parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1348
Latest Activity: 18 hours ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah yesterday. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco on Tuesday. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 on Tuesday. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9. 7 Replies

Bent cannula

Started by macfrizz. Last reply by sarhow Dec 1. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30. 4 Replies

Comment Wall

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Comment by Emily Coles on November 18, 2014 at 3:27pm

D-coloring book!  My counterpart on EsTuDiabetes.org, Mila Ferrer, has a son with type 1 diabetes, and a coloring book using pictures of their family was just published.  It's educational, in English and Spanish, and might bring a little fun to your child's diabetes.

Comment by Jan on November 15, 2014 at 7:39am

Firstly, I would like to say I'm horrified that her doctor took her off the pump. The pump is merely an insulin delivery device, and it is the best one, in my opinion. Putting your daughter on shots as a punishment is hurting your daughter, not just emotionally, but physically. Can you put a temp plus basal to help bring down stubborn high blood sugars on shots? No! The extreme growth hormones teens experience nightly make them extremely insulin resistant. In effect, correction doses of insulin need to be doubled sometimes. We used to have to have 100 percent temp basals plus correction going on for the hours of 10pm thru 2am almost nightly during growth periods. Can you manage do on shots? NO! I would urge you, as a parent, to test her blood sugars before bed, 12 midnight, 1:30am and 3am when you can correct via PUMP. If you notice the insulin is essentially acting like water, you can put an aggressive PLUS TEMP BASAL on the pump, re-check blood sugars every two hours until they come down. Only then can you go to bed. Can your teen stay up all night and do this? NO! Parents must manage their children's diabetes during the overnight hours. So that is your responsibility. As for her not testing and adjusting during the day, when it is her responsibility, you may have to take away privileges until she becomes more responsible. But the pump is a CRUCIAL NEED during puberty and teen years. Our teen was always very responsible about testing and correcting and we always, always and still do, manage her blood sugars overnight. Even with extreme management, her numbers were okay during the day, but VERY DIFFICULT to manage if growth hormones were active. I would urge you to put her back on the pump -- and get an endo who will. Then, do your part by managing her blood sugars overnight. That will improve the situation. Get all junk out of your house so that if she wants to cheat, she'll have to go out of the house to do so. Keep healthy snacks available, even cheeses and meats, home made chicken veggie soup, things she can snack on that do not effect her blood sugar. Some kids like SF Jello treats (ours never did). Then, if she is not going to be responsible while out of the house, ground her. Supervise blood sugar checks before meals if you are home. And, most importantly, she's probably burned out. I would get her counseling. This is a chronic, long-term disease. It takes a heavy emotional toll, whether the person admits that it does or downplays it. It's a very hard burden for a child to have to carry. Good luck! I think all teens or young adults will go through burn-out and slack off at some time or another. She will get back on track.

Comment by Emily Coles on November 10, 2014 at 12:28pm

Hey parents of kids with Type 1.  In case you didn't see, we are having a live-streamed presentation on the TuDiabetes home page tomorrow about promising research toward a cure for T1D.  Please join us, and bring questions!

http://www.tudiabetes.org/events/live-interview-joshua-levy-map-to-...

Comment by Horizon22 on October 31, 2014 at 11:57am

Hello All!
My son Joseph was diagnosed almost two years ago at age 3.5. We were lucky enough to leave the hospital on the pump (Medtronic Revel). Last year we "upgraded" to the 530g with the Enlite Sensors... in theory the system is great! I even purchased the MySentry which... for the money isn't he most reliable. Currently we are experiencing such struggle with sensors.... they fall off or just don't last all that long. Also, Joseph's bg's tend to swing all day (I can't even comprehend seeing a somewhat steady line) which causes the CGM to never really be accurate.... which causes us to still have to test all day long. Even though we have so much trouble with the CGM I can't imagine giving it up..... a low predict alarm will be a little late to the party catching an already low bg, but it's still caught before any real problems arise.
Anyway, I am starting to babble now, I just wanted to introduce myself and give a little information on our situation!
Thanks for taking the time to read!
Jennifer

Comment by nurivl on September 21, 2014 at 1:18am
Hi all!
First of all, sorry for my English, I'm Spanish and I can understand much better than explain, "typical Spanish"!. My daughter is only 2 y/o, she was diagnosed diabetes when she was 18 months and she wears an insulin pump and a Dexcom G4 since June 2014. During the day her BG levels are more or less controlled but the nights are still a nightmare... hypos and hypers one or the other depending on the night, and often both together in the same night (one after the other)... Our endo says than this is normal because her age, but I don't know what to think because here in Madrid there are not many cases of diabetes in children so young and maybe the endos don't have too much experience with babies.... Is there anyone in the same situation as me?
Comment by Elizabeth on September 16, 2014 at 6:24am

Tarek, as far as your daughter's CGM is concerned, I would try contacting either Medtronic, which makes both the Guardian system and the Enlite system, or Dexcom, which makes the Dexcom sensor that seems very popular with the folks on this site, and ask them what needs to happen. This link takes you to an article on DiabetesNet that describes the current products available in the US. I do not know if anything else might be available in UAE but this is what we have here in the USA.

Comment by Elizabeth on September 16, 2014 at 6:20am

Welcome all three of you (sorry, Tarek, I did not see your post until just now)! I have a 7 year old son who was diagnosed at 18 months. There are a great many wonderful people here and they have been a fantastic help to me over the past not-quite-six years [Eric's diabetes anniversary is October 6].

Comment by Survivor Mother on September 13, 2014 at 9:20pm
My daughter is 10. Was diagnosed at the age of 8
Comment by Survivor Mother on September 13, 2014 at 9:18pm
Hello everyone! I just joined.
Comment by Jennifer on September 12, 2014 at 10:11am

Hi. Everyone. I just joined tudiabetes. My 8 year old son had Type 1 diabetes and was diagnosed on March 6, 2010. Looking forward to talking to you all.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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