Dr.'s so he could go on the pump. Go figure, you think you know your kids. I think the whole "wearing it all the time" worries him. He also worries about going low at night even though he always runs high at night time after 2:00 AM. I said he was worried about being connected to it all night and getting too much insulin. We are going to keep doing the pen and try hard to get his A1C down. He was 8.2. We are changing his Lantus from AM to PM to see if it keeps him down at night time. Thanks Abbey for your help and interest. I read your blog on how you got your A1C down and am moviated to get him exercising more.

Permalink Reply by Abbey on September 21, 2010 at 11:20am

Hi Kathy!

Ah! I can't believe he said he doesn't want it! Stage fright. I remember when I first got my pump the thing that worried me the most was that it made diabetes so visable. I'm sure he will let you know when he is ready.

I'm glad it went well with the endo and that she listened to you and your family. I have found that it is so important and gratifying to have an endo that listens to you.

Thanks for reading my blog! The last six months have been transforming for me.

Permalink Reply by Kathy on September 22, 2010 at 3:34pm

Abbey, thanks for your support. Its nice. I was so shocked, but he does like to keep his diabetes invisable. The Dr. talked to me also about kids his age and how when it is "on" them, it does become less of my handling. Kids will say they dosed themselves or will dose themselves, then forget or just don't do it. I guess I can see that happening too. But I do want him to become more responsible for himself, but he is only 11. He is out excerising right now!!

Permalink Reply by stacey on September 19, 2010 at 6:56pm

i would switch dr.s or i would just tell this dr. you want him on the pump and if the dr does not put him on it i would call ur insurance and report this dr. every time you go in the office you should see the dr everytime. i go to the dr. every 3 months and i see him not nobody else. i got my pump 6 months after i found out i had diabetes and i just love my pump i dont know what i would do without it now. i know ur son will love it good luck

Permalink Reply by Michelle Hughes on September 20, 2010 at 6:35am

Well, tell her the benefits to him having the insulin pump. Sounds like she doesn't want to do it because he is young. Your son needs to tell her the benefits to him having the pump. Sometimes they need to see it in black and white. I told me doctor I wanted it and was tired of all the shots. I wanted level readings vice ups and downs. I wanted to live a long life and be active, and with the pump I am. Tell the doctor he has been to the classes, and insurance has approved it. I dont know what her trouble is, but you pay her for her services, and if she is not doing her job to her best ability for your son, then I would try to find another. Check with the pump provider on who they use as referreals for their doctors. I use medtronic and this is how my found my doctor. Good luck. Keep me posted. I am originally for Chicago South Side.

Permalink Reply by Sourab on September 20, 2010 at 9:04am

im a T1 diabetic , im 14 and have been using the pump for 4 years , i guess its better if u change your doctor , instead of waiting. =)

Permalink Reply by Nikki on September 24, 2010 at 11:26am

if you son's doctor is holding off find yourself another endocronologist. I had the same problem and changed doctors he waited to see my sugar level patterns and tried lantus finally after a few months he prescribed the pump and so far so good. my average the minimed says is 150 bg and I just started pumping Tuesday already seeing significant change. my aic was 7.8 before the pump. good luck and don't give up.

Permalink Reply by Leah D. Rogers on October 6, 2010 at 9:16pm

Please take this as it is meant....a gentle push to get the best treatment for you son. You ask "what do I do"...well.....you take control and do what a parent MUST do! You do what you know is best for your precious son. You immediately get a new doctor that will have your son's best interest at heart....not her "easiest work load" at heart. My daughter was diagnosed at 8 years old, she was on shots for 45 days and on the pump the 46th. People ask me "how did she get on the pump so fast", it's because she has a persistant mom who gets things done when they need to be done. Don't be a spectator with respect to your son's treatment. I haven't read all of the comments to your post yet...maybe he is pumping by now. I have so many thoughts about your post.....seeing a "nurse"...are you kidding me? Yes, nurses can and are very important, but if you have you son going to see a ped. endo.....then you see the PED ENDO! Good luck. I know that you are doing a wonderful job and keep it up. It's just that I want for you to PUSH HARD when you need to and never be apprehensive about "questioning" others. Good luck! Leah

Permalink Reply by dep on October 7, 2010 at 5:48pm

It took a total of 2 weeks from when I FIRST asked my Dr to Rx a pump and when it arrived at my house. I can give you the name of the Dr but she is in Gurnee, IL and is a general family Dr. Still, you don't really need any special skills to Rx a pump or learn to use it IMO.

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