I am giving up the Omnipod. Omnipod lovers please skip this discussion

I asked that those who love the omnipod not to read this because I know how defensive people get about their pods and I truly need advice and don't want to be bashed and blamed for the lack of success I have had. I am also not bashing the Omnipod system- just sharing my experience and disappointment. I really need help. Thank you. I think it's great that some of you have great success with the system, but I haven't.

I have been on the Omnipod for 3.5 years and it's been a tough journey. I had it working well on and off and when it did it was amazing. The last 6 months have been horrible. I have a 30% failure rate during priming. Here and there I'll have only one pod fail out of a box of ten- 10% rate. They also fail while I am wearing them. The PDM also has failed three times in a year. It's not user error. I have had reps, technicians, and my doctor all confirm that I am doing everything right. I've had a few months go by and everything was great. Then with no change in diet, exercise, or application the pods go bad and malfunction left and right. Yesterday customer service told me that the pods may be expiring even though there is more than a year left until the expiration date. They also said they have had quality control issues in the past and maybe I have old pods from that time period. My A1C has gone from 5.9 to 8.1 incrementally. 5.9 was on MDI

So I have to give it up and am very nervous. It was my first pump in 23 years of having diabetes. Now I am going all the way and getting a tubed pump and don't know what to expect and feel very depressed about it. The thought of being tethered to a tube makes me feel like I am a sick person when I have always maintained a positive attitude about having diabetes and not made it who I am, just something I have. I love the freedom of the Omnipod and the idea of it is brilliant. it just hasn't been reliable for me. I am so amazed and impressed how many people here get it to work so well. I try so hard and just don't understand it.

so I am writing to find out what to expect. Those of you who have gone from a tubed pump to the Omnipod- can you help me understand what I am going to experience? What to prepare for? Has anyone else gotten to where I am with the Omnipod? Anyone else close? I am really scared about the insertions of the cannula. I hear they hurt a lot more than the pods. Is that true? How much is my life going to change?
Thank you so much.

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Replies to This Discussion

I read this anyway in spite of your admonishment. You owe allegience to yourself...not any particular product. This was my first experience with an insulin pump as well. I had narrowed my choices to the Ping or the OmniPod. I chose the OmniPod because of the freedom from tubing--I have a frisky little Bichon who loves her "Mommy".

No bashing here...just well wishes with your next pumping experience.
Thanks Janice. I too chose the omnipod because I have 4 dogs and a child. Also was very iffy about being tethered to tubing. I am crestfallen that it hasn't worked out and very nervous about my decision.
I was trying to send you a private message but can only do so if we are friends? I wanted to share something with you. Thanks
I had a bad batch of pods a while back - seems like at least half the box failed during priming. I was pregnant at the time and FURIOUS with the whole shenanigans. If that rate of failure had continued, I'd seriously consider a different pump too.

I'm still waiting for Roche to release their new tube-free pump. Hopefully in the next year or two! Good luck back on MDI.
Thanks Julie. I am going to go on a Revel pump. Very nervous about a tubed pump but I have had to give myself shots over the last few weeks because of the problems with the Omnipod and yikes! I don't know how i did it for 23 years.

That must have been awful having so many bad pods while pregnant!
I too have had issues with the PDM failing and the pods failing as well. I have been on the OmniPod since April 2010 and they have replaced my PDM 10 times because of communication issues. The past month, I have had better luck with the pods, only having one fail, but over the past year I have experienced a 40% to 50% failure rate, and it was not user error. I am waiting for Roche to release their tubeless pump as well.
This is absolutely my experience. Thank you for replying. I don't know about the Roche pump. I am going to go look it up right now. i am so worried I will make a switch to a tubed pump and then a new tubeless will come out and I will be stuck with something I am not happy with. but I have been putting off switching now for almost a year- maybe more and just don't know how long I can wait.
I am not sure when it will be coming out. Insulet Corp has been very helpful with all of the issues that I have had. The program manager knows my name. That is how often I call. I am tired of all of the issues, but at the same time, I know that the other options are not for me (tubing or over a dozen shots a day).
yes they have been helpful with me as well and I can't imagine going back to shots. I feel stuck
One thing that has helped me is that I started using the Dexcom Seven CGM about a month ago. So if my pod is not functioning like it should, I can see the shift in my glucose levels and adjust as necessary.
yes I was waiting all last year for the promised integrated one for the Omnipod and when that fell through I considered buying one. Now I am looking at a pump that has one with it and it seems like the perfect system except for the tubing which is a HUGE thing.
Tubing is a big deal. Someone I used to work with, moved over to pods from her pump that has tubing in it. She complained that if she went swimming or showered, she had to remember to disconnect it. I would ask the local rep if you could have a trial to see how it would feel to wear the tubing.




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