So I had to go to a hospital in another town to see this doctor, semi retired. and when I read his report from my previous visit, he has that I am generously overweight and that I am type 2 diabetic on insulin. Well one I was not over weight when I was diagnosed in 2000 as a type 1 diabetic and 2 I think that a doctor should not guess these kind of things. I started to think if that was written that could effect my eligibility for my pump could it not? so I explained to him that he had made a mistake, he said have you had this since childhood? I said no but I am an adult with type 1, he said no child has type 1 adult's type 2 does not matter type 1 or 2 we treat the same when on insulin, tried to carry this further but nope he changed the subject. no I am shoked by this. does anyone else have/had this issue where the Dr. is in the dark ages. he retires in two days but his report won't.
what does one do.

Views: 253

Replies to This Discussion

First, find a better doctor, preferably an endocrinologist who is familiar with adult onset type 1 diabetes. Ask that doctor to evaluate you thoroughly for the type of diabetes you have.

And don't panic, most insurance companies allow for type 2 diabetics if the clinical data is there. Any doctor worth your time will make sure they have the clinical data to back the decision up. A good place to start is with a fasting glucose and c-peptide. These will help determine if and how much insulin your body produces.

The last thing is - don't panic. Even if an insurance company denies you, you have the right to appeal their decision. Don't hesitate to appeal and or utilize business complaint reporting agencies such as the Better Business Bureau. I used them when my insurance turned me down for a surgery I badly needed, saying it was experimental. Never mind that the surgery has been in existence for over 60 years. I filed a complaint with better business and suddenly had an advocate at the insurance company instead of having to deal with their "support" line. Worked out really well.

Find a new doc and don't transfer reports.

Yes. You must go to an endocrinologist. I found many general practitioners do not know much about Diabetes. I was lucky that my primary care physician was honorable enough to recommend the best endocrinologist for Diabetes in New Jersey. I was diagnosed with Type 1 diabetes when I was 57 due to pancreatitis and Medicare approves every pump except the OmniPod because they say it's a luxury. I'm in the process of purchasing a different pump... Tandem. I'm not thrilled about it but I have no choice. Good Luck.

Misdiagnosis is widespread and unconscionable. I have inveighed against it at length elsewhere so I won't repeat it here. The traditional belief that "only children get T1 and only adults get T2" is very deeply entrenched, but this is the second decade of the 21st century and we know better. That sort of ignorance (or stubbornness) skates very close to the malpractice line, IMHOP. No excuse is acceptable.

You must get a correct diagnosis and your chances of that are enormously greater with an endo. And yes, it can have insurance implications. Serious ones. Just to pluck one example out of the air, it's very, very hard to convince most insurance companies to cover a CGM for a T2. It's possible but insanely difficult. The diagnosis really matters.

Exactly David and I just signed a petition for Medicare to approve the CGM along with many people on my Facebook page. They label it a "luxury"... hmmmmm a luxury that saves lives. Doesn't quite make any sense.

I do have a very good endo. this guy I was sent to from my naturalpath doctor due to my pain and they do not know what to do. all my doctors are passing me to someone else as they do not know what to do but keep me on pain killers which is not enogh for me. I need to know why I have this pain and what to do about it now. so I got sent to this guy as I ended up with severe hypothyroidism. so not to worry he is not my regular doctor and he retires in 2 days I just thought how ignorant and if those papers got out and being untrue. well I might have to start over or show them all my blood work.

Sorry you're having to deal with this. The medical system has enough hoops they make you jump through without having to pile on this kind of nonsense. Good luck navigating the minefield! We're pulling for you. :)

Dear Lord!! 1) You need to dump this doctor,
and 2) You need to report him.....regardless of the fact that he is semi retired, this amounts to malpractice!

I agree with both of you david, and Linda. Was not ther for my Diabetes but he had to put in the report that I was, then we have a debate about it, and his reply at the end was lets keep things simple. I decided to bite my tongue before I made a huge scene or put him through the wall. not a good thing to argue with someone in pain. I just did not have any energy left to figh him on it. I will however be discussing this with the doc that sent me to him that is recieving these reports.




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service