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Comment by SuFu, Ph.D. on July 6, 2012 at 8:40am

Nothing so far on my end either. I just emailed the coordinator so we'll see if anything comes from that.

Comment by lindanu on June 7, 2012 at 9:02am

No, they have not said anything about following up with him. Gosh i wish he could get another dose, I swear it made a difference. Last year at this time he was taking about 6 units of humulog per day.

Comment by samsmom on June 5, 2012 at 5:07pm

Haven't heard anything yet. Do they plan to follow up with him at all?

Comment by lindanu on June 5, 2012 at 10:50am

Just got a call from our endo. Study is unblinded. Reece did get the drug. Anyone else hear?

Comment by samsmom on February 11, 2012 at 10:53am

This drug, otelixizumab, has been used in trials in Europe also. Our trial here is ending because the research shows it didn't perform as expected. The hope was that it would extend the "honeymoon" phase where the Type 1 patient is still producing some of their own insulin. There are similar drugs currently in trials. If you google otelixizumab, you'll see the related news. Another drug tried this way is teplizumab. I see a lot of research focusing on the honeymoon phase, or stopping the body's autoimmune attack. The thing about these trials is that you have to sign up right after diagnosis.

Comment by NICKOLE on February 10, 2012 at 1:35pm

Hi, iam in England.....My friend lives in Romania. In my country is not a lot of information about this drug.

Comment by samsmom on February 7, 2012 at 4:23pm

Nickole, we're talking about a drug tested in a clinical trial here in the U.S. Where are you? You can check for drug trials online -- or try contacting a diabetes organization where you are for information.

Comment by NICKOLE on February 7, 2012 at 4:28am

Hello, how can my friend trye that medicine? They know in my country about this but they dont do nothing...the dr just they give a diet to the boy and that it.They dont care what is next they just shut the eye.

Comment by lindanu on January 17, 2012 at 3:44am

we got the letter which says it officially ends in March 2012. It doesn't mention telling us, but i'm sure they will. I think my endo considers very little insulin a honeymoon.

Comment by samsmom on January 16, 2012 at 5:03pm

Just got back from our trial check-up. Dr said they have results showing that there is no difference between the drug group and the control group. He said they have determined that there are no adverse effects after the one-year mark, so that's why there's no reason to follow patients after visit 12. I said, "Did Samantha have a long honeymoon on her own?" He said, "She didn't have a honeymoon." He considers it no honeymoon since she has required insulin - it doesn't matter how much. He said he's not sure if they will tell us who got the drug: there is some letter that is already written & ready to go but it will take months to go through the proper channels. So -- we have one more visit in Feb.

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