Replies to This Discussion

Permalink Reply by Betsy Whitehead on October 8, 2010 at 9:49am

I would find another doctor for sure. It sounds like he could also use a CGM, long or short term, to see when his BS is rising. That's exactly what happened to me. BS at bedtime would be normal and when I got up it was always in the mid to high 200 range. Doctor added CGM to my pump and we discovered it was shooting up at 2:30 in the a.m. My daytime numbers were manageable but I had no clue they were skyrocketing at 2-3 am! This disease does not necessarily get better with age so the more you can do now to prevent further complications, I say go for it! Find a CDE in your area or call Medtronic or the pump company of your choice. They will assist you in finding a provider. Good luck! (P.S. your son will LOVE pumping!)

Permalink Reply by Kathy on October 9, 2010 at 11:54am

Thanks all for your input. I found it all very helpful. In the mean time, we had our quarterly Dr. visit (with the Dr.) She said I know you are ready to go on the pump and we are going to get started with that. After she talked to my son for a short while about it (and he knows all about it already, has seen one, knows I was close to changing Drs., etc...He says 'I really don't think I am ready" I was shocked!!! The Dr. told me that some kids do this when it gets right down to it. I think he is concerned about having it on him all the time. She said we can wait. He needs to be ready. He now is telling me that on the next visit he thinks he will be ready.

Permalink Reply by robydobydo on November 3, 2010 at 6:51am

yes .
my doctor and clinic were afraid of pump technology.
That is my opinion.
left clinic and sought new doctor.
The pump providers should be able to help with suggesting a new doctor etc.
i have been on insulin since i was 5 yrs old that is 1958.
lots of changes and the pump is the best.
your son is thinking lioke me the unknown.
once he is hooked up he won,t look back.
tell him from me.
I was apprehensive to.

Permalink Reply by Trudy on November 3, 2010 at 7:14am

Perhaps if your son took his Lantus in two shots he could eliminate the night time low. Lantus really does have a peak, so taking it in a split dose reduces that one shot peak. Levemir requires a split dose, but has an even smaller peak. (There are personal preferences on these two long lasting insulins, but a much, much prefer Levemir.) Pumps are better yet, but going to a split dose for the long lasting could really help before he gets to the pump stage.

Permalink Reply by packrat on November 3, 2010 at 5:18pm

Do not be in a rush to start on a pump, your son has a lot to learn first about diabetes. I was was on multiple daily injections {MDI} for more than 45 years, I am on the pump now but only for two years, I am 68 years old, I did the pump school on line. Maybe he would like to start with the on line pump school..?? regards packrat

Permalink Reply by Nancy on November 7, 2010 at 5:36pm

MY son was 10 when he was diagnosed in June of 2005. 6 months later he was using the pump. I went into pumping rather naively which may have been good. The pump is great but only as great as the info that you put into it. Which means it takes alot of adjusting initially. I love it that my son can go anywhere and have his insulin "on board". He hates changing sites and does not like to do it himself. (he is 15 now and I am working hard to make him more Independent where this is concerned) . He has a friend that was diagnosed about 2 years ago and wants nothing to do with a pump. He prefers the shots and insulin pen. I am glad we made the
switch when we did but it is time consuming initially. If he truely hates it, you can switch back to shots and lantus. Good luck with whatever you decide.

Permalink Reply by Kathy on December 6, 2010 at 4:10am

Trudy thanks for your reply regarding the pump and Lantus. Yes, I have tried moving his Lantus from AM to PM and even split it in two shots like you suggested and Jason still wakes high.

I have gone back to giving his Lantus in AM because of no changes and our routine is pretty constant in the morning.

We go back to the endo next week.

Permalink Reply by Trudy on December 6, 2010 at 4:17am

There must be an answer to Jason's problem. Perhaps your endo can help you find it. I've really been lucky with my doctors and CDE in helping me solve problems, which do seem to keep popping up. Best luck.

Permalink Reply by Jessica on December 11, 2010 at 10:47pm

Hi!!  I was diagnosed at age 12 and did injections for 6 years.  I also really wanted a pump and had a doctor who kept telling me "not yet, not yet" He said he wanted me to have better control before I could go on the pump..??!!  Weird, right?  I switched from a pediatric endo to an adult endo when I turned 18 and the FIRST thing he did was immediately get me on a pump.  My A1C was also in the mid-8's pre pumping and dropped almost 2 full percentage points in the first couple months after I started pumping. It was great for me in so many ways (aside from my A1C dropping so much which was awesome).  I've always been very active, and having the pump helped a lot with exercise and also helped me have a more "normal" life, which is important as a teenager.  I would definitely consider switching doctors if your current one will not accomodate your request for at least trying a pump.  I've had a few bad doctors and a few great doctors in the past 16 yrs with diabetes and always wish I had not stayed with the bad ones as long as I did.

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