Replies to This Discussion

Permalink Reply by Jeff Simms on January 4, 2013 at 7:54am

I would discuss it with your endocrinologist, but it sounds like you need to adjust his Lantus lower. Usually when my son is sick it makes his numbers go up not down.

Permalink Reply by Mom 2 Kyle on January 4, 2013 at 9:39am

His endo has been on vacation in Peru over Christmas/New Years. We will see her on Monday morning. I have been up ALL night with him and if I weren't we would have ended up with serious hypo for sure. Been giving him around 40 carbs of snacks during the night. I just don't know what to do. :(

Permalink Reply by Jacob's mom on January 4, 2013 at 9:17am

it is no fun when they are sick and when their numbers are not what you would expect, he has had a rough time, you too! one thing to try is to pre bolus if you do not already if he is spiking 2 hours post it might help to give his rapid insulin 10-20 minutes before he eats, i know this complicates things but it can help also is he eating enough protein and fat? if this doesnt work then his lantus may need to be lowered, so many variables! has his activity picked up now that he is feeling better? in anycase i hope things improve. best wishes, amy

Permalink Reply by Mom 2 Kyle on January 4, 2013 at 9:37am

His endo has been on vacation in Peru over Christmas/New Years. She said (via text) to lower his carb ratio numbers as he is dropping after he eats because he has too much insulin on-board after his food has digested. However, he is going SO high post-meal I can't imagine him going even higher (he has a CGM and it's reading 280 at 1 hour post meal). Then, again he's dropping like a bomb 3+ hours after eating. UGH!!! Thanks for your help. I am nervous that his numbers are high and not low with him being sick.

Permalink Reply by Jacob's mom on January 4, 2013 at 5:51pm

i meant to reply sooner but i was busy at work, i think sometimes we as moms have to trust our instints,and not be afraid to make changes. i think your endo didnt see the big picture when she/he said to decrease his carb ratio, it is a pain but if you are not doing it try making him wait a bit after doing his rapid shot, it is suppose to help with spikes. one thing is for certain when you have this figured out it will change again, sickness can really throw things out of wack, if you are worried about night time lows try deceasing his lantus also a higher fat or protien snack helps to, i feel your frustration, hang in there! amy

Permalink Reply by Mom 2 Kyle on January 6, 2013 at 10:06am

We seem to have the breakfast and lunch under better control, but we are still giving tons of snacks during the night to keep his #'s up. Then around 3:00 a.m. he starts to rise & rise (DP kicking in). Spoke with his endo. today (she's back from vacation in Peru) and she said to lower his lantus. I told her that I have already tried this for several nights and then he wakes up at 230+. She said it may be time for a pump. Wish we could find another way other than a pump. :(

Permalink Reply by marnie on January 6, 2013 at 10:52am

Hi...my daughter was diagnosed a year and a half ago...also doesn't want a pump..we test her throughout the night and have found she starts to rise around 5:30 am after being in the 70 to 90 range. once she hits 140, we give her just .5 unit of humalog, then test every 30-40minutes to make sure she doesn't go too low until she has her breakfast at 8am...she is usually in the 80's at breakfast..if we didn't give the .5 humalog, she would be in the 180's by breakfast...we are presently working on getting her a CGM...again, she does not want a pump...her A1C's are always between 6.1 and 6.5 so what we are doing is working...we test A LOT which is why I think a CGM will help...Good Luck!...Marnie

Permalink Reply by Mom 2 Kyle on January 6, 2013 at 11:00am

Kyle has a CGM so I check that a lot. Problem is it doesn't seem to catch the highs. Once his #'s hit above 190 it is really off (30-50 points). So, I still have to test him if the CGM is reading high. So, you are comfortable running her in the 70-90 range? We try to keep my son in the 100-120 range. He feels funny (light headed) around 80. I want to try to work his #'s down but we are so scared of lows.

Permalink Reply by marnie on January 6, 2013 at 11:30am

We are comfortable with that range but my hubby and I check throughout the night taking turns and setting 2 alarm clocks to ensure we don't oversleep. Once she is below 70, we wake her up and give her some juice, but that only happens about once a week. My endo knows this and feels ok with it since we are so insane with checking...What CGM do you have?...We will be getting the latest Dexcom called G4 platinum...we have a friend with it and he loves it...I'm hoping that will help us...marnie

Permalink Reply by Mom 2 Kyle on January 6, 2013 at 12:44pm

Yes, we just started the G4 in November. We love it. The only thing is it takes a long time to show it's rising from a low ... we over corrected a few times. It takes your glucose meter 15-20 minutes to show a change (increase) and the CGM can be 10-15 minutes behind your glucose meter. So you can see where that can be a problem. But, we use the glucose meter (finger test) now after 15-20 min. to make sure he is rising from a low & sure enough the CGM catches right up within about 10-15 minutes.

Permalink Reply by marnie on January 6, 2013 at 1:03pm

Thanks, that's good to know...Also, my daughter's background/long acting insulin is levimir which she gets at 7am and a smaller dose at 7 pm...my endo likes it that way and it keeps her in a good range...one more quick question...does it hurt a lot putting on the CGM and do you get 7 days out of it like they advertise? thanks, marnie

Permalink Reply by Mom 2 Kyle on January 6, 2013 at 1:30pm

** For some reason I can't reply to your reply below.
Most of his sensors last 9-10 days. I have learned to replace them at 9 so they don't go out while he's at school (He gets "???" for hours). He has quickly learned to rely on it & it has made him feel more comfortable running around in PE not worrying about going low. He only had one insertion that he said hurt (& it bled). He says it doesn't hurt much more that an insulin injection. Good luck! :)

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