parents of kids with Type 1

Information

parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1031
Latest Activity: yesterday

Welcome

Welcome to the parents of kids with Type 1 group. I'm so excited that we now have 857 members!!!

I hope you find this group useful. Send me an email if I can help you in anyway.

Thanks.
Penny R.


MyCareConnect is a free, easy-to-use online solution for your child and all their caregivers – parents, school nurses, teachers, doctors & more. Start living connected today and share BG’s, carbs, notes and more instantly with all your caregivers via e-mail and text message.

Discussion Forum

Legal group working for better school care for kids with diabetes

Started by Emily Coles. Last reply by Fighting for Stephany yesterday. 17 Replies

Tonsillectomy?

Started by Mark. Last reply by Hockey Mom yesterday. 4 Replies

preschool

Started by andrea. Last reply by Jack's Mom on Wednesday. 9 Replies

Site changes with a 4 year old...

Started by Robin. Last reply by Jack's Mom on Tuesday. 19 Replies

When did your child feel low?

Started by Jen. Last reply by Annie on Tuesday. 4 Replies

Friends for Life? Who is going??

Started by NatalieHodge. Last reply by EllasMom Apr 21. 2 Replies

Mixed emotions

Started by Jen. Last reply by Jacob's mom Apr 20. 10 Replies

Low and a Panic Attack?

Started by ahe05a. Last reply by daneenm Apr 20. 2 Replies

Diabetes camp in Kentucky or tenessee??

Started by NatalieHodge. Last reply by MsShelly Apr 17. 1 Reply

Formal Omnipod Apology

Started by NatalieHodge. Last reply by Lorraine Apr 17. 4 Replies

increased basals for allergy season?

Started by Jacob's mom. Last reply by Jacob's mom Apr 3. 6 Replies

Comment Wall

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Comment by ahe05a on April 20, 2012 at 9:29am

@Fighting for Stephany - My 10 yr old has trouble sleeping lately. Once in a while she takes 1mg of Melatonin and sleeps much better. We don't do it often b/c it makes her sleep really deeply and at least now lows wake her up.

Comment by Hockey Mom on April 5, 2012 at 8:45am

My son's auto-immune diseases started with Thyroid in second/third grade (which is rare for boys) and progressed to Type I Diabetes at sophomore in high school. They waited and waited and kept retesting hoping that his low thyroid numbers were mono or some other disease that they were not specifically testing. He never recovered Thyroid function and takes synthetic Thyroid but the good news was we caught his Type I early due to our great Endo and he has never been in the hospital.

Comment by marnie on April 5, 2012 at 6:29am

My daughter was diagnosed Type 1 just 8 months ago...She started complaining that she had trouble falling asleep..She was very tired during the day and looked so pale...Her blood sugar numbers were fine...My endo ran bloodwork and it turns out it was her thyroid, which is not uncommon with Type 1...Now she takes a little pill every morning and has no more trouble sleeping and looks great again!

Comment by Cheryl on April 5, 2012 at 5:28am

My son also has been type 1 for just short of 9 years. He is 19. Pre-pump, rising overnight BG's always affected his sleep and he would definitely be irritable waking up that way, and be just plain difficult to get out of bed. If someone in the household is a late to bed sort of person, they might do a late check each night and correct any rising BG. Just verify with your endo to see what level they suggest correcting to so that you don't worry about an overnight low.

Comment by Fighting for Stephany on April 4, 2012 at 7:47pm

I have a 15 year old daughter who is type 1 diabetic for the past 9 yrs. My question is can it affect sleep? Mine has alot of problems sleeping and staying asleep. I have spoken to pediatrician and she said not to worry about it. But when she wakes up irritable and her sugar is high I worry about it. Any advice...

Comment by Mitch's*Mom on March 18, 2012 at 12:12pm

It has been a wonderful weekend for my son. His 8th birthday and almost 7 years of dealing with diabetes. He had a great weekend, an unexpected party at a water park and visits from his relatives. When it came time to blow out his birthday candles and make his wish, he said that it was the same wish he makes every year. For a cure. It breaks my heart. He is always such a trouper, never complaining about his pump and dex site changes, enduring what seems like a bazillion finger pokes, and he has never complained. He just wishes with all of his might every Birthday. He is my hero and my inspiration. I only wish I had a way to make his one wish in life come true. I keep praying that in his lifetime someone somewhere will make it so.

Comment by Holly on February 29, 2012 at 11:56am

I have been following all of the post's on this issue. Have you gone to a lawyer about these issues with your wife? I know it sounds extreem but maybe her influence in their lives is not a good thing and fighting her for full custody would be the only answer. I don't know what your situation is but sometimes the easy way for us isn't always the best for our kids. Good luck with your kids. Keep your chin up I hope things get better.

Comment by Holly on February 29, 2012 at 11:53am

Comment by Elizabeth on February 29, 2012 at 8:18am

Wow. That's... stunning. You have my sympathies, jms. Diabetes is hard enough to manage with BOTH parents on board, never mind when one is doing everything possible to undermine the other. Your wife's behavior could quite literally kill your daughter if you weren't there to counter it, and I give you props for working so hard in such difficult circumstances. We're here for you when you need to vent, and lordy, it sounds like you're going to need to vent plenty. I would second Natasha's suggestion. Is your daughter interested in the Jonas Brothers, or Crystal Bowersox? It might be helpful for her to know there are some famous, talented people out there with the same disease she has — give her someone to identify with.

Comment by Natasha Bowlds on February 28, 2012 at 6:30am

Have you looked into the CWD conference in Orlando? This is a great place to make a child with diabetes feel not just normal, but special. My son has met pro football players, Miss America, Crystal Bowersox, and more - and played basketball with other kids with diabetes. I agree that camp and a dog are great options too - just didn't know if you'd heard of the conference. We've gone twice and my son LOVES it. They also have pump reps there where my son was able to just try on pumps and see what they look like etc. It's called "Friends for Life."

 

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