My 6 year old was diagnosed 4 months ago and it seems the "Honeymoon phase" is coming to an end. I have read all the books, taken all the classes, talk to experts, exhausted myself with as much knowledge as I can...... My problem is I am scared all the time. I put on a game face in front of my son, but I still cry. Worried I will make a mistake. Moms who have been through these times please tell me what helped you get through it?? Will this non-stop worry ever go away?? Any advice would help right now...
Absolutely 1eyenurseguy. I totally agree with you:)
Yes it gets easier. Our youngest son is 8 and was diagnosed a year and 2 months ago. I recently went to a doctor for myself and he said- I see here you were last here 2 years ago and I said to come back in 6 months.... I realized that the fog had lifted and I had started taking care of myself and other basic needs that got put aside while learning to be a pnacreas!! Don't know what your options are but our son got a pump after 8 months and it makes many things much easier. The worry lessens- I was so afraid of hypos and now that I've seen hime at 60,52, 47, 37!!!I realize that he won't pass put so qucikly if we're reasonably alert and cautious. Hang in there. I still cry while reading many of these entries because it's just hard for others to understand how draining it all can be.
We from DASH camp share with you our solidarity. My name is Fabiana Couto, I am brazilian and have been living in the US for the past two years. I have had type 1 diabetes for more than 20 years. My tud profile is: http://www.tudiabetes.org/profile/FabianaCouto.
I am currently working at DASH Camp (www.dashcamp.org), which is a non-profit organization that promotes healthy, active lifestyles and sports careers among young people with diabetes. I am doing this because it is my way to contribute to others and stay on track with my own diabetes.
I have a lot of compassion for moms of children with type 1 diabetes because diabetes can be even more challenging to parents. Parent's power over their children's diabetes management is limited; education and involvement are key to support the child, but there is a moment that parents can't go any further, and they need to accept the course of things, trust the process and let it go.
I am sure soon you will find a balance, and (No, its to always so overwhelming) - It gets better! My mom still worries, but she learned to trust the process. I am super healthy after more than 2 decades living with diabetes and believe me, My diabetes was not in good control for years. Curt is lucky to have your support. You will make it through... congratulations on learning about it as much as you can, and joining the diabetes community. Take care of yourself too, nurture yourself so you can be strong for your son.
Very best and please feel free to connect if you would like to!
My daughter is 12, diagnosed 2 years ago this April. I was definitely where you are!! I don't think you ever stop being concerend but you do get to a point where it does not consume you as much. I have done the same as you, educated myself as much as possible. You are the one who will know your child the best for now and how things affect him. I have to say that as the days pass, you will learn more frome experience than just what you can read in books and online.
I still write down everything my daughter eats so that we can continue to learn how foods affect her.
I still get up every night to check her blood sugar. I don't think that part goes away unless you get a CGM that will alert you.
with regard to everything else, I do believe it gets easier because you learn how to best avoid the severe highs and lows!!!!! The amount of work you do on a daily and nightly basis will not change much until your child is older and can learn to help but it does get easier!!!!!! You will be able to eyeball food portions and carb counts etc.
My suggestion would be to keep a Calorie King book with you. Also there are a few smart phone apps that help me.CalorieKing and GoMeals are 2 good ones to help me look up carbs.
I share this because this seems to be the biggest time consuming part of the diabetes.
Do you have a church or a support group? I have found that my faith has gotten me through a lot as well!! I definitley have to say that finding another family with a child with T1D is the most helpful. Someone you can talk to or communicate with that really gets it!!!! There are plenty of people who are compassionate but truly, until you've lived it, there is no real understanding of what T1D Parents are going through.
I pray you get to a place where you feel better and more confident about what it take s on a daily basis. My daughter is happy and very athletic. She does not let T1 stop her (MOST OF THE TIME). I feel more and more confident everyday that she can do anything she sets her mind to. I can't tell you not to worry because sometimes I lose focus and let that consume me, then I count my blessings and try to redirect my thoughts on the positives:
She can lead a long happy life with T1 AND its not terminal (I just had a dear friend lose their 11 year old daughter to stage 4 cancer) I remind myslef it could be worse.
I hope this helps!! I am not trying to discount your feelinigs at all!!!! I was where you are a year ago. I just want to encourage you!!! Blessings to you!!
Curt's Mom, my daughter was dx'd two years ago. Is it better?......yeeeeees, but.....you never stop worrying. I've written about our experiences http://kcandcompany.wordpress.com
There are many other great blogs by moms of kids with T1. As the mother of a son, you might like http://www.ourdiabeticlife.com/
Hang in there!