Replies to This Discussion

Permalink Reply by NatalieHodge on December 25, 2012 at 4:18pm

Thanks! Wow you are a t1 endO! I understand what you are saying, I seem to b more uP On the artificial pancreas stuf than they are! And it's Vanderbilt for god sake! I am a pediatrician, and having my own child with t1 has really thrown me for a looP, I love this concept of an ap to create data driven decisions based upon pump info, we would need API (programming interface development ) from dex and Omnipod, (which they will never do because of their business models) and then algorhythmic predictions of improved settings... I did enjoy his poster research also!!

Permalink Reply by jbowler on December 25, 2012 at 8:37pm

If you access the tool via opensourcediabtes.org:

http://opensourcediabetes.org/

the disclaimer actually requires you to state that:

"I AGREE THAT I WILL NOT CHANGE ANY OF MY PUMP SETTINGS OR INSULIN DOSES UNTIL I DISCUSS THEM WITH AND GET APPROVAL FOR THESE CHANGES FROM MY PHYSICIAN."

(Scare quotes from me but ridiculous capital letters from them.) The best two physicians I've dealt with (one a T1 endocrinologist in the UK, one a simply wise family doctor in Oregon) know well enough never to tell a T1 what to do.

It's really not that we know best, it's simply that it is our life to do with as we choose.

John Bowler

Permalink Reply by Biedronk on December 25, 2012 at 4:50pm

Artificial pancreas is very exciting. In Portland they are quite far in the project. Apparently FDA have approved this year some project letting the project advance further. I know that they are doing some inpatient testing of system. For me it is a bit difficult to imagine. I will have a hard time giving up the control and trusting insulin delivery to the device. I am fully aware that this could be the argument against pump use in the past. :-)
It is amazing how many advances in diabetes management we are enjoying, starting with Banting and, ability to check bs with strips, and now pumps, sensors, .... I am very thankful for all the time and energy people continue to put in treatment of T1.

Permalink Reply by NatalieHodge on December 25, 2012 at 5:41pm

I'm so thankful too! I talked to a lead investigator at UVA about their ap studies they are doing 12 to 18, pod and dex, and the algorithm runs through an android phone... I think they do two days in a hotel or something like that!! I'll dig up the pic for you... They are not sure about commercializing and the university has a hand in the equity, sO they may do tech transfer...

Permalink Reply by jbowler on December 25, 2012 at 8:44pm

Dexcom didn't work for me, I sent it back and disputed the charge (on my credit card, my insurer didn't give a damn). Not a single one of the Dexcom devices lasted the stated time, Dexcom agreed to replace every one I had, and the readings compared to blood tests showed no agreement (correlation maybe, but no agreement.)

The reports are that other CGMs are better, but they have been discontinued in the US because of patent issues.

John Bowler

Permalink Reply by Biedronk on December 25, 2012 at 10:36pm

I had bad experience with old DEXCOM and minimed sensor. I have been using the new Generation 4 DEXCOM since November, a huge difference. The accuracy is superb! It is such a nice surprise.

Permalink Reply by NatalieHodge on December 26, 2012 at 9:00am

Great to hear! We just got dex four for kennedy, she has very little fat, so I'm just hoping its comfortable to wear, wish us luck!!

Permalink Reply by Scott Wilkins on December 25, 2012 at 5:17pm

Wow, the calculations I got were a complete change. I wouldn't use it.

My original thought was that in diabetes, science, politics etc etc there's always another "expert" with an opinion. I'd rather use the averaged opinion of many rather than just one person's opinion. Much safer that way it seems to me. I took my doctor's original settings and then called Insulet to get their suggestions. They were almost identical. And, have worked since day 1. My BG's would be in the 500's using Mr Walsh's idea of settings for me.

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