Replies to This Discussion

Permalink Reply by Brad Ringer on July 23, 2010 at 3:55pm

Yea, she freaked out when she couldn't wake me up. I was all sweaty, so she knew what the problem was and called for help.

My worst was when I was on a business trip dining alone, and woke up face down on the table. Another diner was sitting across from me; no one from the restaurant. That was when I was on MDI and no CGM. I ended up in the ER until 4:00 AM despite their telling me I would be able to leave by midnight. Made for an interesting day at work the next day.

Permalink Reply by Steve D on July 23, 2010 at 5:52pm

Brad -

what did the person who was sitting accross from you say? NOone from the wait staff said anything? Not even "so....I take it you dont want a doogy bag?"

Permalink Reply by SF Pete on August 18, 2010 at 4:17pm

Well, I need to revise my statement about never losing consciousness and needing EMT assistance. On Sunday I got me a visit from the EMTs and a ride to the hospital. My BG was 25. I knew I shouldn't have said "I've never lost consciousness" -- it would have been better if I had dropped like a rock. Apparently, I was a bit unruly. My Dexcom never once sounded an alarm. At one point during the event I tore the sensor right off. It took me half an hour to find it the next day. Ugh.

Permalink Reply by FHS on August 18, 2010 at 5:47pm

Wow, sorry to hear that Pete. =/

Glad you are ok.

Permalink Reply by Steve D on August 19, 2010 at 8:27am

Oh, god, sorry bro! Where were you? Was it in the middle of the night? (always more disconcerting, when you wake and have no idea who or where you are...and who are all these people?) I also get a little angry when I am below 30...and tear off my pod, my sensors, tear up magazines and newspapers, try to kill the dog...etc.etc.etc. fortunately, my wife knows all the early signs of this coming on (the dog does too!) and they both let me know it is time to take a blood reading, and remedy what is about to happen. (In that way...I consider myself fortunate). I hope all is well npw, and this will be the last of it for you!

Permalink Reply by Steve D on July 22, 2010 at 3:41pm

Troy -
WOW, you are the second T1 I have ever heard of that had the Pancreas transplant and rejected it! The other is someone (one of my TU friends) who has posted her story on my site: http://www.supportersofsurvivors.com check it out....it's eeerie that I have heard these stories so close in time! She also went 2 years with it, then "out of the blue" rejected it! I was supposed to go in for one a month ago, my wife talked me out of it when she read about adverse reactions to immunosuppressants, and I concurred and called it off. (seems like I made the right decision)! God Bless and PEACE!

Permalink Reply by Denise Ventura on July 22, 2010 at 7:52pm

From experience--- It may not be the Omnipod-- it might be the insulin!! One time, when I was on minimed's pump, it was Halloween, my kid's preschool had this parent/kid halloween partyand here I came feeling high BS all day and it wouldn't come down-- i was str8 sick that whole party-- went home, fell on the floor, my husband had to carry me in the bed, i was sweating, getting leg cramps and in the meantime, kept pumping that insulin, began to give injections too.. even my mom drove 2 hours from her house to spend the night- she was so worried.. finally the next morning, it was time to refill the insulin pump since I finished it by dosing so many times the day before-- i changed insulin bottles- and like night 'n day- my BS was completely back to normal... it was something about that Eli Lilly insulin bottle- it was as if they accidentally bottled a saline solution..

that was the worst diabetic experience I had ever had!!!

Permalink Reply by PodMom on July 22, 2010 at 9:19pm

My son has been on the Pod for just about a month now and we are nearly convinced we are going back to the shots. It dislodges at the least bump, it fails for no reason at all (we did 3 changes in one day) and he is tired of worrying about whether it is actually working or not. He's 11 years old and scared to death he will go to sleep and never wake up. The troubles we have had with this thing are not making his confidence increase at all.We are also losing a lot of insulin with all of the unscheduled changes. Salvaging the insulin seems like a good idea but I'm not sure that it didn't cause one of the failures. We are both very frustrated.

Permalink Reply by Andy Mayshar on July 30, 2010 at 7:17pm

I've been a Type 1 for 55 years since I was 4. I was also Insulet's first commercial customer and have used about 1000 pods in just under 5 years on it. I was on a MM715 before the Pod. I love the Pod and would never go back to either a conventional pump or MDI.

Sure there are a few failures and problems, but very few. I think you need to reassure your son that he will be fine in the morning. (even if the pod fails, which it very rarely does). Kids pick up their parents feelings so it is very important the attitude you show is always positive (even when you are concerned)

Also this list is in many ways, comprised of the very small select group of Type 1 diabetics who are quite fanatical in the amount of effort they put into controlling their diabetes. Many many people, in fact most achieve fine control with much less effort (me for one). ::-) Andy

Permalink Reply by MaiaJane on July 30, 2010 at 11:45pm

in addition, a pod falling off in the night will probably not result in never waking up in the morning...
you should check out the options for coban wraps to help keep the pod on his arms, and skin-tac to help the adhesive overall... I find that my pods are significantly less likely to dislodge when I've got it stuck on good and well and when its strapped to my arm with a coban wrap!

Permalink Reply by SANTI on July 23, 2010 at 11:06am

Hi Lori, just wanted to share my experinece with the Pod. My 3 yr old boy has had the pod for almost a year now. Yes, there have been complications (high readings, oclusions, malfuntions). In a year time, these sum up to 5-10 times at the most. The rest of the time, the Omnipod has worked fine, meaning it has delivered the insulin, not getting clogged or stopped working.

I think after the 4th or 5th month of using the pod is when we really started taking advantage of all its features. There are tricks you need to learn -- we're still learning more--, so research this site to learn them. We apply some of them AFTER discussing them with our ENDO. Give it a little more time to learn about sites, prebolus before placing a new pod, using alcohol, neosporene, rotation of sites, insulin temperature, type of insulin, etc, etc. Customer service has helped us a lot, but even more the suggestions learned here at tudiabetes... Best of luck.

Permalink Reply by Clothes Horse on July 24, 2010 at 12:59pm

I have been on Onmipod for about 2 months now and had some of the high issues. Your diabetes educator should be more helpful and I would keep calling or go through the doctor. I had to change my insulin to Apidra and that has helped me tremendoulsy. Evidently some insuslin can clog in the cannula??? I also have to watch my placement because for some unknown reason, my cannula wasn't going in. Ask your diabetes edu about that too. My Omnipod sales rep told me they are looking in to lengthening it. The convenience of the pod system has been worth my trouble but it is a bit frustrating but then this is my first pump. Stay with it.

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