parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1354
Latest Activity: on Friday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31, 2014. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31, 2014. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30, 2014. 4 Replies

Preteen who refuse to help manage Type 1 Diabetes

Started by Kennedysmom. Last reply by Kennedysmom Oct 24, 2014. 5 Replies

Comment Wall

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Comment by PhDiabetes on Friday

The 5k thing is funny. My son, wife, and I did a Turkey Trot. It was perfect because my wife can't keep up with him, but he can't keep up with me! So he was sandwiched between us!

My son is funny about things. When he runs, he just takes the pump off. He doesn't run for so long that it really makes much of a difference. He carries a stick of Clif shot blocks and a cell phone in his hand because he does not want it bouncing in his pocket -- he refuses to wear the SPI belt we got him, which works great for me. I hear you with the IOB. It's critical to consider that and how it might drop the BG during the run. Good points!

Comment by Sarah Howard on Friday

we also got him a belt so that he can carry carbs on a long run, that helps. and his cgms/test kit/glucagon as well. but needless to say, the belt isn't quite big enough so we pick and choose what to put in it!

Comment by Sarah Howard on Friday

Thanks for these suggestions. We are sort of in the same situation with a 10 year old who likes to run 5Ks. luckily his dad can keep up with him, at least for now. but that won't always be the case! So far, it seems that the insulin on board is critical-- that has messed us up before. He plays soccer too and that seems to be OK, but also we are more used to it-- we are just trying to figure out this running thing.

Comment by Jennifer on Friday
The chocolate flavors are the ones she can tolerate. My older daughter is a relatively new diagnosis so this might be affecting her BG, but I like her in 150-220 range before practice. Even if she's 200ish and takes the whole GU she can still end up in low 100s. Sometime her BG stays 200ish too. It really depends (as you know!) But she's never had a "low" using the GUs so they do the job. I don't think they have ever spiked her super high, which I wouldn't even mind honestly from a safety standpoint during practice but it might affect performance. For soccer she loves the chews. She can pop a couple before practice or on the sideline and they work well. Also, having IOB can be tough. My endo recommends a 15 carb uncovered snack an hour and a half before activity. This also seems to help from dropping. But as I said she was just diagnosed in October (my younger daughter was diagnosed 5 years ago), so she is honeymooning and is still producing some insulin. I would start out keeping him on the higher side and seeing how his body reacts. Avoiding lows is the primary concern, especially at the beginning. It takes trial and error but it can be done :)
Comment by PhDiabetes on Friday

Jennifer,

Thanks for the update. I'm a triathlete myself and like the GU Gels! The kids think they are disgusting, but maybe there's another flavor. The one thing I'm concerned about is the effect of variable levels of exercise, which we won't know ahead of time, for different types of workouts. I think that the practices will prompt lows much more than meets. I'm interested in knowing what target BG you go for before your 11 year old runs - for practices in particular. Thanks.

Comment by Jennifer on Thursday
Ph Diabetes, I am a runner and I have two daughters with T1. My 11 year old runs XC and plays high level soccer as well. I can not recommend GU energy gels highly enough. Marathon runners/triathletes use them in training and races, and they are the perfect form of sugar/carbs that is easily digestible (no cramping) before running. Each GU has about 22 carbs, and in our experience a GU works perfectly keeping her BG steady whole running. She takes the whole gel and hasn't had a low whole running. Of course your diabetes may vary but definitely try them. My daughter honestly doesn't like them-kind of a weird consistency/taste- but she knows they work. I also use them on long runs. They are sold at REI, Dick's Sporting Goods, etc. for about $2 each. They also have energy chews that she takes on the sidelines of soccer games-a little pick me up that gives better energy than a Starburst or other candy. Hope this helps.
Comment by PhDiabetes on Thursday
My 11 YO T1D son is joining the middle school track team. Up until now, we have had sports covered real well because ... I coach all the sports. Now, he'll be having track practice 3-4 times a week, without our supervision. Trying to come up with a plan that the coaches (there are like 5 of them!) can understand and follow to supervise him - he's pretty independent with things, but does need some oversight and someone to look out for him and keep him safe. Practices are on a quarter mile track, so he won't always be right near his stuff. He does not like anyone to see or know about his condition. Any ideas/suggestions? Anyone with a T1D kid running track or cross-country?
Comment by Barbi on January 5, 2015 at 10:18am

Elizabeth - I hope your child gets better soon!

Comment by Elizabeth on January 5, 2015 at 9:34am

I'm deleting all my comments. My own child is sick and I'm stressed and I'm not responding appropriately at the moment. I feel like I'm getting a lot of flack, and I *know* that's not what's intended, so it's probably best if I just withdraw for a while. I was trying to help, but the conversation is just making my own situation worse.

Comment by marnie on January 5, 2015 at 8:02am

However, if you read the "bio" she does indeed say that her daughter is on a pump, so obviously she does indeed take insulin. Just thought I would mention that, because that is what I often do in order to get a clearer picture of the situation.

 

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REsources

From the Diabetes Hands Foundation blog...

Spare A Rose, Save A Child for Valentines Day

Here’s a new way to celebrate Valentines Day: Buy a dozen roses, spare the cost of one (about $5) and donate to IDF’s Life for a Child program. By doing this, you will help children in need of life saving insulin. Those of Read on! →

Diabetes Hands Foundation Announces Interim Executive Director as Manny Hernandez, Co-Founder and President, Steps Down

Read the Spanish version of the announcement. BERKELEY, CA: January 15, 2015 – Manny Hernandez, President and Co-Founder of the Diabetes Hands Foundation (DHF), has announced his decision to step down as President of the organization. “Diabetes Hands Foundation has Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, has type 1)
Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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