Replies to This Discussion

Permalink Reply by Tonya H on January 28, 2013 at 9:16pm

Hi jakesmom,
I wanted to reply to let you know that you have been heard and we feel your pain. It makes us so vulnerable, when we put our true feelings out there. I think we all feel the way you do. Every time the media includes the word "diabetes" in their headline or plot point, without clarifying which TYPE of diabetes they mean, it does everyone of us in the T1 community a GREAT disservice. Whenever I hear an ignorant comment or remark, I use that as a "teachable moment," and tell them every way that my child's Type 1 diabetes is NOT like the Type 2 THEY have. I hope your coworker will understand that soon and will stop adding more unneeded stress to your life. Lord knows we have enough already. ((hugs)) to you and your son. (btw, our daughter was also dxd at 23 months and is now 6 yrs old.)

Permalink Reply by jakesmom427 on January 28, 2013 at 9:27pm

Thanks Tonya. I appreciate you responding. I feel better that I got it out there. I know the woman is scared and confused and I don't want to say anything to her to make things more difficult. I figured this was probably the best place to share.... even if a few people decided to flame me for it. I just hope that I have half the strength that Jake has, as long as a do I'll be OK. He's the bravest little man I know. Good luck to you and your daughter as well!

Permalink Reply by Dawn on January 28, 2013 at 9:33pm

I understand your frustration. I truly don't think think many people, especially type 2, get what type 1 is all about. They don't understand it is a whole other ballgame. I try to remind those 2's that they are lucky to have a pancreas that works and have some control over how bad their diabetes really is........also praying for peace acceptance and understanding. Thinking of you.

Permalink Reply by aimeeh2oski on January 28, 2013 at 9:39pm

Oh, I don't blame you one bit. I don't know how you haven't lost it yet with this woman. I'm sure she thinks you are a sympathetic ear and probably doesn't have a clue how you feel. And there's really no diplomatic way to address her. How do you nicely tell someone their condition is entirely their fault and they wouldn't even need pills and supplies if they lost 200 pounds? Sometimes just venting is exactly what you need.

And we've been through the stomach bug, too, last year. My daughter was diagnosed last February and had the bug in May - it was the 2nd worst week of my life! Had to inject her with Glucagon 2 nights in a row b/c she refused to eat and her BG was dropping at bedtime. I hope Jake gets over it soon!

Permalink Reply by Tonya H on January 28, 2013 at 9:41pm

Our kids are my heroes. Their strength and courage never ceases to amaze and inspire me.

Permalink Reply by 1eyednurseguy on January 29, 2013 at 8:49pm

same here.

Permalink Reply by marnie on January 29, 2013 at 2:51am

I agree with you totally but never put my feelings in writing! You just did it for me! Hope your little guy starts feeling better today! My daughter was diagnosed less than 2 years ago at age 10, and I always tell my husband that it must be even more difficult when they are still babies. Hang in there, Sister!

Permalink Reply by type1moms on January 29, 2013 at 4:43am

You are not alone.

Permalink Reply by ProudMama on January 29, 2013 at 5:37am

jakesmom - do not apologize for feeling as you do. I think we all have these moments, sometimes more often then we want to let on. I know the first time I picked up my sons supplies from the pharmacy and stood behind a young, 20ish, woman, with tattoos, smelling of smoke, who complained about her $3 co-pays. It was all I could do to not reach out and "touch someone". And I have good insurance and was still in shock when I got my co-pay bill.

My son is not as young as yours, mine is 16, almost 17, but diagnosed this past August. I struggle with the frustrations of it all, as well. I need to get him ready for being away from home for college, and that scares the *hit out of me! But I do realize how fortunate I am that he is the age he is. I can not imagine my sweet baby, being all of 1 or 2 getting this.

Feel free to share the pain and frustration.
{{{hugs}}}

Permalink Reply by daneenm on January 29, 2013 at 6:27am

Totally understand. My son was dx at 20 months, so I understand exactly how you feel. Those toddler years are so volatile in BGs on a normal day, and add illness and it can be maddening/scary/exhausting!

I will tell you that as they get older, their BGs are a bit less volatile. Illness is still hard, but daily BGs seem to not get the dramatic lows as often. Nothing about this disease is easy though. I don't think anyone but another parent of a child with T1D can truly understand. Hang in there!

Permalink Reply by Molten Fungus on January 29, 2013 at 10:31am

so, I just joined so I can reply to this post.

About a year and half ago, my daughter was diagnosed with T1.. probably the first time in my life where I felt my legs buckle (though I know there are worse thing in this world). I was laid off from my job in 2009, and was working two contracting jobs, and was able to stash away some bucks. Paying your own family health coverage (bad at that) to the tune of 1600 per month, with a 25,000 emergency room deductible. In the end, my medical bills were in the order of 35K, so that second job and all those late nights just went *poof*, but it was worth every penny to get her the care that she needed. However, when I see these morbidly obese people, who then get T2 and are on medicaid or medicare, guess who foots that bill ? And like the original poster states, "what.. you didn't know that eventually your lifestyle wasn't going to bite you in the .....".

Permalink Reply by 1eyednurseguy on January 29, 2013 at 8:47pm

Hey Jakesmom,
Trust me. I feel your frustration. It is always hard for me to talk to my family about diabetes because they developed type 2 primarily based on their lifestyle choices. It breaks my heart when I have to discuss with my daughter EVERY FREAKING TIME we leave their house that her diabetes and theirs are vastly different and that she needs to keep doing things the way she is doing them (checking BS regularly, bolusing for that tight glucose control etc...). I also have to point out that I am the only one of the family that has not developed type 2 and I am fairly active (usually, but now I am in RN school so that has gone on the back burner for a while) so that HELPS me from getting it.

You are doing a great job by not unleashing on your coworker. Maybe she could be, in her own way, asking for help with management from someone she knows and trusts. I know I have educated several patients/my family on recommendations about control and encourage them to get active so they will be around for a longer period of time and it can get better but only if THEY chose to make it so. Keep your head up and, please by all means, VENT, VENT, VENT. Prayers for you and yours.

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