My son, 14, is having a lot of problems with the Dawn Phenomenon and his endo. said that the only way to prevent this (as we've already tried splitting his Lantus) is for him to go on a pump. HE really wants the OmniPod, but I have heard mixed reviews about them. 1.) I've heard that they just shut off (and stop delivering insulin) quite often. 2.) I've heard that they "scream"/alarm a lot if there is a problem. 3.) There is almost always a bad pod in every box. And 4.) You can't place them in as many areas as a tubed pumped for good absorption. I would love to hear your input on these issues. BIG THANKS!!!
OK - I know this is totally unrelated - but for those of you that have kids with small toys - I have been opening up the pods before I throw them away and have collected hundreds of batteries that fit many of my kids smaller toys. This size battey is expensive and hey - never hurts to save a buck. :)
Hi We're trying to decide on a pump & its a complex decision for us. I really liked the Omnipod for my 14 year old son too. Our Endo team is not offering it as a recommendation/choice with them because of prior poor experiences. Which makes our decision a bit easier as Omnipod isnt really an option with this team. However, I'm looking on this site today for other people's experiences as well. Its a tough decision on which pump to choose.
When I inquired at our endos office, they told me they didn't have a lot of patients who were using the pod, but they didn't try to discourage us either. They left the choice up to us and have been very supportive. However, the initial pump class that we went to was very heavily geared toward the tubed pumps.
My son is 16 and very active. He wouldn't consider a tubed pump. Good Luck!!
I wouldn't allow my endo's office to determine which pump we chose. I allowed my son to choose. Most pumps, from what I've heard, will give you a trial period anyway. I think the excuse of "prior poor experience" is a lame excuse from people who aren't willing to try something new. There are plenty of satisfied pod users. If my endo didn't think what I had researched as the best option for my kid, we would be looking for a new endo. I am very aware that the pod isn't the best for everyone, but that should be the patient's choice in my opinion.
That makes me quite sad. I pushed back when my specialist recommended a pump simply BECAUSE I hadn't explored my options and was unaware that a tubeless pump existed. The moment I found out about OmniPod, I signed up and my specialist's team has always been fully supportive.
It seems to me that any team supporting your son should look first to him and his choices because as you'll read on this site, everyone is different and reacts differently to tubed/tubeless pumps.
I understand it is a tough decision, especially since you haven't made such a decision before and want the best for your son. However, in my humble opinion all pumps are "good" because otherwise they wouldn't have been approved. Neither in the US nor in Europe. Now the question is what sort of pump fits your son's lifestyle best and, considering his age, makes him most comfortable with "the boys and girls" now and in the near future. I myself think Omnipod is the least invasive device of them all. But that's my personal opinion. I don't know what "poor experiences" your team is refering to, but on this forum you will find many enthusiastic "Podders". They can't be all wrong. I would say if it's really your son's preference: give it a try. As far as the Endo is concerned: time has moved on, so have the pods.
I wouldn't be comfortable with a vague reason for excluding a possible solution that may have some benefits over others. I'd very much want details about those prior poor experiences.
I guess we should be thankful at how supportive my son's endo. is. She gave us a list of all the pump options with a breakdown of what each offered. When we wanted to go with the Dexcom CGM she had no other patients using it (since it is not approved/made for pediatric patients) but said she would support us and we would go through the process together.
** Also, I posted this thread/post on the other pump groups (Minimed, Animas) to get their opinions on each of the pumps if you want to take a look at their responses. We are in the same boat as you and from ALL the wonderful responses I received from ALL the different pump users I have to say that we've decided on the OmniPod. Good luck in YOUR decision. :)
Just to echo what others have said--I'd get a new endo (assuming you don't live in a very isolated area where the next endo is 200 miles away or something). Anyone who limits my decisions (or who doesn't offer me the full range of possibilities) in my diabetes management is not someone I want helping me manage my diabetes.
As mentioned before, each pump has pros and cons, and so some do not fit the lifestyle of the individual (or the family) using the device. But not even being able to assess whether any particular device would be the 'bet fit' or not is an unfortunate situation.