Out of Control Pumpers!

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Out of Control Pumpers!

would like to know if there are others on an insulin pump that still cannot seem to control their blood glucose levels

Members: 104
Latest Activity: Aug 8

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Comment by Laura on August 8, 2014 at 1:01pm

I got my pump in 5th grade and the power slowly went to my head. It got so much easier to lie about my bg and even to not check it at all. I'd just guess the carbs and blood sugar, and correct when I felt too crappy. My past few a1c's have been way too high, so I went back to the pen. It was a difficult change, but my bg's gotten much better, and I don't have to deal with getting hooked and having my site ripped out anymore (which happened way too often).

Comment by ladyknotsalot on July 11, 2012 at 4:30pm

Hi everyone! I'm Karen. I've been type 1 diabetic for 30 years and just started the pump in March (4 months ago). I am very sensitive to insulin, so my trainer would enter my settings too high so I'd have lows then highs. My biggest problem is that when the pump isn't delivering properly my bs goes to over 500 and I become very ill. I was ready to throw the pump out the window. So I found some info about "untethered" pumping. I started taking Lantus (injection) as around 75% of my basal so I would always have insulin inside of me to avoid that. The other 25% basal was through the pump. I did this for a week and my BS became VERY level...more than at any other time I've been on pump (minimed 523). My doctor had a fit. Then I became very upset. WHY can't I do this the way it works for me? I changed back the day after my appt. to HER way. She set basal waaaayyy to low. I was nauseous and ill the very first day. and BS was over 300 most of the day. I had to change my settings AGAIN. I feel like I'm not allowed to run my own life. It was working more effectively when I figured it out myself than when doc or trainer were tweaking it. (venting). Anyone else have this problem??

Comment by MaryLou Little on February 11, 2012 at 11:19am

I am having trouble with my insulin pump. My b;lood scores are still normal or high. I talked to the Diabetic Pump coach has changed things around again. I hope this last adjustment will help. Well I have to admit my BG has only gone up to the 300+ instead of the 500's it used to do occasionally. My last reading at the Doctor's office was 200 plus and minus 100.

Comment by MaryLou Little on November 28, 2011 at 3:53am

Well my BG was in the 600's when I started using the pump, but now it is in the 100's and occasionally the 200's For me it is doing better. Don't do like i have done and ruined my eyes, kidneya, pancreas and liver basically from having too high a BG.
I have one friend on this site who gives me encouagement almost every day. He has said that eventually I will adjust to the pump. I sure hope so.

Comment by Lynnejr on November 26, 2011 at 12:16pm

Islandgrl, I totally understand. I am not controlling my BS w/pump, either. I eat all of the wrong things, pump for it, and then cover the high BS with another bolus. a constant circle of bad BS control.

Comment by Preeti on September 27, 2011 at 1:43pm
@Laura S.
I'm very sensitive to insulin also! I can take 1 unit and drop 120 points, which Gives me a lot of anxiety! I'm working on trying to control the wide BG fluctuations I've been experiencing! So far I think the omnipod has helped me, I'm still dealing with high BG for many hours after each new pod change!
Comment by kyle on September 11, 2011 at 2:15am
I was at under 20 and still conscious after my recent trip to the state fair, but I just ate allot of churros and brought it back up, it was a trip.
Comment by Kristin on November 20, 2010 at 4:04am
I snowboarded with a pump -- I kept it inside my layers of clothes- -- so it stayed padded and warm!

I have to admit that I didn't do jumps or tricks, but you can put it in a place where you are least likely to land on it (maybe strap it to your lower leg).
Comment by kyle on November 19, 2010 at 12:59pm
can you still snowboard ok with a pump?
Comment by Laura S. on July 12, 2009 at 10:19pm
Hi just joined, and this looks like a good group for me (unfortunately).
Wondering if any here are just super sensitvie to insulin?
I cannot balance at all at 120 or less, things just drop and drop. 140 is a safer number (if I could stay there) for me.
I have days where my BG will fall over 100 points from one unit.
I can pretty much skip any meal, so my basals are fine.
Any others with these issues?
My numbers are constantly around 8.3, or 9.3,
I think I had a 7.5 one time, and my Animas trainer at that time said it would never be easy for me.
 

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