parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1326
Latest Activity: on Tuesday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum


Started by crys. Last reply by Elizabeth on Sunday. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Trouble with Breakfast Highs

Started by SEM2REM. Last reply by SEM2REM Jul 6. 9 Replies

Stomach Pain and Low Blood Sugar

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 6 Replies

Dexcom 1st Insertion Let Down

Started by SEM2REM. Last reply by rgcainmd Jun 29. 3 Replies

Does red food dye increase blood sugars?

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 5 Replies

Camp Conrad Chinnock

Started by Jennifer Jun 25. 0 Replies

College Accommodations

Started by Larry D. Last reply by Hockey Mom Jun 11. 3 Replies

Pump vs Pens

Started by Melissa. Last reply by lizlowery Apr 23. 7 Replies

Comment Wall


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Comment by Elizabeth on July 21, 2014 at 10:16am

Also, I want to second the suggestion about having the thyroid checked. Hypothyroidism is very common in people with T1 diabetes and it can cause high cholesterol.

Comment by Elizabeth on July 21, 2014 at 10:11am

Linda, in addition to what marnie suggested, you might try eliminating dairy products for 3-6 months. Cholesterol comes from eating animal products, and while dairy is a top source of calcium, which your son obviously needs right now since he's growing like crazy, you can also get lots of calcium w/o the cholesterol from sources like almond or coconut milk (and yes: there are almond and coconut milk ice creams available). I had to eliminate dairy from my diet because of an allergy and so I switched to nondairy milks, and lo and behold three months later my cholesterol had dropped almost 45 points. Worth a try.

Comment by Linda Rabe-Frady on July 21, 2014 at 9:24am

@emmasmom - a statin is a drug given to lower cholestrol. @marnie - thanks for your answer, the cardiologist is given us a 3 month period to get BS undercontrol and has my son increase exercise to 40 mins cardio daily. I guess we sill see.

Comment by emmasmom on July 21, 2014 at 7:40am

Sorry for the ignorance but what is a stantin?

Comment by marnie on July 21, 2014 at 7:27am

Hi, of course I'm not a doctor, but here is what happened with my daughter. Puberty started last year and her A1C went up because it was difficult fighting the raging hormones. Also her LDL cholesterol went up and our doctor also hinted at statins. We didn't really change her diet, (she already eats very little saturated fat and no high fructose corn syrup). What we did change however, is we increased her basal insulin for day and night, by quite a lot. My husband researched and found that insulin has a part in cholesterol also! Well, we ended up with a better A1C and her last blood test had all normal Lipids! Just a side note, however, you may want to have his thyroid levels checked too, as that also plays a part in cholesterol. Good Luck!

Comment by Linda Rabe-Frady on July 20, 2014 at 8:32pm

13 yo son has grown 7" in last 6 months, A1c has taken a big hit. It was 8.9 at last endo visit. Normally always below 7. But his cholesterol and triglyserides were also elevated. Cardiologist may want to start statin if can't get it under contol with diet and exercise. Any other with this?

Comment by Emily Coles on July 9, 2014 at 10:42am

Is anyone here familiar with Safe Sittings?  I just learned about it, and immediately thought "I bet my parents would have LOVED a resource like this when I was a kid!"  It's a service that helps parents of kids with diabetes find babysitters who also have diabetes, and who have signed up in their registry to sit for D-kids.  The service itself is free, and you negotiate the price of the babysitter with the sitter.

Comment by Elizabeth on July 3, 2014 at 12:12pm

That's why we're here, Paula.

The child's safety and well-being always must come first. And if Dad doesn't understand this basic fact, he's not ready to handle your son's care regardless of whatever training he has.

Comment by paula77 on June 30, 2014 at 5:16pm

Elizabeth...You are right,thank you so much for telling me what I already knew. Your reassurance means so much to me that I could cry.
I too had to get my son's preschool staff and nurse up-to-date on Diabetes Education. My son's safety is 1st and foremost my main concern.
Again Thank you for the advice and support with this. It means so much to me :)

Comment by Elizabeth on June 30, 2014 at 12:13pm

Paula, here's the thing: you are the custodial parent. You are legally responsible for your child's safety and well-being. If your 4-year-old's father lacks the skills to manage his diabetes care, he is NOT qualified to have him overnight, not even for one day. Allowing him to take your son could be construed as child endangerment should something happen. I am not a lawyer, but my husband was told by a DSS social worker that allowing his children to stay overnight at their mother's place when he knew there was a chance she was actively engaged in drug use could get him charged — even though he wasn't the one endangering them, simply putting them in a situation where their well-being *might* be at risk would be enough for legal action against him. So DO NOT DO IT.

Simply having a few semesters of nursing school under his belt is not at all enough. Plenty of nurses know nothing about managing diabetes — I had to push my school district to train all of the nurses at the diabetes clinic after a nurse with long-time experience made a mistake handling my son, and this is a woman who'd been in this career a couple of decades! It would be different if your child were a teenager and capable of handling his own situation.

Obtaining training for your child's diabetes management is an ABSOLUTE prerequisite for overnight visits. Stand firm, and don't budge. Use the potential risk of legal action against you as a reason if you must, but DO NOT let anyone who hasn't been trained in diabetes management, even the father, take your child overnight. [PS I would not allow anyone not trained in diabetes management to take my son for more than 3 hours, personally.]


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From the Diabetes Hands Foundation blog...

#MasterLab through the eyes of the community

  The Diabetes Hands Foundation would like to thank everyone for attending the diabetes advocates MasterLab on July 2nd 2014. MasterLab was about building a sense of what is possible and designed to give advocates a chance to learn from veteran Read on! →

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

  Leer en español Technology has the amazing ability to ease the stress associated with diabetes; It simply makes our lives a little more bearable. That’s why we are excited to announce DHFs partnership with HelpAround. This new application will help Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Bradford (has type 1)


Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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