I am familiar with Lucille Packard / Stanford's Diabetes Care Management Team in dealing with my duaghter's diabetes. I would like to hear feed back from other Diabetics or parents of diabetic who have had experience with the various management teams in the SF Bay area of Monterey Bay areas. I have fond the Mds and counselors very friendly and helpful but as far as responding to emails or phone call, ...... not so much! I occacionally download my duaghter's pump info via Carelink and then send an email and leave a voice mail asking for feedback on the previous 2 weeks info. I frequently do not receive a call back or email. In order to get feedback I need to hound them in order to get a call back. I am not sure if I need to ween myself off the Diabetes Managment Team and just make the changes on my own. What does everbody else do?

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I do all my own management/dosage changes. I just use my Primary Care Doctor to write prescriptions. If I have something I can't figure out I post it here. I was living in Guatemala when I realized I was a Type 1, not Type 2. I did make an appointment with an endo who was helpful, but she e-mailed me after she got test results and when I e-mailed back asking more specific questions she had left for vacation. So I just read Using Insulin by John Walsh and if I had a question just posted it here. So I started self management from the beginning. I don't currently have an endo but if I ran into a major obstacle I couldn't figure out I'd get one. But I know having a child with diabetes is different. It is in fact a rare doctor or endo who responds as we would like to e-mail or phone. Perhaps until you get her stable on her regimen (I'm assuming she is recently diagnosed), you might just have to make more frequent appointments.
Hi there. I have been a T1 for about a year, I take care of myself and my needs on my own. New too all this, I went with a recommendation from an ER doctor that took care of me in hospital and have been with Melissa Weinberg at Sutter in San Francisco for about a year. She is young, very sharp, not like other doctors in our system that seem to be protocol driven and try to box you into a standard approach. She comes to appointments very prepared, spends a ton of time with you, extremely well educated (see her bio) and up to date with care, research and really just "humanizes" the relationship. The whole staff there is just over the top, professional, attentive and caring. Her PA, Corrie, is just the icing on the cake, very similar in her approach, smart, professional, caring, very knowledgeable and this team answers every email, every question and I feel like I am lucky to have "stumbled" across them. You can find her at the link below or just google her and she will pop up. You can certainly email me within the site here if you have more questions for me. Chris

I did looked at her website and she does look and from what you say is very thoughtful person. That is what a good diabetes person looks for when one is a diabetes! How lucky you are. One other problem I and other face here in the central valley is health pros who live and work here is that they do not want to be here at all. It seems like when ever we need a operation of some kind we get throw out to San Fransico or elsewhere in the bay area.
Much of this decision rests upon how comfortable you are making adjustments. Nowadays I pretty much make my own dosing and modification decisions. I still run things past my endo if I am trying anything radical but with experience you're probably able to make sound judgments.
I to find that diabetic care is not so easy to find and when u do they want to treat you like a child who needs to do as they say and not to question the rules that have been set up for you or whoever you are taking care of. I find that if u can read and are simple mind you can manage your self very well. I have been doing myself for around twenty years now and now I have to take care of my wife to.My wife takes two insulins Novolog and Lantus ,I use them like in the morning depending on her first readings I will give her Novolog and again later Novolog. at night I use Lantus ,Lantus works good to keep her stable and even all night long. But because she is Insulin depended it is very hard to keep her blood sugars like a normal diabetic which is from 90 to 110 hers is around 130 to 190 or somewhere in between. Once in a while you can find a good care team,but I have't found a good one as of yet!




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